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Here are the two things that helped mine. No I am not joking: 1. I changed to NO glueten! If I eat it my belly blows up. 2. I started Yoga _ I always exercised but yoga did something to reduce this.

link Also see this http://www.cnpp.usda.gov/sites/default/files/usda_food_plans_cost_of_food/FoodPlans2007AdminReport.pdf

Found it: New chart for 2014: http://www.cnpp.usda.gov/Publications/FoodPlans/2014/CostofFoodJan2014.pdf after I add 20% the total is $362.04. what is the next step? Here are the instructions below: The yearly average amount on that plan should be 362.04 x 12 = $4,344.48. Next step is to...

Found original post. This was a discussion between me and someone else on this forum. New chart for 2014: http://www.cnpp.usda.gov/Publications/FoodPlans/2014/CostofFoodJan2014.pdf after I add 20% the total is $362.04. what is the next step? Here are the instructions below: The yearly...

BINGO! Here is the link

i want to subscribe to this thread but don't know how. can someone tell me?

the link at the end of you post does not work. post again please. good post!

I posted on this a year ago. I am trying to find the post. It gave explicit instructions on how to do this. If anyone finds it let me know.

Only 164 people in the world???!!!:eek: So doctors know NOTHING about us!

I had sinus surgery and it helped immensely. No kalydeko here

Completely agree. What can we do to help get the ball rolling?

CF already IS a disability. The title of your post is inaccurate. I think you are asking if we should lobby for more attention to qualify for federal help and the answer is YES! I am the oldest CFer in my state, I have been told. I worry what will happen to me if I can't work anymore.

What do you mean Printer? Are you talking about medicare and medicaid or something else?

Some schools give push back on 504 plans. the best bet is not only an MD letter stating the dx, but HOW it affects a major life activity. The best MD letter give accommodation suggestions.

I was a 504 coordinator for many years. A 504 plan should be requested if your child has a disability which affects a major life activity (which she does: breathing, energy). 504 plans fall under civil rights legislation and give a child protections under the the CR act. Your child remains a...

IMO this drug should be used with extreme caution. It is a black box drug and IMO should only be given as a last resort for pneumonia and other resistant bacteria, in a hospital setting. This drug does a serious number on the joints and you can end up with severe joint problems. I needed a knee...

If the prune juice has artificial (chemical) sweeteners it can make you throw up. Make sure you are drinking pure prune juice - found in the health food aisle - not commercial prune juice. Have you tried orange flavor gritless metamucil daily? It is natural and keeps one regular. It is not an...

Thank you LL for all the details. Some people use Miralax regularly (not original poster). I was more concerned about those people reading this and thinking it was "fine."

It is a CHEMICAL. It is NOT natural. Yes it is used for jet fuel (arsenic IS natural, coming from a mineral(s) - replying to a previous post by another person). Do you want a chemical in your body or a natural substance? Miralax is: A white powder for reconstitution. MiraLax (polyethylene...

I suggest a natural fiber (metamucil orange) instead of jet fuel