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Hi Becky, G-tubes hmmmm......My daughter iss 17months and is only the 10th percentile in weight and height. Her doc's have not mentioned a g-tube as yet, although i wouldn't want her to get one unless like you said its medically necessary. Her doc's have said to me that they are not concerned...

Happy birthday to you Happy birthday to you Happy birthday to Craig Happy birthday to you. I hope you all have a wonderful day and may he be blessed with lot's of love, good health and happiness. Best wishes <img src=""> Eli (not logged in) opps, i guess i was logged in. Anyway have a...

Hey guy's, I guess many of you don't seem too interested, but anyway i just found the CFW site in regards to Prof Williamson, stem cells and CF and thought you might want to check it out. Please take some time to have a look at it and tell me what you think. Thanks Eli Edited to add: email...

Hi anon, I have also been looking into oral GSH for my daughter, but haven't used it as yet because it too am concerned as to what unknown affect it mighthave. I have a friend who uses the oral GSH, on her daughter who is 20mnths old. She has been doing great on it. If want more info google...

Thankyou so much for sharing your special story. It was fantastic, and great to see your postive recovery. I hope you stay well for many years to come, with a great family like that i'm sure you will. Take care Eli

Sonia, that's a great idea. I am alway's running out of ideas when it comes to cooking. My dayghter is also a very fussy eater, so some new and diff recipes would be great. Eli<img src="i/expressions/face-icon-small-happy.gif" border="0">

Hi Craig, First of all your not alone. This has happened to me numerouse times and still keeps happening. Maybe you were both having a bad day, which will happen often. I also have probs with my wrists and struggle alot with dd's pysio. All i can suggest is try putting him i a diff position...

Hey Liz, glad to hear your feeling better. Also glad to hear they were only just mucus plugs and nothing nasty. Hang in there.

The drops are impossible to find. We don't get them here in Australia, so we use the Vitabdeck powder. Its exactly the same, you just mix it in with the apple puree and enzymes and "Bob's your uncle". Eli

Aria, another thing i foregot to mention is taht your baby was premmie. Premmie babies will be smaller in general and usually take up to 3yrs to catch up in in growth/weight. Those were the words of our peadiatricain. Eli

Amy, i understand what your saying, but what i was saying happened to me was that i only got sick the first two day's after recieveing the flu shot and was then well for the rest of time. The doc's said its normal and it deos happen to some people, not all. For example, my husband has never...

P:S I'll have the results for you at the end of the year. LOL

Its funny that you mentioned this, i alway's get sick from a flu shot but its only the initail first 2day's, than i'm over it. But, yesterday at clinic my dd"s CF doc said she get's the flu shot every year and she is constantly sick, so this year she is doing a trial on herself and is not going...

Hi Aria, don't feel pressured by the doc's.you are his mum and if you have no conerns than don't go ahead with the g.i tube. My daughter was 6wks premmi weighing 1.3 kilos, she too was 14pponds at 8 months and was only gaining 11/2 pounds a month, sometimes none. Doc's mentioned it,i said no...

Tobi "powder Hi Uli, i just went to a seminar at our clinic tonight and they only touched base on a study about inhaled powder such as Tobi. I'm her in Aust and we have a new doc here from the UK, who mentioned it and i think he might be involved in some sort of research/study. That's all i...

Charlotte - No they don't do them at our clinic, but i was fighting to have one done for months and finaly 4wks ago they did one and it came backclear. Although, she didn't realy cough he just swabbed her throat. Does that make a difference?

I think there all great, Allie. Although the one that caught my eye was the picture of the lungs. Good luck. Eli

OH, i'm jealous too. Have lot's and lot's of fun.

Hi Charlotte, Fluclox is an antibiotic (Flucloxacilan?Flopen)might sound familiar to you. Our clinic like's to put newly diagnosed infants o anti-b, just as a precaution for the first three years to try and avoid them getting Staph and Pseudo in the first place. But that's not a guarantee, it...

Sorry guy's i havn't read your threads, but just saw the topic and thought i would post some new info i got today on Hypertonic Saline. Well, its new info to me. Today i went to a seminar held at our clinic for families with cf, and they just went throughto explain what's happening around the...