Search results

  1. I

    Second Child??

    We actually chose not to have any bio kids, period. Adoption was the right choice for us. Every family is different, but you might want to consider it. Keep in mind too, that if you have second kid (bio OR adopted), they may not have CF but they could have something equally devastating or...
  2. I

    Second Child??

    We actually chose not to have any bio kids, period. Adoption was the right choice for us. Every family is different, but you might want to consider it. Keep in mind too, that if you have second kid (bio OR adopted), they may not have CF but they could have something equally devastating or...
  3. I

    Hypertonic saline (hts) & electronics

    I havent had much of a problem with HTS, but boy does mucomyst mess a computers innards up!!!!!!!! I highly recommend a LOT of ventilation.
  4. I

    Hypertonic saline (hts) & electronics

    I havent had much of a problem with HTS, but boy does mucomyst mess a computers innards up!!!!!!!! I highly recommend a LOT of ventilation.
  5. I

    How were you diagnosed with cf?

    1971. I was three months old, had lost 1.5 pounds from birthweight, already had several cases of pneumonia and a collapsed lung, severe failure to thrive. Diagnosed via sweat test, which tested extremely high. No brainer, classic lung and GI symptoms.
  6. I

    How were you diagnosed with cf?

    1971. I was three months old, had lost 1.5 pounds from birthweight, already had several cases of pneumonia and a collapsed lung, severe failure to thrive. Diagnosed via sweat test, which tested extremely high. No brainer, classic lung and GI symptoms.
  7. I

    Adoption

    bobanny, that is so true. I cant imagine loving my kids any more! Looks like you adopted transracially, as did we. Our eldest is Azeri (think persian/turkish) and our youngest hispanic. We definitely found adoption to be the perfect way for us to grow our family and we were doubly blessed...
  8. I

    DDF508

    DD508 here. 40 years old, FEV around 60-65%, was down to about 45% in 2010. Diganosed at 3 months. I wont bore you with the laundry list of medical annoyances. Important thing is I feel pretty good in the NOW.
  9. I

    DDF508

    DD508 here. 40 years old, FEV around 60-65%, was down to about 45% in 2010. Diganosed at 3 months. I wont bore you with the laundry list of medical annoyances. Important thing is I feel pretty good in the NOW.
  10. I

    Adoption

    Nicki, we have adopted twice, first internationally, second domestically. International has become much more restrictive lately towards parental health. I would think domestic would be the way to go, unless you are interested in adopting special needs. First you need to find a doc and an...
  11. I

    Bowel Movement Issues

    Maybe you're dislodging a bloody mucous plug from your cervix? I've had those a few times when I havent been pregnant. Any correlation with recent sexual activity?
  12. I

    Hypoglycemia before CFRD?

    yup. Used to give me seizures until we figured it all out. Once I changed my diet, no more hyper or hypo.
  13. I

    Hypoglycemia before CFRD?

    yup. Used to give me seizures until we figured it all out. Once I changed my diet, no more hyper or hypo.
  14. I

    HELP! My 10yr old is refusing to do airway clearance

    umm, she is ten right? not an adult? I would very sweetly explain to her that she has no choice int he matter. End of discussion. And yes, my daughter is ten, I know how ten can be, and my eldest is about as stuborn as they come (just like her mom!) When it comes to her health, I would be...
  15. I

    HELP! My 10yr old is refusing to do airway clearance

    umm, she is ten right? not an adult? I would very sweetly explain to her that she has no choice int he matter. End of discussion. And yes, my daughter is ten, I know how ten can be, and my eldest is about as stuborn as they come (just like her mom!) When it comes to her health, I would be...
  16. I

    Painful side stitches from Vest?

    Incomudrox- are you talking muscle spasms/cramping? I had a lot of that prior to breaking ribs, each and every time. From the vest and from coughing. (I eventually clued in and stopped using the vest, couldnt stop the coughing though!) Does stretching out all the intercostals help you at...
  17. I

    Painful side stitches from Vest?

    Incomudrox- are you talking muscle spasms/cramping? I had a lot of that prior to breaking ribs, each and every time. From the vest and from coughing. (I eventually clued in and stopped using the vest, couldnt stop the coughing though!) Does stretching out all the intercostals help you at...
  18. I

    Weight gain before CFRD dx?

    I gained about 20 lbs...ack! Now I have to be very very careful what I eat (I lost the extra weight through very heavy exercise and diet) or I'll put it right back on in a second.
  19. I

    Weight gain before CFRD dx?

    I gained about 20 lbs...ack! Now I have to be very very careful what I eat (I lost the extra weight through very heavy exercise and diet) or I'll put it right back on in a second.
  20. I

    How do you nicely avoid things

    First question- does your daughter actually have a response to allergens at this house? Coughing, asthma, or does she get ill after a visit? If this is the case, something really needs to be said. If there is no discernable reaction from her, but you just get the willies, if might be a...
Top