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I get emails from Medscape one recently published was study done on COPD patient and singing improving their PFT's and decreasing fatigue. Not sure how to paste it at this site but the study had patients do breathing exersizes and sing for 5 minutes a day and noted a positive difference in...

Are you going to a CF center to see this pulmonologist? You can check by going to www.cff.org the Cystic Fibrosis Foundation's website to know if it is a CF clinic, that is accredidated. For someone to have CF you need to have two mutations for CF; one from the mother and one from the...

Are you going to a CF center to see this pulmonologist? You can check by going to www.cff.org the Cystic Fibrosis Foundation's website to know if it is a CF clinic, that is accredidated. For someone to have CF you need to have two mutations for CF; one from the mother and one from the...

Are you going to a CF center to see this pulmonologist? You can check by going to www.cff.org the Cystic Fibrosis Foundation's website to know if it is a CF clinic, that is accredidated. <br /> <br />For someone to have CF you need to have two mutations for CF; one from the mother and one...

One suggestion an older CF had given me along time ago was to alternate liquids with solids to gain weight. For example, high protein high fat nutrition drink, then healthy snack, then whole milk, then lunch...Not always filling up the tummy with liquids at lunch cause they won't be hungry for...

One suggestion an older CF had given me along time ago was to alternate liquids with solids to gain weight. For example, high protein high fat nutrition drink, then healthy snack, then whole milk, then lunch...Not always filling up the tummy with liquids at lunch cause they won't be hungry for...

One suggestion an older CF had given me along time ago was to alternate liquids with solids to gain weight. For example, high protein high fat nutrition drink, then healthy snack, then whole milk, then lunch...Not always filling up the tummy with liquids at lunch cause they won't be hungry for...

I have some ideas about working the lungs that may be fun for a 2 year old; blowing bubbles, pretending to blow out birthday candles, singing, jumping up and down on a mattress. swim lessons. These are some of the thing we did for our now almost 8 year old with CF. She now can do breathing...

I have some ideas about working the lungs that may be fun for a 2 year old; blowing bubbles, pretending to blow out birthday candles, singing, jumping up and down on a mattress. swim lessons. These are some of the thing we did for our now almost 8 year old with CF. She now can do breathing...

I have some ideas about working the lungs that may be fun for a 2 year old; blowing bubbles, pretending to blow out birthday candles, singing, jumping up and down on a mattress. swim lessons. <br /> <br /> These are some of the thing we did for our now almost 8 year old with CF. She now can do...

Maggie's Vit D level was slightly low this year...I started giving her fish oil with Vit D in addition to her CF vitamin...

Maggie's Vit D level was slightly low this year...I started giving her fish oil with Vit D in addition to her CF vitamin...

Maggie's Vit D level was slightly low this year...I started giving her fish oil with Vit D in addition to her CF vitamin...

So Maggie developed ear pain on Sunday, knew it was going to be an ear infection but we had to wait til yesterday to bring her in. She has an ear infection in her right ear and the PA thought she heard a few squeak in her lungs. So 10 days of Augmentin and double her Bactrim for 14 days. I...

So Maggie developed ear pain on Sunday, knew it was going to be an ear infection but we had to wait til yesterday to bring her in. She has an ear infection in her right ear and the PA thought she heard a few squeak in her lungs. So 10 days of Augmentin and double her Bactrim for 14 days. I...

So Maggie developed ear pain on Sunday, knew it was going to be an ear infection but we had to wait til yesterday to bring her in. She has an ear infection in her right ear and the PA thought she heard a few squeak in her lungs. So 10 days of Augmentin and double her Bactrim for 14 days. I...

Is his Picc line sutured in? When maggie was 2 1/2 she had a PICC and they put 2 small sutures on each side of the picc(not sure if I am remembering this correctly. Then it has a "stat lock" which keeps the line in place. Maggie was allowed to do her sing and movement class when she had her...

Is his Picc line sutured in? When maggie was 2 1/2 she had a PICC and they put 2 small sutures on each side of the picc(not sure if I am remembering this correctly. Then it has a "stat lock" which keeps the line in place. Maggie was allowed to do her sing and movement class when she had her...

Is his Picc line sutured in? When maggie was 2 1/2 she had a PICC and they put 2 small sutures on each side of the picc(not sure if I am remembering this correctly. Then it has a "stat lock" which keeps the line in place. Maggie was allowed to do her sing and movement class when she had her...

Honestly, my daughter's cough get worse when it's Friday afternoon the doctor is on vacation and my husband is out of town. I'm kind of joking but it always seems to be that way<img src="i/expressions/face-icon-small-smile.gif" border="0">