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Families, We are recently diagnosed and I am already fed up with what my poor lil guy has to go through...the breathing treatments, enzymes and doc visits (2 hrs from home) and now they (his CF doc) wants to do a lung CT....he is only 5 months...sheesh..poor lil guy....just a frustrated momma...

Families, <br /> <br />We are recently diagnosed and I am already fed up with what my poor lil guy has to go through...the breathing treatments, enzymes and doc visits (2 hrs from home) and now they (his CF doc) wants to do a lung CT....he is only 5 months...sheesh..poor lil guy....just a...

Steven (Ambry) Steven, My son's full panel detected the following: They say the following: Two alterations, both predicted to be deleterious: 1)A heterozygous deletion of CTT at nucleotide 1653-1655 resulting in an in-frame deletion at codon 508 in exon 10 of the CFTR gene (1653-1655 del...

Everyone, Here is an update: I did contact RMH for help and have a reservation in but it is first come first serve basis (I have to re-check on Tuesday) He is being admitted Wednesday evening at Dayton Children's Medical Center (Ohio here) We have a 3yo and 2 yo with no one to stay with since...

Everyone, Here is an update: I did contact RMH for help and have a reservation in but it is first come first serve basis (I have to re-check on Tuesday) He is being admitted Wednesday evening at Dayton Children's Medical Center (Ohio here) We have a 3yo and 2 yo with no one to stay with since...

Everyone, Here is an update: I did contact RMH for help and have a reservation in but it is first come first serve basis (I have to re-check on Tuesday) He is being admitted Wednesday evening at Dayton Children's Medical Center (Ohio here) We have a 3yo and 2 yo with no one to stay with since...

Everyone, Here is an update: I did contact RMH for help and have a reservation in but it is first come first serve basis (I have to re-check on Tuesday) He is being admitted Wednesday evening at Dayton Children's Medical Center (Ohio here) We have a 3yo and 2 yo with no one to stay with since...

Everyone, <br /> <br />Here is an update: I did contact RMH for help and have a reservation in but it is first come first serve basis (I have to re-check on Tuesday) He is being admitted Wednesday evening at Dayton Children's Medical Center (Ohio here) <br /> <br />We have a 3yo and 2 yo with no...

Hey gang, My 4 mo old son is now entering the hospital after being diagnosed 2 months ago. We are unsure of what to expect but we need prayers if not for anything but our sanity. Unfortunately the CF center he goes to (the closest) is 2 hours away from us...means major hospital stay...hotel...

Hey gang, My 4 mo old son is now entering the hospital after being diagnosed 2 months ago. We are unsure of what to expect but we need prayers if not for anything but our sanity. Unfortunately the CF center he goes to (the closest) is 2 hours away from us...means major hospital stay...hotel...

Hey gang, My 4 mo old son is now entering the hospital after being diagnosed 2 months ago. We are unsure of what to expect but we need prayers if not for anything but our sanity. Unfortunately the CF center he goes to (the closest) is 2 hours away from us...means major hospital stay...hotel...

Hey gang, My 4 mo old son is now entering the hospital after being diagnosed 2 months ago. We are unsure of what to expect but we need prayers if not for anything but our sanity. Unfortunately the CF center he goes to (the closest) is 2 hours away from us...means major hospital stay...hotel...

Hey gang, <br /> <br />My 4 mo old son is now entering the hospital after being diagnosed 2 months ago. We are unsure of what to expect but we need prayers if not for anything but our sanity. Unfortunately the CF center he goes to (the closest) is 2 hours away from us...means major hospital...

Steven (Ambry) Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...

Well we received the official test results for my son Xander who is 9 weeks old. They told me over the phone that he does have CF and set our first clinic date for Dec. 1st. They did try and explain the results but I guess it would easier in person. They would send them to me for my records...