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    getting together with parents that also have kids with cf question

    Driving in the car with the parents shouldn't be a problem. I meet with mothers (mothers group with chn w/cf) on a regular basis and we go over eachothers house, we just don't bring our kids. That has not been a problem or concern for us. We have been doing this for over a year and find it very...
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    RIP Cathy Martinet

    This is so sad, two deaths. I just cannot stop myself crying and being that time of month, its even worse. I'm so sorry to hear of Cathy's passing. My thoughts go out to you Amy and Cathy's family and friends. RIP<img src="i/expressions/rose.gif" border="0">
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    In Memory of Jamey

    Sorry to hear of Jamey's loss. My thoughts go out his family and friends. RIP Jamey<img src="i/expressions/rose.gif" border="0">
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    Physio

    We too don't have the vest here in Asutralia, so we do manual cpt. Our doc's have told us to only do it once a day, so that's what we have been doing. Unless of course she is sick they said to do it 2-3 times a day. There reason for this is because there hasn't been enough evidence/studies to...
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    'Preventative' Antibiotic

    My daughter is also on a preventative antbiotic called (Flucloxacilan). She too has been on it since 6wks, and her doc's intend to keep her on it ntil age 5. Their reason for doing this method was, that they found it kept CF kids healthier lung wise ie<img...
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    help...

    Hey Dave, i believe what your looking for is in the "off topic" section. Well i think that's where i last saw it, check it out.
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    Genetic counseling

    Hi Craig, We have spoken to our genetic councelor a number of times, and from what i can recall the only thing we disgused was how Olivia came about to have CF, the genetic side of things which you probably already know ie: what were her chances of hving/not having CF, having other children...
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    dumb question

    Yep, Liz got it. The only reason i know is because i asked the same ? a couple on months back and that's the answer i got. Liz, i admire you and your knowledge, you alway's know what your talking about and alway's seem to have an answer for everything.
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    YAY! Good Day!

    Good for you, glad your doing much better.
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    Just started Hypertonic Saline...Have Q's

    Hi Jen, Just a thought, if your finding that its irriating you too much try lowering your concentration level to 41/2%. We just had a talk at clinic and they sugested that people starting it for first time should try the lower concentration and then work your way up. See how you go, good luck.
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    Vacuming around your children w/cf !!!

    Thanks Melissa, i actually thought after i posted. Gee it must be messy cleaning the canister. But i guess if its healthier, then i just gotta do it. lol
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    ? for parents of CF babies

    Hi Martha, Sorry i can't answer your ?. My husband put it there for me as he is a computer wiz. I'm sure someone else will be able to help you. If not let me knoe, and i will ask him to explain it to you. When he has some spare time. P:S thanks for the compliment, she is my little angel...
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    ? for parents of CF babies

    HA HA, its funny you say that Claudette. The third one you let the dog lick it of. Let me tell you a little story, a hairdresser i used to go to did my hair at her home for half the price. Anyway she had a baby who was abot 7months old and just began crawling. Now, that baby slept in the...
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    ? for parents of CF babies

    Hi Julie, I have alway's known that you have to steralise your baby's bottles for at least a year. I remember my mum doinf it with my youngest brother, and its not just recomended for CF babies its all babies. As you say your child picks up germs by crawling, they don't actually crawl until...
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    Vacuming around your children w/cf !!!

    Thanks to all of you guy's who replied. I think the rainbow vac sounds like the best way to go, the water would definatley pick up/trap the dust particles. Although i don't know if they have it here in Australia, i hvan't heard of it myself. Even if they do, it will have to wait a while as we...
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    Website updated

    Wow Julie, your getting big. Enjoy it, it will be over bfeore you know it. Those 3D pictures look so cool, we tries having them done when i was pregnant with Olivia , but she was hiding her face with her hands. Cheeky little bugger. Well take care and thanks for sharing your special journey.
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    FEV 1 TEST FOR DAMIEN

    Hi Aria, I too don't know too much about it, maybe you can post the link you read. My daughter had one done at 10months, and when iasked the doc's what the results were they wouldn't tell me. Thay just said it was part of thier research and that the results wouldn't mean anything. I'm not sure...
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    Vacuming around your children w/cf !!!

    oops, i thought i was logged in. That was me who posted the ???. Thanks for your responce, guy's. I got a little worried, but then i thought what about adult cf'ers (mums) who do the house work and stuff. It kind of seemed a little weird to me. I mean going out in the city and breathing in...
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    ? for parents of CF babies

    Hi Martha, Craig is right, you do need to steralise for up to a year. Although i only did it for about 7-8months cause i had enough. It didn't affect my daughter in any way, so i guess its up to you. I know a mother who's daughter is 3months older than my daughter she would be close to two yrs...
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    New Car to Charity

    Damn, i can't vote. It won't accept my details. I guess its because its only for Americans. If someone can give me thier address i will vote under my name your address OR IS THIS WRONG TO DO! You can be the judge on that!!!
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