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  1. T

    Bloating

    I've been off gluten for 10 days now and I'm feeling very well! It's been really easy, actually. I eat corn and rice crackers, and have made a delicious gluten-free bread on the bread machine. For pasta, I've found corn and rice substitutes (the cheapest, at the Asian grocery store!). I eat rice...
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    Increasing eFlow efficiency with easyCare

    Hello! Some of you already know, for sure, but I didn't until a couple weeks ago and some other people don't know either. I remember reading a post,time ago, where somebody said after a while of using the eFlow (in particular with hypertonic saline), the nebulization time had increased so it...
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    Anybody try a dairy-free, gluten-free, sugar free diet?

    How important do you feel that it is to go sugar-free? I eat very little sugar (once or twice a day I have one small sweet item, no more than a tablespoon in size), and only 1-2 teaspoons of honey a day. Very rarely I have an actual dessert (maximum once a week, more likely every other week). Is...
  4. T

    Anybody try a dairy-free, gluten-free, sugar free diet?

    How important do you feel that it is to go sugar-free? I eat very little sugar (once or twice a day I have one small sweet item, no more than a tablespoon in size), and only 1-2 teaspoons of honey a day. Very rarely I have an actual dessert (maximum once a week, more likely every other week). Is...
  5. T

    I need a change ...

    Have you checked for gluten intolerance? It can grow progressively and unadvertently. I have myself dropped from 80% FEV1 in 2009 to 60% in 2011 to 48% in March 2012 and 38% in May 2012 and even the doctor doesn't know why. Started going gluten-free and in five days I had the chance to be tested...
  6. T

    I need a change ...

    Have you checked for gluten intolerance? It can grow progressively and unadvertently. I have myself dropped from 80% FEV1 in 2009 to 60% in 2011 to 48% in March 2012 and 38% in May 2012 and even the doctor doesn't know why. Started going gluten-free and in five days I had the chance to be tested...
  7. T

    Anybody try a dairy-free, gluten-free, sugar free diet?

    We should all create a web or blog of some sort entitled "dietary fixes for CF" or something like that, sharing our experiences openly! After 5 days gluten-free, my FEV1 increased 2 percentage points (I realize that's anecdotally small but at least encouraging). I'm excited about going on! I've...
  8. T

    Anybody try a dairy-free, gluten-free, sugar free diet?

    We should all create a web or blog of some sort entitled "dietary fixes for CF" or something like that, sharing our experiences openly! After 5 days gluten-free, my FEV1 increased 2 percentage points (I realize that's anecdotally small but at least encouraging). I'm excited about going on! I've...
  9. T

    Feeling very bloated...and irregular periods?

    Have you checked for gluten intolerance? I became aware of it just about a week ago and it's astonishing how many symptoms (including bloating and irregular periods) that come from it!! Besides, a diet free from gluten and diary products seems extremely good for CF and other diseases, so I'm...
  10. T

    Feeling very bloated...and irregular periods?

    Have you checked for gluten intolerance? I became aware of it just about a week ago and it's astonishing how many symptoms (including bloating and irregular periods) that come from it!! Besides, a diet free from gluten and diary products seems extremely good for CF and other diseases, so I'm...
  11. T

    O2 sats

    Sats do go up, so don't freak out!! I've had them low for years, then been up to 100% saturation (or 99% on other machines), down to 92 when sick, then back up to 97... And lung function does go back up too!
  12. T

    O2 sats

    Sats do go up, so don't freak out!! I've had them low for years, then been up to 100% saturation (or 99% on other machines), down to 92 when sick, then back up to 97... And lung function does go back up too!
  13. T

    Symptoms-concerned

    Sounds like you need an antibiotic cure... Those are all the typical symptoms! Keep up the good mood!!
  14. T

    Symptoms-concerned

    Sounds like you need an antibiotic cure... Those are all the typical symptoms! Keep up the good mood!!
  15. T

    Bloating

    Have you checked out the symptoms for gluten intolerance? I got into the subject this week, and now that I've been off gluten for two days the bloating has reduced considerably!
  16. T

    Bloating

    Have you checked out the symptoms for gluten intolerance? I got into the subject this week, and now that I've been off gluten for two days the bloating has reduced considerably!
  17. T

    Anybody try a dairy-free, gluten-free, sugar free diet?

    How funny you post this now! I started on it Wednesday this week and I'm feeling so much better! It started with my interaction with an Italian CF-er, 30 years old, who reported that while following it strictly for one year (and making it alcalinizing - also no coffee, no wine, and a triple shot...
  18. T

    Anybody try a dairy-free, gluten-free, sugar free diet?

    How funny you post this now! I started on it Wednesday this week and I'm feeling so much better! It started with my interaction with an Italian CF-er, 30 years old, who reported that while following it strictly for one year (and making it alcalinizing - also no coffee, no wine, and a triple shot...
  19. T

    Resistant Strains

    Try breathing in lavender 15 minutes before your antibiotics! (1 liter boiling water, 3 drops of pure lavender essential oil, towel over head and breathe for 5-7 minutes). Unless you have a tendency towards astma, I've read this is soothing the lungs and somehow preparing them to accept the...
  20. T

    Resistant Strains

    Try breathing in lavender 15 minutes before your antibiotics! (1 liter boiling water, 3 drops of pure lavender essential oil, towel over head and breathe for 5-7 minutes). Unless you have a tendency towards astma, I've read this is soothing the lungs and somehow preparing them to accept the...
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