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I'm sorry your son has so much going on with him. It's always so hard to add yet more to the list of challenges we face. Many of the previously dx'ed symptoms are classic for a straightforward CF diagnosis as it is- pancreatic insufficiency as indicated by elastase levels, lung disease as...

I'm sorry your son has so much going on with him. It's always so hard to add yet more to the list of challenges we face. Many of the previously dx'ed symptoms are classic for a straightforward CF diagnosis as it is- pancreatic insufficiency as indicated by elastase levels, lung disease as...

I'm sorry your son has so much going on with him. It's always so hard to add yet more to the list of challenges we face. <br /> <br />Many of the previously dx'ed symptoms are classic for a straightforward CF diagnosis as it is- pancreatic insufficiency as indicated by elastase levels, lung...

Please don't worry about increased sputum, it's not anything NEW- it will just be allowing her to expel what is already THERE by hydrating and thinning it. So if you see more- be glad she is getting rid of it. Every time Emily has started a tx that resulted in productive cough and expelling...

Please don't worry about increased sputum, it's not anything NEW- it will just be allowing her to expel what is already THERE by hydrating and thinning it. So if you see more- be glad she is getting rid of it. Every time Emily has started a tx that resulted in productive cough and expelling...

Please don't worry about increased sputum, it's not anything NEW- it will just be allowing her to expel what is already THERE by hydrating and thinning it. So if you see more- be glad she is getting rid of it. <br /> <br />Every time Emily has started a tx that resulted in productive cough and...

I think I may give these a try as well. Emily has been having more trouble than usual with the heat this year. Can the salt tablets be swallowed whole with the water or do they have to be dissolved into something? **not that this would necessarily be a problem, since Emily has been craving salt...

I think I may give these a try as well. Emily has been having more trouble than usual with the heat this year. Can the salt tablets be swallowed whole with the water or do they have to be dissolved into something? **not that this would necessarily be a problem, since Emily has been craving salt...

I think I may give these a try as well. Emily has been having more trouble than usual with the heat this year. Can the salt tablets be swallowed whole with the water or do they have to be dissolved into something? **not that this would necessarily be a problem, since Emily has been craving salt...

When Emily is healthy her staph just kind of hangs out and behaves itself for the most part. She's cultured it since her dx. When she's sick, though, she's really sick, and generally for a long time. I can pinpoint a couple major illnesses with secondary infections attributed to her staph that...

When Emily is healthy her staph just kind of hangs out and behaves itself for the most part. She's cultured it since her dx. When she's sick, though, she's really sick, and generally for a long time. I can pinpoint a couple major illnesses with secondary infections attributed to her staph that...

When Emily is healthy her staph just kind of hangs out and behaves itself for the most part. She's cultured it since her dx. When she's sick, though, she's really sick, and generally for a long time. I can pinpoint a couple major illnesses with secondary infections attributed to her staph that...

edan~ were you specifically instructed to immediately follow the hypersal with the pulmozyme? Hypersal can affect how well the Pulmozyme works. We do albuterol, hypersal and pulmicort in the AM, albuterol, pulmozyme and pulmicort at night. When doing 3 tx/day we add another hypersal. We were...

edan~ were you specifically instructed to immediately follow the hypersal with the pulmozyme? Hypersal can affect how well the Pulmozyme works. We do albuterol, hypersal and pulmicort in the AM, albuterol, pulmozyme and pulmicort at night. When doing 3 tx/day we add another hypersal. We were...

edan~ were you specifically instructed to immediately follow the hypersal with the pulmozyme? Hypersal can affect how well the Pulmozyme works. We do albuterol, hypersal and pulmicort in the AM, albuterol, pulmozyme and pulmicort at night. When doing 3 tx/day we add another hypersal. We were...

This is a fantastic resource. I printed it out for Emily's school a couple years ago and they really found it informative. <A HREF="http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf">http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf</A>

This is a fantastic resource. I printed it out for Emily's school a couple years ago and they really found it informative. <A HREF="http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf">http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf</A>

This is a fantastic resource. I printed it out for Emily's school a couple years ago and they really found it informative. <br /><A HREF="http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf">http://www.cfri.org/pdf/2008CFintheClassroomEnglish.pdf</A>

We were given a very nice letter by our clinic when Emily had her first cf-related health plan.  It summarized the disease and it's need for the various types of tx our kids use at the beginning and then goes on to list the accommodations they suggest for a health plan, 504 or IEP. <br><br>They...

We were given a very nice letter by our clinic when Emily had her first cf-related health plan. It summarized the disease and it's need for the various types of tx our kids use at the beginning and then goes on to list the accommodations they suggest for a health plan, 504 or IEP. <br><br>They...