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The waiting game is scary, especially when you have just enough information to simmer your worries in. I get that with numbers on PFTs and radiology reports. (I should never have googled "spiculated lung nodule" after reading it on my report!) Here is a pretty cool PDF on spirometry that might...

One of the hardest things about being a parent is letting your child be somewhere that you consider risky under other people's care. For example, letting my child go with another family to an ocean with riptides, or to an amusement park where he could get lost or somehow not be buckled in to the...

conditions and tests Some things that cause repeated pneumonia and sinusitis are: Cystic Fibrosis Non-CF bronchiectasis (bronchiectasis is damage to the lungs that traps mucus and causes repeated infections. People with CF develop it quite early in life. People without CF sometimes develop it...

I've cultured a "rare yeast" with a note on the lab report saying "contact lab if further testing is to be pursued," but my doctor wasn't concerned. I also cultured candida kefyr at a different time. When I asked here about the candida kefyr, someone here, Kaylinsmom, replied that her daughter...

Things like low thyroid can cause depression and memory problems. There is always the possibility that untreated CF (respiratory infections, nutritional deficits) are disrupting your son's general functioning. However, there are so many kids with ADHD, sensory integration disorders etc. who...

Here is a thread from the past with information relevant to your question. (A change in message board software since the thread was started caused every post in it to be repeated a few times, but while it isn't actually six pages worth of responses, there's some good info in there for you.)...

I'm replying to bump your thread. Hoping someone will see it and have input. It is interesting to me, too, as I was dx and then un-dx with pulmonary hypertension. There was nothing abnormal/enlarged with my right ventricle--no signs of right-side heart failure--so that was also reassuring...

I'm so sad to hear that. I found this article that reports on the death of a child under ten from D68 - maybe the same person. The article implies that the cause of death was an ability/delay in getting emergency medical care because of overwhelmed resources...

I think it makes a lot of sense for you to get checked out for CF and for the whole range of lung diseases. The deficiency your doctor mentioned is most likely alpha-1 anti-trypsin deficiency. It causes premature emphysema in people who've never smoked. Your PFTs aren't indicative of emphysema...

enterovirus 68 Virus Melissa75 Responds: 12 confirmed cases There have been 12 confirmed cases of D68 in New York and possible cases that are waiting test results in two CT hospitals.

Another thing that people can do is try to improve their gut bacteria so they are maybe a little less vulnerable to enteroviruses. (Taking a probiotic or eating yogurt, reducing sugar). ----------- HEV = Human Entero Virus "Probiotic treatment did not affect significantly the risk of HEV...

I think Aboveallislove's response was excellent. I only have a little to add and I'm only relevant in that I'm a mom of three and I spend a lot of time on this site because I have bronchiectasis--a type of lung damage caused by CF and by other things. I definitely agree with Aboveallislove that...

Try not to worry to much. Most people who develop pneumonia from a viral URI/bronchitis have a secondary bacterial infection that is not complicated to treat. The antibiotics you probably take daily would cover the strep pneumo or mycoplasma bacteria. I do feel for you, being sick and exposed...

I would consider this part of the first bleed. Continue to heal and hang in there! Maybe do yoga type stuff for another week.

I'm sorry you had bleeding while doing something you love and that has so many benefits. I think exercise temporarily increases blood pressure, including in the vessels of your lungs. Heavy lifting in particular can cause a spike. Were you also working out when it happened four years ago? If...

As a person with non-CF bronchiectasis, when I went to a CF center, I didn't see any other patients the whole time I was there. At pulmonologist offices, I'm not separated in the waiting area from people who clearly have COPD, nor does the room I'm seen in undergo any special cleaning process...

Levaquin is broad spectrum and statistically has low side effects. But if you are older, take corticosteroids and are male (your username indicates that is not the case :), then you are more likely to have tendon rupture with this class of antibiotics. If you don't feel horrible, you should ask...

Thanks for sharing. And wow, amazing work, James. In the first video, its sounds like his lung function might be around 50% (he says he's got about half his lungs). To have that much strength and muscle mass is super--and fascinating. I wonder if that shows how much the heart/vascular system can...

I found something new that gets everyone sweating and panting in my house, laughing too. The Xbox game "Just Dance." I was shocked that that my boys would be into it because they've never expressed interest in dancing. Dancing is MY tied-for-first-place-with-rock-climbing sport, so believe me...

I think it is common for people with lung disease to show signs of it in their heart, but your doctor should give you indication of how serious the changes are. Most common is hypertrophy (enlargement) of the right ventricle. Since you are reading this stuff in school, I'm guessing you know...