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  1. J

    Thinking about death & Fear

    I used to be afraid. I lost my older brother to CF when we were kids. He was only 13. I was in fear of my 13th birthday but never spoke to anyone about it. Somehow I had convinced myself that it would all end in my teens. At some point in high school I changed my approach. I stopped...
  2. J

    Thinking about death & Fear

    I used to be afraid. I lost my older brother to CF when we were kids. He was only 13. I was in fear of my 13th birthday but never spoke to anyone about it. Somehow I had convinced myself that it would all end in my teens. At some point in high school I changed my approach. I stopped...
  3. J

    Should I get a wheelchair?

    Get it. Seattle is hilly and can also be cold and damp too. It would be very easy for you to get worn out. Have fun. its a great city.
  4. J

    Should I get a wheelchair?

    Get it. Seattle is hilly and can also be cold and damp too. It would be very easy for you to get worn out. Have fun. its a great city.
  5. J

    8 yr old son - what to tell him?

    I agree with the others, you need to wait until the test results are back. If it is positive be age appropriate with him. let the CF Center help you. They have people and resources to help the whole family. I'd stay away from the drama whenever possible. As he gets older there will be ups and...
  6. J

    8 yr old son - what to tell him?

    I agree with the others, you need to wait until the test results are back. If it is positive be age appropriate with him. let the CF Center help you. They have people and resources to help the whole family. I'd stay away from the drama whenever possible. As he gets older there will be ups and...
  7. J

    Husband is not sure he can handle the stresses of CF life...

    I'm sorry to hear about your struggles. I've been married for almost 25 years. We have two teenage daughters w/o CF as well. We've had our ups and downs too. Not all of them are CF related. Sometimes you get so caught up in the day to day stuff that you forget that other families have problems...
  8. J

    Husband is not sure he can handle the stresses of CF life...

    I'm sorry to hear about your struggles. I've been married for almost 25 years. We have two teenage daughters w/o CF as well. We've had our ups and downs too. Not all of them are CF related. Sometimes you get so caught up in the day to day stuff that you forget that other families have problems...
  9. J

    How long before eating should one take enzymes?

    As you found out from the comments. No one approach works all the time. The most important thing is to make sure he takes them and the older he gets to make it his responsibility. As he ages and meals become less regimented he'll have to learn to adapt. If he is eating on the fly or sitting...
  10. J

    How long before eating should one take enzymes?

    As you found out from the comments. No one approach works all the time. The most important thing is to make sure he takes them and the older he gets to make it his responsibility. As he ages and meals become less regimented he'll have to learn to adapt. If he is eating on the fly or sitting...
  11. J

    How long before eating should one take enzymes?

    As you found out from the comments. No one approach works all the time. The most important thing is to make sure he takes them and the older he gets to make it his responsibility. As he ages and meals become less regimented he'll have to learn to adapt. If he is eating on the fly or sitting...
  12. J

    If you could go back in time to the day you were diagnosed...

    I was diagnosed at age 2 in 1964. I'd tell myself that 2011 is going to happen. A wonderful spouse and 2 great kids are going to happen too. College and a whole bunch of normal stuff too.
  13. J

    If you could go back in time to the day you were diagnosed...

    I was diagnosed at age 2 in 1964. I'd tell myself that 2011 is going to happen. A wonderful spouse and 2 great kids are going to happen too. College and a whole bunch of normal stuff too.
  14. J

    If you could go back in time to the day you were diagnosed...

    I was diagnosed at age 2 in 1964. I'd tell myself that 2011 is going to happen. A wonderful spouse and 2 great kids are going to happen too. College and a whole bunch of normal stuff too.
  15. J

    Husband with CF, fertility options and costs?

    I am a 48 year old male with CF. I've been married for almost 25 years. Each one of us and our situations are unique. I have two middle school aged daughters who think I'm a pretty good, cough or no cough, Dad.
  16. J

    Husband with CF, fertility options and costs?

    I am a 48 year old male with CF. I've been married for almost 25 years. Each one of us and our situations are unique. I have two middle school aged daughters who think I'm a pretty good, cough or no cough, Dad.
  17. J

    Husband with CF, fertility options and costs?

    I am a 48 year old male with CF. I've been married for almost 25 years. Each one of us and our situations are unique. I have two middle school aged daughters who think I'm a pretty good, cough or no cough, Dad.
  18. J

    New User: My Fiance has CF She is 28. Any similar scenarios?

    I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been...
  19. J

    New User: My Fiance has CF She is 28. Any similar scenarios?

    I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been...
  20. J

    New User: My Fiance has CF She is 28. Any similar scenarios?

    I'm a 48 year old cf dad of two girls, 11 and 14. My health has always been pretty good. I'm able to work full time. From the beginning we've been very open with them about the disease. We've addressed all the issues with them that were appropriate for their age at the time. For me they've been...
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