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I also think Calimom's reply is excellent. Experts are the ones who know. By the way I meant to vote "thumbs up" on that entry but now it shows in red - maybe to give me the option of undoing it. I just hope it won't show up as I voted it down!

I've had a dog since I was 11 years of age. My lung capacity in the meantime has peaked to 80% FEV1 three times, and been as low as 36% a couple times. So having a dog did not influence me, I'm pretty sure about that. I really love dogs and if you do too, I think it can be indeed of a...

There's a theoretical value (based on age, race, weight and length) and there's an actual value. Over the years I've been treated in different hospitals in different countries and thus the theoretical value has been different. The only way for me to compare my values, as I put them all in an...

I've always been responsible for my own enzymes ever since I started taking them at age 5 or so. In Sweden I was taught (at age 8) to be responsible for all of my medication. The disease is MINE and parents, nurses, doctors are there only to help. Don't cut his independence, there's strength in...

Music has always been an important comfort in my life. Also doing things that I love, being out in nature, watching movies... Hang in there! And try to find a reason to live. That certainly helps.

We don't do PICC lines in Spain at all, they are considered risky for infections. We do peripherical while you can, but I'd say get a port as soon as possible! They are so convenient!

"Moon face" has often been a result of cortison, if we´re referring to the same thing...

Hi all! I find forums such as this one to be very helpful and supportive. There’s a really nice one in Sweden where they’ve played with the initials making CF into CitronFjärilen (the lemon butterfly), so I decided to do the same and create a closed facebook group in Spanish, so members can...

I've had bleeding episodes, one so severe (coughed up 500 ml of blood) that I got embolized, that was July 2010 and I've had a few episodes afterwards too. Ever since starting on blueberry pills (after reading that blueberries strengthen the capillary veins), I haven't had any bleeding episode...

PS. Yes I forgot to mention that: I checked the symptoms for gluten intolerance and I had a lot of them. I started on a gluten free diet on May 16, 2012. My digestive system feels great!! No more bloating, no more feeling ill after meals. And since the general inflammation reduced, I think that...

Hi! I've been there, June 2011-June 2012 I had 11 rounds of antibiotics, 5 of which IV. Multiresistant pseudomonas. But I've added a few things which have made a difference, and since ending the last treatment in early July I haven't had ANY antibiotics (except the regular inhaled ones). -...

Interesting article, thanks!

Hey Bill, awesome news! I'm 32, have been an independent businesswoman all my life (never employed so far), gone to study abroad (in Utah), and am happy with life!

Why would you like a body like that??? Most girls don't think it's pretty at all... Better be healthy and fit, and not trying to be a skinny model nor a hormone-boosted muscle mass!

I'm 32 and nowhere near needing a transplant, so don't freak out! Try to stay as healthy as you can, exercise, do your meds... Chances are that within a few years, we'll have medication to fix all mutations!

My FVC and FEV1 have gone up and down through the years. FEV1: extremely low in 1985 (14% of FVC!!) then up to 80% in 1997-1998 down to about 40% in 2002 (I went to a college where my peers smoked), up again to 80% in 2009, quick downhill until 36% this June, yesterday 55%. In my case it's been...

I love the eFlow, it's fast and fantastic! And extremely light, can be used on batteries or in the car as well. It's our main device in Mallorca (Spain) and also in Sweden.

Thanks for sharing! I went to study in the US and actually got scholarships too (although they required high grades). I'm 32 and going stronger! Below is a link to my story if you want to read it. Keep it up! (the automatic signature seems to have vanished with the new system!)- Here's the link...

I started GF over a month ago and most of my digestive issues have gone away. I've been suffering from stomach issues for the past 4 years ever since Pancrease was discontinued in Europe in favor of Creon, but reading in some post that bicarbonate helps with digestion, I've added it and it...

We recently had a lecture about hygiene practices in our local CF association. The number one recommended system was a baby bottle steam sterilizer.