Search results

One more thing... It's probably not going to be as easy as finding a job and moving. Your prospective employer will have to file paperwork with the US government so you are able to work here. They also need to provide proof that the job couldn't be filled by an American citizen (i.e. what...

My husband and I rarely if ever discuss the emotional side of CF for us. When Sean was first diagnosed, all of our discussions were about the emotional stuff. Like you, we're very involved in the day to day and even talk about what the future may be like for Sean and what extra...

I'm glad this made it's way back to the top. I missed it the first time. A while back I posted a question inquiring about mutation class and where I could find out about them so I was glad to see this info, LouLou. Where did you dig it up at? As glad as I am to see it, I'm a little bummed...

Another thing to consider is the newness of the CF diagnosis. If I remember correctly it's only been diagnosed since the late 50's/early sixties. A lot of folks discover mysterious infant/toddler deaths in their families from various respiratory diseases that were undiagnosed CF. For instance...

I would definitely check the weather before you make such a BIG move. The humidity in Florida is very high most of the year and a lot of CFers note humidity as a problem for them. I know Sean really struggles during the humid months here in Michigan.

Sean was on Levaquin a few months ago. The only side effect we noticed was a severe sensitivity to the sun (more than the usual antibiotic induced sensitivity). He suffered serious burns (blistering) on his ears in just a few minutes. I'd call your Dr. about the rash. If it's small they must...

Ok, I think this is a new low. I can't believe that someone would do that. I understand the basic reason behind allowing anonymous posts but people are really abusing it lately.

Like I said, a devisive topic... I wonder how many of the parents that have posted here will feel differently when their children age, have more health issues. It seems a lot of the parents posting are still in the honeymoon phase of CF. Don't be fooled there are still plenty of CF parents...

This topic has been highly debated here. Everyone has their opinion. In the end, you have to do what you feel you can live with. Here are a couple of things you may want to think about... There's a 75% chance your next child will not have CF. Do you have the time to dedicate to another CFer...

Quote "What a Relief I agree with Allie. Although, it grated on you, your brother probably didn't mean anything by it. Not to mention, if you didn't have a child with CF, you probably wouldn't have thought twice about his comment. Like Sheli, it stings me a bit when people say things like...

Hi Cindy, Sean wasn't quite as bad but close. We once went to visit my grandmother in the hospital and as soon as we got to the floor and he saw all the nurses, he started screaming and wouldn't go a step further. He's better now with the exception of needles. The mere thought sends him into...

I love 'em! Sean wants to know if you'll have kid sizes?

Ok, I don't think the families section is necessarily a more friendly place than the adult section. I do think that if you're not familar with this forum it has the potential for being a bit intimidating. Lots of us have been here a while and know the drill but newbies could be in for a shock...

End of story... <div class="FTQUOTE"><begin quote>if you have nothing nice to say it's better to say nothing at all. </end quote></div> We should all think of that when we're posting. I think every little drama on this board could have been avoided if we'd taken that advice!

Paige, Keep being an advocate for you children! Insist on an Ambry gene test. Don't leave the Dr.'s office until you get it. Keep pushing the issue. Eventually they'll do whatever they have to, to get you out of their hair. Try calling your nearest accredited CF clinic and see if they can...

Seana, Good thoughts and lots of prayers coming your sister's way. Any idea how long she will have to wait? This must be agonizing for her. Let us know when she hears something. BTW... Good job sticking it to the anonymA$$ poster!

This is soooooooo great! You guys must be on cloud nine. A friend of mine has trips (2 girls and a boy). They're 13 now and her recommendation is to start lining up some help now and join a multiples support group. You are going to be two very busy parents! Keep us posted and BTW I love the...

We made the switch very gradually with both boys. We started with just an ounce of whole milk in with 7oz of formula. We did that for a few days then added a bit more whole milk and a little less formula. After about two weeks we'd completely made the switch.

We very much believe in teaching Sean to be responsible for his own care. We started with his enzymes. He's been self distributing since he could open the "child proof" bottle at around 5. As for his breathers, he's been putting his meds in his nebs for a couple of years now. He even washes...

Just to clarify, even if you didn't seemingly pay for the vest (ie. your insurance paid for it), you did indeed pay for the vest and quite frankly so does everyone else. So, if the vest company is indeed overcharging for the vest, we are all paying for it in some way. Now, that said, I don't...