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That is an awesome video. So well done and very inspiring. I absolutely love the sports I do and credit them for improving my health. I can identify with the upward/virtuous cycle that the mountain biker/snowboarder talked about. Positive feelings of accomplishment and physiological...

I sent you a pm (two back-to-back actually :) Let me know if you don't get them.

My family backed out of purchasing a beach house (post-Irene, pre-Sandy) because during the routine home inspection, the inspector found a small amount of black mold--what he believed to be toxic black mold--in a small piece of drywall that the owners had failed to remove when unfinishing the...

1) I guess I'd put myself in a light gray zone. I don't have pancreatic insufficiency and my bronchiectasis exacerbations are mostly treated with oral antibiotics. With very low sweats, no mutation in the 95 panel, high FEV1, documented allergies, and reflux that has been called severe and...

PDC, I'm sorry you lost your mom to cancer. Thank goodness you were able to get some in-house physio during such a difficult period. Running, I can see how diabetes could be more of an issue for pregnancy if a person's lungs are fairly stable. It sounds like you are a good candidate for...

LL, Yeah, understanding and learning are definitely coping mechanisms for me, though acceptance has been sweet too. That came only after exhausting what I felt were all the possibilities for discovering "Oh, X is what's going. Just take Y and this won't happen again." I reread my last post...

LL, Thanks for responding. 2x. :) The pain went away pretty quickly. Yay. It IS a "strange pain" --hollow and crazybad, not a full feeling pain like bursitis which is basically the same spot and I've had on the left side. The crazybad comes from wanting to hold my breath to keep it bearable...

LL, Hi. It seems like you have a huge understanding of pain along other things. So I want to ask you about my pain d'jour, have had it many other jours in the past too. My lungs have been acting up and last night I started having a referred sharp pain in my right shoulder. Not the blade or...

Did the Dr check your blood pressure while doing the head hanging off the bed and then sitting up thing?

Here is an old thread with CF moms talking about having kids. More than a few with multiple children. I don't have CF. I was tested for it as a baby and adult--very low sweat test numbers. http://forum.cysticfibrosis.com/threads/26551-Know-of-anyone-with-more-than-2-kids I am lucky that my...

PDC, I think it's awesome that you exercise so much with an FEV1 of 30. Are you in the U.S.? My impression is that other countries don't offer the Vest as readily as they do in the U.S.

I was so happy when a climbing gym opened up in my area. I'd been a gymnast as a kid and climbing really satisfies a part of me I'd ignored for years. I have the luxury of knowing kinda what I should weigh if I didn't have lung problems because I was pretty healthy until my late twenties, and...

Have you had bloodwork? To look for anemia/bleeding. I'd also ask for an EKG/cardiac workup.

One question you should ask yourself is whether it feels like the room is spinning or you are spinning. Vertigo is when you move your head and it feels like the room spins. I had that for two weeks presumably from viral sources. It was hard to drive and peeing in the middle of the night was...

Running4Life, We're almost twins in eating/exercising philosophy. Well, I'm not putting in as many hours, but I am consistent with what I do and I've maintained an FEV1 at only about -5 to -10% of my previous baseline since culturing PA and steno. I do 2-3 hours of cardio (zumba) a week...

Frying white fish (tilapia, flounder, etc) in coconut oil is really delicious. I just add cracked pepper (salt is basically covered by the coconut oil), but you can experiment with additional flavors...lemon, basil.

Have you looked into that nissen funduplication surgery? I have been disobeying the recommendation of Nat'l Jewish for several years, but my reflux is likely not as bad as yours. They told me to buy an adjustable bed because of "spontaneous high grade reflux" and some "second wave"...

National Jewish is a respiratory disease hospital. They have a CF center, but I was there in the non-tuberculosis mycobacteria wing years ago to try to figure out why I had bronchiectasis. (My sweat test result is 9 or 11, can't remember, and I have no cf mutation acc to the 95 mutation test.)...

I think I misunderstood your question. You're out of albuterol, not the clinic told you to skip it for testing, right? (I was once told to get off all asthma and allergy meds before a week before testing at National Jewish in Denver.) Albuterol is one of the least expensive meds. What's going...

What about those microwave bags? If you'll have access to microwaves in a hotel room... My Avent 4-in-1 sterilizer has two choices of containers that fit on the heating element. One is fairly small. Is this what you have?