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  1. H

    Portrayed Life Expectancy Affecting Life Decisions

    Appropriate treatment will definitely only HELP!! In Emily's case we learned very early on that when she got sick prior to her dx, abx were never used appropriately and so she wasn't fully recovering and she was sick again soon afterwards. (I was recognizing this pattern and yanking my hair out...
  2. H

    Portrayed Life Expectancy Affecting Life Decisions

    Appropriate treatment will definitely only HELP!! In Emily's case we learned very early on that when she got sick prior to her dx, abx were never used appropriately and so she wasn't fully recovering and she was sick again soon afterwards. (I was recognizing this pattern and yanking my hair out...
  3. H

    Portrayed Life Expectancy Affecting Life Decisions

    <div class="FTQUOTE"><begin quote>How old or what grade was your child in when they started to miss a lot of school?</end quote></div> It will vary a great deal when they start missing a lot of school... if they have limited disease involvement, they won't miss any more school than the average...
  4. H

    Portrayed Life Expectancy Affecting Life Decisions

    <div class="FTQUOTE"><begin quote>How old or what grade was your child in when they started to miss a lot of school?</end quote> It will vary a great deal when they start missing a lot of school... if they have limited disease involvement, they won't miss any more school than the average...
  5. H

    Portrayed Life Expectancy Affecting Life Decisions

    <div class="FTQUOTE"><begin quote>How old or what grade was your child in when they started to miss a lot of school?</end quote> <br /> <br />It will vary a great deal when they start missing a lot of school... if they have limited disease involvement, they won't miss any more school than the...
  6. H

    How were you tested for pancreatic insufficiency?

    Yes- serum lipase is used much more commonly to dx pancreatis than pancreatic insufficiency, since it's not a test specific to cf if numbers are low ('normal' values are quite low to begin with, and 'abnormal' low values can be caused by many things.) However, elevated lipase is very much...
  7. H

    How were you tested for pancreatic insufficiency?

    Yes- serum lipase is used much more commonly to dx pancreatis than pancreatic insufficiency, since it's not a test specific to cf if numbers are low ('normal' values are quite low to begin with, and 'abnormal' low values can be caused by many things.) However, elevated lipase is very much...
  8. H

    How were you tested for pancreatic insufficiency?

    Yes- serum lipase is used much more commonly to dx pancreatis than pancreatic insufficiency, since it's not a test specific to cf if numbers are low ('normal' values are quite low to begin with, and 'abnormal' low values can be caused by many things.) However, elevated lipase is very much...
  9. H

    Suggestions

    WOW- 55ml/hr after only 3 weeks? I am impressed he was able to handle that! Emily at age 9 could not. I am thinking a rate higher than he was initially able to tolerate, more than the type/calorie of formula you were using may have been responsible for the difficulties he was having. (When it...
  10. H

    Suggestions

    WOW- 55ml/hr after only 3 weeks? I am impressed he was able to handle that! Emily at age 9 could not. I am thinking a rate higher than he was initially able to tolerate, more than the type/calorie of formula you were using may have been responsible for the difficulties he was having. (When it...
  11. H

    Suggestions

    WOW- 55ml/hr after only 3 weeks? I am impressed he was able to handle that! Emily at age 9 could not. I am thinking a rate higher than he was initially able to tolerate, more than the type/calorie of formula you were using may have been responsible for the difficulties he was having. (When it...
  12. H

    How were you tested for pancreatic insufficiency?

    Serum lipase and amylase can be checked, though it's not a cf-specific test. It is routinely done when someone is suspected of having pancreatitis (levels are elevated in that case.) I'd assume it's due to the non-specific nature of this test (other sources cite normal values as 0-160!) that...
  13. H

    How were you tested for pancreatic insufficiency?

    Serum lipase and amylase can be checked, though it's not a cf-specific test. It is routinely done when someone is suspected of having pancreatitis (levels are elevated in that case.) I'd assume it's due to the non-specific nature of this test (other sources cite normal values as 0-160!) that...
  14. H

    How were you tested for pancreatic insufficiency?

    Serum lipase and amylase can be checked, though it's not a cf-specific test. It is routinely done when someone is suspected of having pancreatitis (levels are elevated in that case.) I'd assume it's due to the non-specific nature of this test (other sources cite normal values as 0-160!) that...
  15. H

    How were you tested for pancreatic insufficiency?

    Yes, Lauren, this is a reputable/commonly performed test. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br> <br>Here is some info about it. <A HREF="http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm">http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm</A> <br>...
  16. H

    How were you tested for pancreatic insufficiency?

    Yes, Lauren, this is a reputable/commonly performed test. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br> <br>Here is some info about it. <A HREF="http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm">http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm</A> <br>...
  17. H

    How were you tested for pancreatic insufficiency?

    Yes, Lauren, this is a reputable/commonly performed test. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br> <br>Here is some info about it. <A HREF="http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm">http://www.nlm.nih.gov/medlineplus/ency/article/003892.htm</A> <br>...
  18. H

    Suggestions

    Have you tried different types of supplements? Sometimes ones that are predigested will be better tolerated than ones designed to be taken orally. I know with Emily we also started with a VERY slow rate and gradually increased every 7-14 days (depending on how things were going)- therefore it...
  19. H

    Suggestions

    Have you tried different types of supplements? Sometimes ones that are predigested will be better tolerated than ones designed to be taken orally. I know with Emily we also started with a VERY slow rate and gradually increased every 7-14 days (depending on how things were going)- therefore it...
  20. H

    Suggestions

    Have you tried different types of supplements? Sometimes ones that are predigested will be better tolerated than ones designed to be taken orally. I know with Emily we also started with a VERY slow rate and gradually increased every 7-14 days (depending on how things were going)- therefore it...
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