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I have another ? regarding tea tree oil, silly or not i'm going to ask it. I have bought tea tree oil for my oil burner and the scent is quiet strong, but i was wondering is it dangerouse in that way as it still is sort of being inhaled. I mean its like in the air and i'm breathing it in. I'm...

Hi Risa, Thanks for the advice, but i have already tried that. I think i have tried almost every avenue and can't get anywhere. The thing is she is 18 months old and almost has a mouth full of teeth and refuses to chew. The dietician at clinic has got the shits with me, because i still...

How have many of you found out, you have the hmmm, i have never heard of or have been told that bronchs are unreliable. Until i read this, well i guess its something i will have to ask the doc's at our next clinic visit. They have always said to me that bronchs are most reliable and its the...

Hi Craig, I too say, go for it! Last summer, we took Olivia to the local pools at least 3-4 times a week and never had a problem. I'm actually thinking of starting her up at swimming lessons. Swimmimg is the best form of exercise for their lungs. Go for it, and enjoy it. Don't let CF, stop...

I have many mixed emotions on this topic. Although, i would love to see a cure in my lifetime i don't think there will be one and if there was than that would be a great surprise and a dream come true. Not to sound too negative, i do think there will be a tretment like there is for diabetic...

How have many of you found out, you have the Hey Amy, I'm not sure about cf patients sahring rooms, whilst on iv's. My daughter hasb't been on iv's as yet, thank god. I hope it stay's that way for a long long time. I too, am sure i can talk some logic into them about separating her from other...

Aria, you do what your heart tells you. You know your son more than the doc's will ever know him. I'm very surprised that they are realy pushing for him to have one. My daughter is still so little and not chubby at all.She has only just made it on the 10% in heaight and weight and this GI thing...

Hi Salli, our clinic doesn't do thraot swabs or cultures either. I have been fighitng for ages about this topic. Anyway i finally demanded one only beacause she had a nasty cough and i wanted to make sure there was nothig there,well it enede up being negative. Ialso spoke the her peadiatricain...

I'm sorry to hear that, Chad. I hate this disease too, i hate the way it affects my baby girl and i hate the cruel decisions i have to make for her as mum. Iknow know how you feel, but hang in thereand you will pull through just fine. I'm with Kelly, i too think that they are worried about you...

How have many of you found out, you have the Thankyou so much, to everyone who replied to my question. I appreciate it. Yep, its a catch 22 and i 'm still very confused and don't know what i'm going to do. Loulou- I also think alot about the new Pseudo drug that should be on the market...

How have many of you found out, you have the "Pseudo bug Thanks for your input, guy's. Another thing i forgot to mention is, if this is such a good idea like they assure me it is, than why aren't clinics all over the globe putting it into practice. I mean shouldn't everyone be doing it to the...

How have many of you found out, you have the "Pseudo bug" or any other bugs/infection? The reason for my asking is that, the docs like to de yearly bronchs for the first five years at our clinic and i'm not too comfortable with it being done for no apparent reason. eg, if they had seriouse...

At my daughters clinic they do bronchs on a regular basis for young children. They do them once a year for thr first five years, and their reason for that is it has shown to be a positive outcome in young children because they can get whatever bugs are beggining to grow, early.

Hi Carrie, My daughter has moist coughs every now and agian. She actually has one now, but her doc's said its of no concern as her chest sounds clear. I too get very nervouse about the whole thing and wonder if its gooing to turn into some sort of infection. But in the end i have to have faith...

Hey all, It was mentioned to me a few months back, that when you do cpt on your baby/child they should cough (during/after) CPT. That is if they have mucus build up and they need to cough it up. I was wondering if any of your children do, as my daughter is now 18 months old and rarely coughs...

Hi Aria, just wanted to say "good luck" at your clinic appointment. P:S How's the oregano oil foot rub going?

Sorry, ican't answer your question as i'm in Australia.lol But just wanted to say how cute she is, and ohh.....those chubby cheeks i just want to squeeze them.

Hi Liz, yeah it mentioned eating about 3 apples day. Hope this helps. Let me know how your next lung function goes.lol ps: Liz, i saw your pm, but accidenlty logged out and now its gone. Soryy i can't read it now. Why did it dissapear? Shouldn't it saty on until dleated by me? Just wondering.

Hey everyone, Well today i read a very weird and interesting article. It said (APPLES FIGHT DISEASE) They are rich in flavonoids that fight off ffree radicals to prevent cell damage. It stated that consuming apples and their juice <b>will</b> protect against heart disease, diabetes, cancer...

I mentioned a talk on this a few weeks ago. It has to do with stem cell research, and a doc in Melbourne suggested that parents that have a child w/cf and are planning on coceiving another via PGD, are encouraged to keep the new born babies stem cells fot this paricular reeason. As it might be...