Search results

It's ok that you asked...in fact we just got his autopsy results back...Xander died from mucous plugging that caused lung failure...he has atypical or so they told us ..but in the end was determined to be a severe form of CF. I never believed even after finding out they were going to put him on...

It's ok that you asked...in fact we just got his autopsy results back...Xander died from mucous plugging that caused lung failure...he has atypical or so they told us ..but in the end was determined to be a severe form of CF. I never believed even after finding out they were going to put him on...

Thanks everyone...because we want all CFer's to know...Xander was an organ donater...with harvesting of his cochleas and corneas...this is important to remember that even with CF you too can be a donor! Thus far he has helped 2 other children through his passing...please consider this when...

Thanks everyone...because we want all CFer's to know...Xander was an organ donater...with harvesting of his cochleas and corneas...this is important to remember that even with CF you too can be a donor! Thus far he has helped 2 other children through his passing...please consider this when...

Thanks everyone...because we want all CFer's to know...Xander was an organ donater...with harvesting of his cochleas and corneas...this is important to remember that even with CF you too can be a donor! Thus far he has helped 2 other children through his passing...please consider this when...

Thanks everyone...because we want all CFer's to know...Xander was an organ donater...with harvesting of his cochleas and corneas...this is important to remember that even with CF you too can be a donor! Thus far he has helped 2 other children through his passing...please consider this when...

Thanks everyone...because we want all CFer's to know...Xander was an organ donater...with harvesting of his cochleas and corneas...this is important to remember that even with CF you too can be a donor! Thus far he has helped 2 other children through his passing...please consider this when...

Hello CF family, I know I have been gone for awhile now (trying to deal with losing baby Xander) but I wanted a chance to share his memorial website with his (and mine) CF online family...<a target=_blank class=ftalternatingbarlinklarge...

Hello CF family, I know I have been gone for awhile now (trying to deal with losing baby Xander) but I wanted a chance to share his memorial website with his (and mine) CF online family...<a target=_blank class=ftalternatingbarlinklarge...

Hello CF family, I know I have been gone for awhile now (trying to deal with losing baby Xander) but I wanted a chance to share his memorial website with his (and mine) CF online family...<a target=_blank class=ftalternatingbarlinklarge...

Hello CF family, I know I have been gone for awhile now (trying to deal with losing baby Xander) but I wanted a chance to share his memorial website with his (and mine) CF online family...<a target=_blank class=ftalternatingbarlinklarge...

Hello CF family, <br /> <br />I know I have been gone for awhile now (trying to deal with losing baby Xander) but I wanted a chance to share his memorial website with his (and mine) CF online family...<a target=_blank class=ftalternatingbarlinklarge...

Oh my...I have been away mourning the passing of my precious Xander...when did Mel pass? I am so saddened to hear this...at least I know she will be taking care of my lil guy...God Bless her!

Oh my...I have been away mourning the passing of my precious Xander...when did Mel pass? I am so saddened to hear this...at least I know she will be taking care of my lil guy...God Bless her!

Oh my...I have been away mourning the passing of my precious Xander...when did Mel pass? I am so saddened to hear this...at least I know she will be taking care of my lil guy...God Bless her!

Oh my...I have been away mourning the passing of my precious Xander...when did Mel pass? I am so saddened to hear this...at least I know she will be taking care of my lil guy...God Bless her!

Oh my...I have been away mourning the passing of my precious Xander...when did Mel pass? I am so saddened to hear this...at least I know she will be taking care of my lil guy...God Bless her!

Families, We are recently diagnosed and I am already fed up with what my poor lil guy has to go through...the breathing treatments, enzymes and doc visits (2 hrs from home) and now they (his CF doc) wants to do a lung CT....he is only 5 months...sheesh..poor lil guy....just a frustrated momma...

Families, We are recently diagnosed and I am already fed up with what my poor lil guy has to go through...the breathing treatments, enzymes and doc visits (2 hrs from home) and now they (his CF doc) wants to do a lung CT....he is only 5 months...sheesh..poor lil guy....just a frustrated momma...

Families, We are recently diagnosed and I am already fed up with what my poor lil guy has to go through...the breathing treatments, enzymes and doc visits (2 hrs from home) and now they (his CF doc) wants to do a lung CT....he is only 5 months...sheesh..poor lil guy....just a frustrated momma...