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I'm so sorry, Tom. It is INCREDIBLY difficult to cope with severe neurological, psychiatric and other similar illness/chronic conditions on their own, nevermind combined with a disease like cystic fibrosis. I could never claim to truly understand the road you are traveling right now but I can...

I'm so sorry, Tom. It is INCREDIBLY difficult to cope with severe neurological, psychiatric and other similar illness/chronic conditions on their own, nevermind combined with a disease like cystic fibrosis. I could never claim to truly understand the road you are traveling right now but I can...

I don't live in your area so don't know the specific drs under discussion here... but along the lines of what Leah above tells you- the lack of communication with the new dr would set off a red flag would me. We DO rely so much on our cf teams when it comes to the health of our child and being...

I don't live in your area so don't know the specific drs under discussion here... but along the lines of what Leah above tells you- the lack of communication with the new dr would set off a red flag would me. We DO rely so much on our cf teams when it comes to the health of our child and being...

I don't live in your area so don't know the specific drs under discussion here... but along the lines of what Leah above tells you- the lack of communication with the new dr would set off a red flag would me. We DO rely so much on our cf teams when it comes to the health of our child and being...

Along similar lines (site glitches) ...if it seems like something doesn't post due to an error message, before trying repeatedly to post again- copy your post just in case so you don't have to retype everything if it's not there, but refresh the thread just to check- every time I've gotten this...

Along similar lines (site glitches) ...if it seems like something doesn't post due to an error message, before trying repeatedly to post again- copy your post just in case so you don't have to retype everything if it's not there, but refresh the thread just to check- every time I've gotten this...

Along similar lines (site glitches) ...if it seems like something doesn't post due to an error message, before trying repeatedly to post again- copy your post just in case so you don't have to retype everything if it's not there, but refresh the thread just to check- every time I've gotten this...

Is it on threads where someone has an exceptionally large picture in their sig line? The photo will determine the 'width' of the page, and sometimes it exceeds what can be seen without scrolling. The scrollbar is far down on the page in these instances. I've seen this on a few threads of...

Is it on threads where someone has an exceptionally large picture in their sig line? The photo will determine the 'width' of the page, and sometimes it exceeds what can be seen without scrolling. The scrollbar is far down on the page in these instances. I've seen this on a few threads of...

Is it on threads where someone has an exceptionally large picture in their sig line? The photo will determine the 'width' of the page, and sometimes it exceeds what can be seen without scrolling. The scrollbar is far down on the page in these instances. I've seen this on a few threads of...

Without enzymes (she was dx'ed at 7): even the formed stools usually floated. Most, however, broke apart when they hit the water and looked like shreds and clouds of cotton candy (sorry for the icky comparison, but it's the most accurate one I can think of.) It was very shiny and greasy on the...

Without enzymes (she was dx'ed at 7): even the formed stools usually floated. Most, however, broke apart when they hit the water and looked like shreds and clouds of cotton candy (sorry for the icky comparison, but it's the most accurate one I can think of.) It was very shiny and greasy on the...

Without enzymes (she was dx'ed at 7): even the formed stools usually floated. Most, however, broke apart when they hit the water and looked like shreds and clouds of cotton candy (sorry for the icky comparison, but it's the most accurate one I can think of.) It was very shiny and greasy on the...

Given stool is soft and fluffy looking - it sounds like she does need enzymes. Also given how soft and fluffy it is- it sounds more like she needs the exlax because of dependency than anything else. Now that all that excess colon has been removed, she may still need to regain muscle control in...

Given stool is soft and fluffy looking - it sounds like she does need enzymes. Also given how soft and fluffy it is- it sounds more like she needs the exlax because of dependency than anything else. Now that all that excess colon has been removed, she may still need to regain muscle control in...

Given stool is soft and fluffy looking - it sounds like she does need enzymes. <br /> <br />Also given how soft and fluffy it is- it sounds more like she needs the exlax because of dependency than anything else. Now that all that excess colon has been removed, she may still need to regain muscle...

What is she on? When it comes to the stimulant laxatives, you can run into problems with dependance w/long term use and even damage to the intestine if too much is used over time. Various tool softeners (i.e. Miralax, etc) are often used long-term for our kids as they draw water to the colon to...

What is she on? When it comes to the stimulant laxatives, you can run into problems with dependance w/long term use and even damage to the intestine if too much is used over time. Various tool softeners (i.e. Miralax, etc) are often used long-term for our kids as they draw water to the colon to...

What is she on? When it comes to the stimulant laxatives, you can run into problems with dependance w/long term use and even damage to the intestine if too much is used over time. Various tool softeners (i.e. Miralax, etc) are often used long-term for our kids as they draw water to the colon to...