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  1. R

    Question on culturing?

    When we talk about the "bugs" our children are culturing, it typically is from a sputum sample that is specifically sent for culture for CF specific bacteria. For the younger kids; the doc or nurse will take a throat swab , like the one you test for strep throat, and gag them to produce a...
  2. R

    Question on culturing?

    When we talk about the "bugs" our children are culturing, it typically is from a sputum sample that is specifically sent for culture for CF specific bacteria. For the younger kids; the doc or nurse will take a throat swab , like the one you test for strep throat, and gag them to produce a...
  3. R

    Question on culturing?

    When we talk about the "bugs" our children are culturing, it typically is from a sputum sample that is specifically sent for culture for CF specific bacteria. For the younger kids; the doc or nurse will take a throat swab , like the one you test for strep throat, and gag them to produce a...
  4. R

    Input

    She has never had allergy testing. Just the IGe level drawn once a year which has been fine so far. I may ask about allergy testing at her next appointment. I do think she just has some mucus she is having trouble getting rid of. I have adjusted her airway clearance a bit; really working to...
  5. R

    Input

    She has never had allergy testing. Just the IGe level drawn once a year which has been fine so far. I may ask about allergy testing at her next appointment. I do think she just has some mucus she is having trouble getting rid of. I have adjusted her airway clearance a bit; really working to...
  6. R

    Input

    She has never had allergy testing. Just the IGe level drawn once a year which has been fine so far. I may ask about allergy testing at her next appointment. I do think she just has some mucus she is having trouble getting rid of. I have adjusted her airway clearance a bit; really working to...
  7. R

    Diet for Pancreatic Insufficiency?

    Hi there, My daughter is extremely pancreatic insufficient. She has always needed to be on high dose enzymes with anything she eats that has protein, fat, carbs, except simple sugars like jello fruit, vegetables. I consider Boost equivalent to a small meal. Maybe you should check with your...
  8. R

    Diet for Pancreatic Insufficiency?

    Hi there, My daughter is extremely pancreatic insufficient. She has always needed to be on high dose enzymes with anything she eats that has protein, fat, carbs, except simple sugars like jello fruit, vegetables. I consider Boost equivalent to a small meal. Maybe you should check with your...
  9. R

    Diet for Pancreatic Insufficiency?

    Hi there, <br /> <br />My daughter is extremely pancreatic insufficient. She has always needed to be on high dose enzymes with anything she eats that has protein, fat, carbs, except simple sugars like jello fruit, vegetables. <br /> <br />I consider Boost equivalent to a small meal. Maybe you...
  10. R

    Input

    Lauren, I think you are right. I feel like her airways are inflammed from the being sick. I do think it will take time but I'm afraid of her getting sick again before I can get her inflammation under control. I set up her air purifier up in her room again. I was thinking maybe her...
  11. R

    Input

    Lauren, I think you are right. I feel like her airways are inflammed from the being sick. I do think it will take time but I'm afraid of her getting sick again before I can get her inflammation under control. I set up her air purifier up in her room again. I was thinking maybe her...
  12. R

    Input

    Lauren, <br /> <br />I think you are right. I feel like her airways are inflammed from the being sick. I do think it will take time but I'm afraid of her getting sick again before I can get her inflammation under control. I set up her air purifier up in her room again. <br /> <br />I was...
  13. R

    Input

    The doc heard it when he listened last week. Plus Maggie hears/feels it. Even my son can hear it. It's better in the morning then gets worse through out the day. This morning she sounded clear. But after school she may start again...
  14. R

    Input

    The doc heard it when he listened last week. Plus Maggie hears/feels it. Even my son can hear it. It's better in the morning then gets worse through out the day. This morning she sounded clear. But after school she may start again...
  15. R

    Input

    The doc heard it when he listened last week. Plus Maggie hears/feels it. Even my son can hear it. It's better in the morning then gets worse through out the day. This morning she sounded clear. But after school she may start again...
  16. R

    Input

    Thanks for your reply. She is on Singulair, Pulmicort, albuterol. Not sure what else could be used. We are both very frustrated. I guess I'll give her til day 10 of anti's and then check in with the doc. I feel like I am missing something here. Last night my daughter woke up from a...
  17. R

    Input

    Thanks for your reply. She is on Singulair, Pulmicort, albuterol. Not sure what else could be used. We are both very frustrated. I guess I'll give her til day 10 of anti's and then check in with the doc. I feel like I am missing something here. Last night my daughter woke up from a...
  18. R

    Input

    Thanks for your reply. She is on Singulair, Pulmicort, albuterol. Not sure what else could be used. We are both very frustrated. I guess I'll give her til day 10 of anti's and then check in with the doc. I feel like I am missing something here. <br /> <br />Last night my daughter woke up...
  19. R

    Input

    This winter has been tough for my daughter. She cultured pseudomonas first time in January did TOBI and Cipro to treat it then on her last day of Cipro she go the flu; ended back up on Cipro plus the TOBI and Zyvox. Repeat culture showed no pseudo; only staph areus and moderate yeast(after all...
  20. R

    Input

    This winter has been tough for my daughter. She cultured pseudomonas first time in January did TOBI and Cipro to treat it then on her last day of Cipro she go the flu; ended back up on Cipro plus the TOBI and Zyvox. Repeat culture showed no pseudo; only staph areus and moderate yeast(after all...
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