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    Is it normal to cough up mucous while casually working out and doing treatments?

    Enzo. Because you are healthier than they are. Simple as that. Take the gift of good health and run with it.
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    Cystic Fibrosis and Florida? Live in Florida? Please Reply!

    OK, I cant really speak to FL, but we go to Puerto Rico every year for 2 weeks at X-mas and I always feel much better there. This past winter, I particularly noticed that my sats went from steady 90-92 up to 94-96 within 24 hours of arriving there. Something made a BIG difference, even though...
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    Do those with CF have difficulty digesting protein?

    I never had problems with straight protein, but if its fatty, gives me severe pain. Now as an adult, I puke it up within the hour if there's too much fat. And Enzo, there is no "one" type of CF. Everyone has a slightly different presentation and quirks. Need to figure what works for YOU and...
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    looking toward the future

    Slugo, staying active works, and works well, but I dont think it works forever. My body is simply wearing out now that I am in my 40's. Its not lung infections that are getting me, its severe asthma and diabetes.
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    looking toward the future

    slugo, I'm 43 now. (FART2) It was a good athletic run while it lasted. Now I'm turning more toward the arts and getting back to academic science. Less exertion! (I used to do marine bio, animal behavior and ecology stuff in the field) The one constant in life is change. Right now I have...
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    looking toward the future

    Yes. I had to leave my doctoral program because of health issues. Then I had to stop riding and competing horses and sell my lovely stallion since I could no longer breathe well enough to work with him (we did make it to Nationals before I had to quit though). Then I had to stop running...
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    Alcohol and cf?

    yeah, gout is no laughing matter. I've trained and competed horses with 5 broken ribs....gout is WORSE. Interestingly, I developed gout shortly after I stopped taking enzymes. (I am PI). I often wondered if there was any connection. I used to have to take TONS of enzymes.
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    Antibiotics Delaying Menstrual Cycle

    I've had different antibiotics delay or start my period early. Cant speak to how it effects birthcontrol. My doc was adamant that I never take additional female hormones, she said they'd make my lungs worse.
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    Alcohol and cf?

    I used to drink ocasionally in college, but my health was excellent then, including liver function. I developed gout soon after college and one of the major triggers was........you guessed, alcohol! Havent had a drink since. I know I was warned by my doc to be very careful with alcohol...
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    CFRD BS control

    Oh I wish I could eat a lot of fruit!!!! It sends my BS nutso :( I have to be super careful to have any fruit with insulin and protein, and keep the portions small. IN the good old days I would chomp about 5 servings of fruit a day. Not any more. Now its 2-3, and carefully chosen with...
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    CFRD BS control

    Thanks meech. I actually dont really eat fat, I have trouble keeping weight OFF, even with diet and exercise. I think I simply need to reduce my carb intake to about 100-125 a day. Which will be hard since I tend to eat tons of fruits and veggies- it all adds up quickly. Good luck to you too!
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    How much of your depression/anxiety is caused by CF?

    Renee, I noticed as well that I got depressed about the CF MUCH less often once I had kids. However *chuckle* I doubt it was the pregnancy hormones since my two girls were adopted. Then again, I did gain about 15 lbs before each "birth" (child coming home to us) even the one that we did not...
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    CFRD BS control

    Hey folks, I was diagnosed with CFRD about a month ago, been on Novolog 3-4 times a day. I was wondering a) How much insulin do other CFRDers take? 2) What is your target daily carb intake, and 3) How tight is your control? My wake-up BS's are usually between 110-130, 1 hour post meal...
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    Do CFers write their Bucket Lists?

    Tim, totally understand your post, thats how I try and live my life. When I read the title of the post "bucket list", my first thought was "naw, I dont write it, I just simply try and live it". Carpe diem. Moments and opportunities are all around you every day.
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    How much of your depression/anxiety is caused by CF?

    I'm not sad or depressed often, but when I am, probably about 50% of the time its due to CF/complications. The other 50% is family stuff or choices I regret.
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    Need quick advice from adults with cf

    Sometimes a digestive upset can last for a couple of days and can give me a low grade fever, so I wouldnt completely rule that out. I do know that if I eat something that has some fat in it (I usually avoid fat like the plague and dont take enzymes) that drinking green or black tea can really...
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    Hyper Saline 7%. Anyone had this side effect??

    I think anytime blood starts unexpectedly coming out of an orifice (except possibly your nose) you should probably inform your doc immediately. With regard to the hypertonic, I think this is what the docs refer to as "not well-tolerated". Have you tried 3% or 5%? Coughing up blood is often...
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    anxious about not feeling good despite good numbers?

    Listen to your body and try to figure out what's going on. In a fairly short period of time my exercise tolerance went from running a 10K to getting short of breath walking up a flight of stairs. Yet my PFT's hadnt changed one bit!!!!!!!!! Nor did I culture anything. Go frigging figure...
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    Females only

    Sorry to hear about this Rebjane. I had horrible "female issues". Whenever I menstruated I would bloat horrible, sometimes get consitpated, headaches, cramping, etc. I didnt have much luck with gasX, but whatever is in pamrin (or was it midol?, cant remember) worked well. Good thing she...
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    Advice about diagnosis please

    The Cystic Fibrosis CFTR Gene Deletion or Duplication assay detects deletions and duplications within the promoter region and all 27 exons of the CFTR gene. Recent studies suggest that such rearrangements may account for 16% to 24% of mutant CFTR alleles not identified after...
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