Search results

  1. S

    Stenotrophomonas maltophilia

    I used to culture this in my teens and early twenties, it was difficult to treat because it was resistant to so many antibiotics, BUT it's not impossible. I haven't cultured it for several years now, so over time with the right meds it's possible to get it under control.
  2. S

    Stenotrophomonas maltophilia

    I used to culture this in my teens and early twenties, it was difficult to treat because it was resistant to so many antibiotics, BUT it's not impossible. I haven't cultured it for several years now, so over time with the right meds it's possible to get it under control.
  3. S

    Anyone who has dealt with depression?

    I know this is a late response, but better late than never right? <img src="i/expressions/face-icon-small-smile.gif" border="0"> One thing you can do when looking for a good therapist is ASK THEM what kind of treatment they provide. For example, someone who uses a psychoanalytic/psychodynamic...
  4. S

    Anyone who has dealt with depression?

    I know this is a late response, but better late than never right? <img src="i/expressions/face-icon-small-smile.gif" border="0"> One thing you can do when looking for a good therapist is ASK THEM what kind of treatment they provide. For example, someone who uses a psychoanalytic/psychodynamic...
  5. S

    Anyone who has dealt with depression?

    I know this is a late response, but better late than never right? <img src="i/expressions/face-icon-small-smile.gif" border="0"> One thing you can do when looking for a good therapist is ASK THEM what kind of treatment they provide. For example, someone who uses a psychoanalytic/psychodynamic...
  6. S

    Anyone who has dealt with depression?

    I know this is a late response, but better late than never right? <img src="i/expressions/face-icon-small-smile.gif" border="0"> One thing you can do when looking for a good therapist is ASK THEM what kind of treatment they provide. For example, someone who uses a psychoanalytic/psychodynamic...
  7. S

    Anyone who has dealt with depression?

    I know this is a late response, but better late than never right? <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />One thing you can do when looking for a good therapist is ASK THEM what kind of treatment they provide. For example, someone who uses a...
  8. S

    CF care in South Africa?

    A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...
  9. S

    CF care in South Africa?

    A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...
  10. S

    CF care in South Africa?

    A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...
  11. S

    CF care in South Africa?

    A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...
  12. S

    CF care in South Africa?

    A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...
  13. S

    Update on Greg's tx

    <blockquote>Quote<br><hr><i>Originally posted by: <b>SeanDavis</b></i><br>It would really freak me out knowing I have someone elses organ in my body, and start to wonder about the person and their life that it came from.<hr></blockquote> Heh, reminds me of a great joke I found when a friend of...
  14. S

    Update on Greg's tx

    <blockquote>Quote<br><hr><i>Originally posted by: <b>SeanDavis</b></i><br>It would really freak me out knowing I have someone elses organ in my body, and start to wonder about the person and their life that it came from.<hr></blockquote> Heh, reminds me of a great joke I found when a friend of...
  15. S

    wasting hypertonic saline

    I just use the whole thing, and have never had any problems (that I know of...). My 3% comes in these 15 mL vials and it's just too annoying to use 1/3 and chuck the rest. My dr doesn;t seem to have a problem with it either.
  16. S

    Feeding Tube

    I've always had appetite issues, so eating enough and maintaining my weight was always difficult. For several years I just kept losing and losing, finally when I went in for a tune up and was down to 93 lbs (I'm 5'3") I decided I'd had enough. It was the BEST decision ever! 4 years later I'm at...
  17. S

    What are the weird things you do/bad habits?

    OMG the fresh angel food cake is horrible and awesome at the same time!! HAHAHA!! Poor Ahava!
  18. S

    Hypertonic Saline

    I think you need a prescription, I get my 3% from the pharmacy. I get most of my stuff through CF Services Pharmacy but I was able to get it from my local pharmacy too.
  19. S

    DOES ANYONE WITH CF COUGH UP BLOOD?

    It is definitely scary, even when you know it's normal. I've been having small bleeds on a semi-regular basis for years now; when I have more infection going on it can be a couple times a week or more, the last few years I've been doing pretty well so it's usually more like once a month or once...
  20. S

    Sometimes... when you think it can't get worse..

    I'm so sorry!! Want me to beat the nasty people up for you? <img src="i/expressions/devil.gif" border="0"> I emphatically agree with what everyone else has said -- this is your life and you have the right to live it! My CF doc and I have our disagreements (and I love my doc, he's great), but...
Top