Search results

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    What can't you do after a transplant?

    No cats or changing the litter box. toxoplasmosis.
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    I was chosen as a finalist for a contest

    Done!! I hope you win! We are in Seattle, too.
  3. A

    I was chosen as a finalist for a contest

    Done!! I hope you win! We are in Seattle, too.
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    To those on kalydeco---Lauren (your thoughts, please)

    Is your PA mucoid or non-mucoid? Did you have to stop doing treatments while you were on placebo?
  5. A

    To those on kalydeco---Lauren (your thoughts, please)

    Is your PA mucoid or non-mucoid? Did you have to stop doing treatments while you were on placebo?
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    What song do you relate your CF fight to

    Hakuta Mahtatta! It means no worries...
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    To those on kalydeco---Lauren (your thoughts, please)

    I see now you've already answered all of my questions in previous posts. I'm concerned about how much the vertex drugs will help my daughter since she already has PA and bronchiectasis. Oh well, anything is better than nothing.
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    To those on kalydeco---Lauren (your thoughts, please)

    I see now you've already answered all of my questions in previous posts. I'm concerned about how much the vertex drugs will help my daughter since she already has PA and bronchiectasis. Oh well, anything is better than nothing.
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    To those on kalydeco---Lauren (your thoughts, please)

    What bugs were you culturing before and after taking the drug? Have you had a ct scan recently? Has any damage been shown to be reversible? Do you know what your sweat tests were before and after taking kalydeco? Thanks!
  10. A

    To those on kalydeco---Lauren (your thoughts, please)

    What bugs were you culturing before and after taking the drug? Have you had a ct scan recently? Has any damage been shown to be reversible? Do you know what your sweat tests were before and after taking kalydeco? Thanks!
  11. A

    Generic Hyper-Sal

    Ya my little girl hasn't been coughing up anything since she started on the generic saline. Pretty sure the stuff is diluted. Must be how they get away with making it for so cheap. Bastards!
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    Need for Better Searching capabilities

    It always makes me have to enter the same search twice. But maybe I'm just dummy!
  13. A

    Need for Better Searching capabilities

    It always makes me have to enter the same search twice. But maybe I'm just dummy!
  14. A

    809/770

    I don't think they are allowed to discuss their results publicly. Others have asked similar questions on this site without much luck. The 661 is similar to the 809 in the way that it is designed to properly fold the protein to get it to the cell surface. Our doctor told us that the deltas...
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    809/770

    I don't think they are allowed to discuss their results publicly. Others have asked similar questions on this site without much luck. The 661 is similar to the 809 in the way that it is designed to properly fold the protein to get it to the cell surface. Our doctor told us that the deltas...
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    Summer Camp for CF Children

    Swimming, hiking, canoing or just sitting around the camp fire roasting marshmallows and telling ghost stories. Basically all the same things regular kids enjoy doing at summer camp.
  17. A

    Summer Camp for CF Children

    Swimming, hiking, canoing or just sitting around the camp fire roasting marshmallows and telling ghost stories. Basically all the same things regular kids enjoy doing at summer camp.
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    DF508ers who participated in VX-770 trials

    You won't be able to get the drug until its approved in Canada and I have no idea when that will be. Hopefully really soon!!
  19. A

    DF508ers who participated in VX-770 trials

    You won't be able to get the drug until its approved in Canada and I have no idea when that will be. Hopefully really soon!!
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    DF508ers who participated in VX-770 trials

    Wasn't clinically beneficial which means its yours if you can cover the full 300k price tag and get a script from your doc. I think if the foundation had to buy this drug for every delta out there they would go broke and not be able to fund anymore research. Besides the results DF508 had with...
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