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  1. H

    Diagnosed at age 50

    Nahide~ I'd like to invite you to tell us about your nephew on the Families forum. <img src="i/expressions/face-icon-small-smile.gif" border="0"> This is where you will find most of the parents with children with CF, and they will be able to offer advice and answer any questions you have. We...
  2. H

    Diagnosed at age 50

    Nahide~ I'd like to invite you to tell us about your nephew on the Families forum. <img src="i/expressions/face-icon-small-smile.gif" border="0"> This is where you will find most of the parents with children with CF, and they will be able to offer advice and answer any questions you have. We...
  3. H

    Diagnosed at age 50

    Nahide~ I'd like to invite you to tell us about your nephew on the Families forum. <img src="i/expressions/face-icon-small-smile.gif" border="0"> This is where you will find most of the parents with children with CF, and they will be able to offer advice and answer any questions you have. <br />...
  4. H

    Diagnosed at age 50

    <div class="FTQUOTE"><begin quote>i have learned more from all of you than from embry. thanks for all your posts!</end quote></div> I am glad you found us here! Genetic testing like Ambry is invaluable for accurate dx and finally helping, in many cases, to put that last piece into the puzzle to...
  5. H

    Diagnosed at age 50

    <div class="FTQUOTE"><begin quote>i have learned more from all of you than from embry. thanks for all your posts!</end quote> I am glad you found us here! Genetic testing like Ambry is invaluable for accurate dx and finally helping, in many cases, to put that last piece into the puzzle to answer...
  6. H

    Diagnosed at age 50

    <div class="FTQUOTE"><begin quote>i have learned more from all of you than from embry. thanks for all your posts!</end quote> <br />I am glad you found us here! Genetic testing like Ambry is invaluable for accurate dx and finally helping, in many cases, to put that last piece into the puzzle to...
  7. H

    Swimming in lakes

    Swimming is encouraged at our center. It is great exercise all over and for the lungs! All we've been warned against is stagnant water and hot tubs. I don't personally feel that wet floors around a properly chlorinated pool will be a problem, esp when it's regularly washed down ...otherwise...
  8. H

    Swimming in lakes

    Swimming is encouraged at our center. It is great exercise all over and for the lungs! All we've been warned against is stagnant water and hot tubs. I don't personally feel that wet floors around a properly chlorinated pool will be a problem, esp when it's regularly washed down ...otherwise...
  9. H

    Swimming in lakes

    Swimming is encouraged at our center. It is great exercise all over and for the lungs! All we've been warned against is stagnant water and hot tubs. <br /> <br />I don't personally feel that wet floors around a properly chlorinated pool will be a problem, esp when it's regularly washed down...
  10. H

    Got the boot from BABY CF CLINIC DAY

    Sputum cultures are notoriously unreliable~ a throat swab may be normal when a good productive sputum sample may show up something completely different. There is also always that time between negative culture and first positive culture... when bugs can be spread before anyone knows they are...
  11. H

    Got the boot from BABY CF CLINIC DAY

    Sputum cultures are notoriously unreliable~ a throat swab may be normal when a good productive sputum sample may show up something completely different. There is also always that time between negative culture and first positive culture... when bugs can be spread before anyone knows they are...
  12. H

    Got the boot from BABY CF CLINIC DAY

    Sputum cultures are notoriously unreliable~ a throat swab may be normal when a good productive sputum sample may show up something completely different. <br /> <br />There is also always that time between negative culture and first positive culture... when bugs can be spread before anyone knows...
  13. H

    Portrayed Life Expectancy Affecting Life Decisions

    I would go to <A HREF="http://www.wrightslaw.com">www.wrightslaw.com</A> (one of the best resources out there when it comes to learning about IEP's, 504's, helping our kids w/ disabilities, spec ed, and all related topics!) and then to the link on the sidebar called <A...
  14. H

    Portrayed Life Expectancy Affecting Life Decisions

    I would go to <A HREF="http://www.wrightslaw.com">www.wrightslaw.com</A> (one of the best resources out there when it comes to learning about IEP's, 504's, helping our kids w/ disabilities, spec ed, and all related topics!) and then to the link on the sidebar called <A...
  15. H

    Portrayed Life Expectancy Affecting Life Decisions

    I would go to <A HREF="http://www.wrightslaw.com">www.wrightslaw.com</A> (one of the best resources out there when it comes to learning about IEP's, 504's, helping our kids w/ disabilities, spec ed, and all related topics!) and then to the link on the sidebar called <A...
  16. H

    Portrayed Life Expectancy Affecting Life Decisions

    An IEP can encompass actual academic accommodations, whereas a 504 cannot. A 504 can grant non-academic accommodations to help your child succeed in the school environment. Also worth noting- a child that is GIFTED can get an IEP to help them serve their needs just as one that needs one to...
  17. H

    Portrayed Life Expectancy Affecting Life Decisions

    An IEP can encompass actual academic accommodations, whereas a 504 cannot. A 504 can grant non-academic accommodations to help your child succeed in the school environment. Also worth noting- a child that is GIFTED can get an IEP to help them serve their needs just as one that needs one to...
  18. H

    Portrayed Life Expectancy Affecting Life Decisions

    An IEP can encompass actual academic accommodations, whereas a 504 cannot. A 504 can grant non-academic accommodations to help your child succeed in the school environment. Also worth noting- a child that is GIFTED can get an IEP to help them serve their needs just as one that needs one to...
  19. H

    Moving to Hawaii....

    There is a family with two children w/CF that moved to Hawaii in the last couple years (non military as far as I know), I know it's not the same as adult CF care but she may have some good input for you. Hopefully she'll see this!
  20. H

    Moving to Hawaii....

    There is a family with two children w/CF that moved to Hawaii in the last couple years (non military as far as I know), I know it's not the same as adult CF care but she may have some good input for you. Hopefully she'll see this!
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