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  1. M

    I got those Recovering-from-a-pulmonary-exacerbation Blues.

    I'm not yet back to baseline from a flu/bacterial exacerbation combo I got this past Christmas, so that is three months for ya. My PFTs and weight are back up. They have been since maybe 2-3 weeks after finishing antibiotics, but my chest is still more junky and aches when I wake up. And my...
  2. M

    malabsorption and belly fat

    Steve, I have to coach x-ray and ct techs about my lung length, too. Many a re-do because of it. Kayla, Another thing to consider is bloating. Put a little bit of fat/extra skin over a gas-distended belly (or an enlarged spleen) and you have the look and feel of belly fat.
  3. M

    Celebrating 7 year Transplant anniversary!

    Congratulations on your anniversary and your engagement!
  4. M

    When the caregiver is sick?

    My take on the virus vs. secondary bacterial situation for non-CFers is this: If your mucus (nasal or coughed up) is green all day--not just in the morning--and your body aches with a low-grade fever (the initial viral higher fever is gone), you could benefit from antibiotics. But if your...
  5. M

    Go to meals

    http://m.ibtimes.com/bpa-free-plastics-might-not-be-safe-you-think-they-are-1559434 I don't actually know what liners and oven bags are made of, and I believe a person has to pick their battles/conveniences, and I'm pretty sure a home-cooked meal trumps all in terms of health. But I wanted to...
  6. M

    online dating and CF disclosure

    Found this info in an asthma/allergy magazine while sitting in drs office. "Alternatives to mainstream online dating sites include: Prescription4Love.com (and SinglesWithFoodAllergies.com less relevant)" the first site asks users to list medical conditions in their profile so as to avoid stress...
  7. M

    Zero Energy/Reliant of Caffeine

    2-3 cups of coffee a day is fine. Healthy even--open airways, lower risk of depression. Just drink water, too, to stay hydrated. Now, if you were sugar coating it in your post, and are using additional caffeine, like in 5-hour Energy drinks, that is another story. My son's cardiologist told...
  8. M

    My blog and a question for everyone

    Sorry you're dealing with APBA too. Good luck at your appointment. Let us know how it goes. I hear you about life/work/relationships. If you haven't already done so, I suggest making sure you and your girlfriend are on the same page about not acquiring any additional animals. Also, if at all...
  9. M

    My blog and a question for everyone

    I highly recommend allergy shots--with the review/approval of your CF doc, of course. I have non-CF bronchiectasis, cause unknown, and I'm allergic to cats, dogs, dust and mold. I took over the counter meds and got allergy shots as a kid, and I was able to live with cats then. I was allergic...
  10. M

    Lingula pain

    I can relate. Big time. I get pain anywhere where I brew an infection. But the lingula is more chronic. The acapella can help in my case--back pressure opening airways. Also antiinflammatories and hot-water bottle.
  11. M

    Why is it relatively easier for me to gain weight vs other CFers?

    Enzo, I think you've mentioned before that your lung function is high and lung disease relatively mild. That is likely a big factor. Severe infections and heavy doses of antibiotics can wreak havoc on a person's weight even when they have no digestive disease.
  12. M

    I want kids and I'm 18

    http://www.howcast.com/videos/3043-How-to-Do-Better-Google-Searches malformed vas deferens, which is the tube that carries sperm from the testis to the ***** 50% if wife is carrier 0% if wife is NOT a carrier edited to add: I don't intend for that link to come across as snarky. I really think...
  13. M

    Trying to gain weight -- am I doing everything?

    Full-fat PLAIN yogurt gives you tons of fat and protein without the sugar of ice cream, and with lots of probiotics. Greek yogurt is very fashionable, so I buy the organic Non-Greek for half the price. Put slices of banana in it and nutty/seedy granola too. Not an amazing suggestion, I know, but...
  14. M

    Hyperinflated lungs?

    Justinsmama, I hope you've received some answers info from your doctor. Here is an interesting powerpoint on PFTs that discusses hyperinflation and air trapping, among other things. I've had both come up on PFT reports. Ugh, I can't get a good link, but I searched this: rv tlc ratio And part...
  15. M

    PFT Drop Question

    When I have pain from pneumonia, my ability to inhale fully and exhale forcefully is pretty compromised. How bad is his pain? Also, PFTs are supposed to be repeated three times "reproducibility" so that the doctor can be more sure the readings weren't a fluke (hiccup, cough, confusion...
  16. M

    Bacterial food web may be key to cystic fibrosis

    Interesting! Here is an excerpt from an article from 2007 - what was known or suspected then about other bacteria/viruses influencing pseudomonas virulence. http://mic.sgmjournals.org/content/153/4/917.full Community interactions 1: synergism...
  17. M

    exercise video for 12 yr old boy

    LL, wow, that's a gem. Thanks for sharing. I wonder if there's a Soviet counterpart. My dad's too old to have done that in school and my older sister is too young still. We missed it--darn. :) Stephen, I'm with you on the schmaltz. I worked in Vienna for a summer and ate it at fancy restaurants...
  18. M

    exercise video for 12 yr old boy

    I wish indoor soccer or track (my younger son is doing that) or basketball were on the table but when I offer a "hey do ya wanna do [ ]" I get a firm no. The light saber thing might work, but I have a hunch he might do better with something adult-ish. Something that feels serious. I just...
  19. M

    exercise video for 12 yr old boy

    He's primarily a Minecraft guy. My daughter does Wii fit but he's not drawn to it. I'll look at Xbox games that are fitness related. Maybe there is something good for him. We have shooting stuff primarily. Any recs?
  20. M

    exercise video for 12 yr old boy

    Can people make recommendations for an exercise video/program that might appeal to a middle school age boy? PXsomething? Insanity? I've heard of these things, but don't really know much about them. It's too icy to run outside safely right now, and jogging has not appealed to my son thus far...
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