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  1. Simba15

    Be Nice

    Thanks Az. CF is invisible but so are the emotional costs of the disease and then just life issues in general. Someone on my team also said to me (the same day), "Oh I heard you are coming with us because you have no friends." What? Is this just my state where people are so rude?! I have friends...
  2. Simba15

    Be Nice

    On a recent Great Strides walk I was approached by a mother of a CFer. Because I was wearing a green shirt, she knew I was a CFer. At first I thought it was nice she approached me to say hello. She then began telling me how wonderful her CF clinic is and she could not "get through it without...
  3. Simba15

    Wrong DX

    What state do you live in? If you are close to me I can give you a referral to a dr. I know. Amazing, I have CF and no one dx it til age 50 when i went to every doc under the sun. you either do not have cf or you have a genetic mutation they have no discovered yet. I had good success with paleo...
  4. Simba15

    Wrong DX

    Did they do a blood test??
  5. Simba15

    Portraits: Adults with CF Fundraising book

    For a name: Tales of Hope
  6. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    Some do it and most dont. Most have very little training in it - believe it or not. With insurance a psychiatrst gets paid more not to do it and to do meds only, so most do meds only.
  7. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    This is incorrect. a LPC= Licensed Professional Counselor. Cmpletely different from a social worker. A licesned social worker is a LCSW or LICSW. LPC and LCSW are two very different things. You must have a masters degree to be a LPC, but not necessarily a LCSW (depends on the state you are in)...
  8. Simba15

    Pimples

    I have never had pimples in my entire life. I started pancreatic enzymes and now I have them. Is there a connection? Will the pimples go away?
  9. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    There is alot of misinformation on this thread. I am a psychotherapist and I have CF. If anyone needs help or has questions, PM me. Thank You.
  10. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    This is not correct. Social workers are not LPC. LPC = Licensed Professional Counselor. SOME social workers are LCSW's = Licensed Clinical Social Workers/
  11. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    Insurance only pays for counseling/therapy if you plan covers it. If you have a private insurance plan you have to call the plan inquire if they have outpatient mental health. Ask if there is a limit for the # of sessions, deductible, copay , etc.
  12. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    Welshwitch: social workers are trained in the bottom part of mazlow's hierarchy. they focus on basics like food, shelter, clothing, insurance. This is what you get at a CF center - they help you with the basics of life. A therapist is a trained in counseling or psychology and will help you with...
  13. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    This is not correct. Therapists are usually psychologists, licensed professional counselors, licensed social workers. Psychiatrists do very little therapy and most do not have training in it.
  14. Simba15

    Oldest Person With CF

    I was not diagnosed until approximately three years ago so I didn't grow up knowing I had cf. Now that I know what it does lurk in the back of my mind every day. I plan on living to be as old as I would've even without cf and plan to live to be very old and into my 90s. I worry about it in terms...
  15. Simba15

    Oldest Person With CF

    Does that me me number three or four? ? I am glad I wasn't dx til age 50 however I feel jipped in a sense. I have been sick my entire life but never got any support that many CF patients receive- that is medical support, family support, and community support. I also believe that there could...
  16. Simba15

    Therapy to manage psychological aspects of CF -- anyone see a therapist?

    http://www.lisatayloraustin.com/e-therapytelehealth-counseling/
  17. Simba15

    CF Income Tax Deductions

    Do I keep receipts for groceries for two weeks only or do i have to keep them for the entire year?
  18. Simba15

    GI doc needed in CT

    CFLawyer: this is spam. Please post in the correct area in the forum. Thank you.
  19. Simba15

    GI doc needed in CT

    CF Kitty. I am NOT impressed with Yale!
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