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  1. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  2. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  3. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  4. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  5. M

    update:my feeding tube sucks

    well this morning i was hard at work speaking with my cf doctor to straighten out this stupid tube. I will be going to a different hospital wed for my fitting of a button tube. The new hospital is very understanding and willing to change out the tube by thursday or friday. they were a little...
  6. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  7. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  8. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  9. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  10. M

    my feeeding tube sucks

    My new tube i had put in friday sucks. they replaced my owld peg with a long tube. i have to have it taped to keep from hanging down. it constantly gets caught in my shirt, it hurts, and i cant fish with it...so i got pissed this morning and called the doctor. i told him this thing is not...
  11. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  12. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  13. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  14. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  15. M

    fEEDING TUBE REPLACED

    YESTERDAY I HAD A ENDOSCOPY DONE TO REPLACE MY FEEDING TUBE. MY LAST ONE WAS IN FOR OVER 10 YEARS AND I HAD SEVERAL PROBLEMS BECAUSE OF THAT. SO THEY REPLACED IT WITH THIS HUGE LONG TUBE, MY LAST ONE WAS A BUTTON. I AM TOO ACTIVE TO HAVE THIS FOOT LONG ROPE IN MY STOMACH. I AM PISSED OFF BECAUSE...
  16. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
  17. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
  18. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
  19. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
  20. M

    LUCKY AGAIN

    SINCE I MOVED TO ORLANDO I HAVE LEARNED HOW LUCKY I AM TO STILL BE ALIVE. I HAVE HAD A FEW DOCTORS TELL ME THAT I AM LUCKY TO BE HERE SINCE PREVIOUS DOCTORS HAVE TAKEN A LESS ACTIVE APPROACH TO MY CARE. TODAY I WENT TO SEE I GI SPECIALIST BECAUSE I HAVE BEEN HAVING SEVERE PAIN WHERE MY FEEDING...
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