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I just did this yesterday for a colonscopy. It took me 4 hours before it hit. Each person is different. First will be loose stools, then just water. Drink gatorade and broth. This is my experience: I have the exact symptoms as your fiance! This clean out did nothing for my stomach aches, bloat...

Yes that is FMLA - not the GINA law, just to clarify for readers.

The GINA law prohibits them from asking genetic information. For example you are at work and your parent dies from cancer. They are not allowed to test you for cancer, require you get tested or ask you if you have cancer. Anything genetic related does not have to be disclosed and cannot be asked...

I recently completed a pre-employment health screening at a major ivy league hospital (with a CF center). The entIre process was illegaL. They wanted to know your entire medical history since birth. ILLEGAL!!!!!! They are only allowed to ask if you have any disability requiring accommodations to...

Cross that bridge when you get to it. Employers are NOT nice guys looking out for your best interests. They are looking out for theirs. Anything they view as a "liability" they get rid of. Sounds negative but I am being realistic. Employers know nothing about CF. I do not carry any of the germs...

My advice: DO NOT DISCLOSE IT. I learned the hard way that even when filling out FMLA you do NOT have to write in "cystic fibrosis." You can write in the symptoms: difficulty breathing; exhaustion; GI difficulities. DO NOT disclose. You will be viewed as someone who can infect others and can be...

No! I was diagnosed at age 50 - after having many many doctors tell me "nothing is wrong with you." I have a milder form of the disease.I have exercised my entire life and still do. Only know am I developing GI problems and need enzymes. I started enzymes at age 52. When I get sick I need a...

I do not advise this! I worked i sped for many years. You are around ALOT of germs. Kids are not clean - they cough and sneeze everywhere. The stress of being a teacher is huge. I was discriminated against by a sped school for having CF.

My advice is do not disclose you have CF to an employer. I was discriminated against for it

I am tired and need sleep. I have sleep apnea and use a cpap. I always feel tired

I don't go to clinic Yes I do not goto a clinic. Two reasons: they know little to nothing about my mutation and are using me as a guinea pig to learn about. Also I have received sub standard care there (rude employees, doctors literally guessing at treatment and then stating "we solved that" -...

The best one IMO is Austin Healthmate. hey are medical grade and are in hospitals and dr offices. They are expensive. They filter junk in the air but also bacteria. The filters last 5 years. http://austinair.com/products/healthmate-series/ Find what you want on the website, then go to ebay and...

I THINK it is illegal for them to ask that. I THINK all they can ask is: do you have any medical issues that impede you from fulfilling your position as xyz. In my case the answer would be no.

Under the GINA Law, are we able to not disclose our status to an employer who send us for a pre-employment health screening? This is what found online: 19. Are there any privacy protections for my genetic information? A 2008 federal law, the Genetic Information Nondiscrimination Act of 2008...

Glad you have had a good experience. Again. This is the difference between the children's and adults experience. No one on a walk has been supportive of me or even said a kind word

Wow Angelo. Good for you for pushing forward! I could not agree with you more. The feeling you have about CFF is the exact feeling I have about the CF center. They want to pontificate about their greatness but did nothing to help me or my health. They want to charge my insurance $500 a pop for...

Hero shirts? Mine doesn't say I'm a hero.

Thank you. I don't live in AZ or anywhere near it.

I know, right????!!! It isn't though. I find people very competitive. What I mean is many people are walking "only" for "their" CF person. They could care less about the rest of us. Just my feeling.

It is not a requirement to wear the green. I agree with you - you can run into people at a walk you never expected and bam they know you have CF. That part almost feels like a civil rights violation or something. Since it isn't a requirement it isn't a violation tho. Wear a regular shirt and go...