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    Stomach distension

    When I was younger, wheat, fat, and dairy always did that to me. It was quite embarrassing, especially as a teen. Now only wheat bloats me up a bit and I dont eat fat at all. Eating small amounts at a time seems to help, as does staying fit. And your not alone, bloated belly is definitely...
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    CF Clinic + Holistic medicine, does it exist? America or Europe?

    I have combined holistic medicine with western medicine for the last decade+. What I have found is that you have to be very analytic and critical, just as you would be of any medicine. Mostly, the herbal combinations were useless, but not overtly harmful. THere was ONE concoction that was...
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    SOLID Diarrhea

    wow.....modified belt sander..........that image, well, it will haunt my dreams..............
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    ANTIBIOTICS: How much is too much?

    Keep in mind antibiotics also kill good stuff, like helpful gut bacteria. For myself, I would consider it "too much" when the antibiotics began to negatively affect other systems, like the GI tract. There is also the major problem of the bacteria developing resistance. Rotating antibiotics...
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    SOLID Diarrhea

    All good advice above. ONly want to add that eating a lot of rice and bananas can really help dry you up when you have the runs. You definitely need to figure out the cause though!!!!!!!!!!!!!!! I wouldnt wait. Not only are you loosing weight, but valuable electrolytes, vitamin, minerals...
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    not doin well and doctors dont know y

    Hmm, About 18 months ago I started something similar. Tons of inflammation in my lungs, SOB, tightness, fatigue. IV antibiotics did NOT help at all. Turned out I was diabetic. You can have a relatively normal A1C and have enough blood sugar issues to cause lung problems. I know I did, and...
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    What does your CF Clinic say re Exercise

    heheheheh............so true!!!!!!!!!! I add a fan as well!!!! Except gatorade has waaaaaay to much sugar for me!
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    help GAINING WEIGHT

    I dont have problems with putting on weight, but I have expeience with it RE my eldest daughter who was adopted at 1 year old and was severe failure to thrive. We added small amounts (not detectable) of olive oil, butter, powdered suppliment to all her foods. We were able to easily increase...
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    What does your CF Clinic say re Exercise

    My clinic says DO IT. The more, the merrier, as much as can be tolerated. It has so many wide-reaching benefits, lung clearance and health is just one of them. When I was failure to thrive as a child, my doc at that time greatly supported my running and other sports. She was firmly convinced...
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    Sinus Surgery in 4 Year Old- Looking for Information

    I had tons of sinus surgeries when I was a kid, probably one every 2 years until I was in my late teens. The recovery wasnt too bad. I would usually get sick to my stomach from the blood I swallowed during surgery and throw up a few times. My nose stayed packed for a couple of days, which...
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    Can cleaning products make you cough up blood?

    I have never coughed up blood, but until we switched to all-green cleaning products, my asthma and coughing greatly increased on house cleaning days. It clearly had a very negative impact on my lungs.
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    Was it hard leaving home?

    It was great when I went off to college. Didnt find it difficult at all, although I've always done well with organizing time and taking meds. It was a little bit more challenging going to grad school, because then I had to also take care of an apartment, do all food-related stuff, take a full...
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    Need friends as I struggle thru this thing called life

    Hey Hannah, you're not alone, we all have tough times, especially in the teen years. I'm ddf508, 43, 2 kids. Would love to chat or answer questions. And CF is not a hopeless battle. You win every day with how you conduct your life against the odds. :D Thats my thinking now, but as a teen, I...
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    Anyone else have reactive hypoglycemia?

    Yup, had this problem for years. Eat a breakfast with little to no carohydrates (and NO sugar) and I'll bet it gets a lot better. Before I figured this out my blood sugar use to skyrocket then crash into the 30-40 range. If ANY little trauma happen then (smushing a finger in a drawer, seeing...
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    mortality stats for CF genotypes?

    Melissa, actually, I think I have some answers now. Looks like I have untreated CFRD. HOping to get it under control and reduce the inflammation!!! THanks so much for the links, I'll go check them out PDQ. Oh, my heart is generally OK, but I do have an ASD (small hole in it). Its never...
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    mortality stats for CF genotypes?

    Anyone know where to get this info? Especially for DDf508?
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    severe asthma

    Update- The methyltrexate seems to be helping. I think we've pinpointed the inflammation cause....looks like I've developed CFRD. Once we get it under control, hopefully the asthma will improve.
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    What's it like to die with CF?

    unpleasant. So fight like hell to stay healthy.
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    Exercise as a treatment

    Salty, I have used exercise for decades as a treatment, and it has worked very very well. When I do get sick, I also have by hubby whack on me the old fashioned way (I also cannot tolerate a vest, it breaks my ribs and makes me itch like hell!) I have a tremendously powerful cough, so that...
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    Coughing fit causes a tightening sensation in arm artery

    Yes, I ve had this. ALways thought it was due due a large increase in BP from coughing. Have gotten it in legs too. It can be painful. Anyone know what this actually is?
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