Search results

  1. I

    How do you nicely avoid things

    First question- does your daughter actually have a response to allergens at this house? Coughing, asthma, or does she get ill after a visit? If this is the case, something really needs to be said. If there is no discernable reaction from her, but you just get the willies, if might be a...
  2. I

    Nebbing questions

    Nebbulize WHILE walking as briskly/or running, on a treadmill. For me, this is tops. I got back about 15-20% of my lung function doing this every day, often twice a day, for 30-60 minutes. You dont have much of a choice but to focus on your breathing and it really seems to get the meds in...
  3. I

    Nebbing questions

    Nebbulize WHILE walking as briskly/or running, on a treadmill. For me, this is tops. I got back about 15-20% of my lung function doing this every day, often twice a day, for 30-60 minutes. You dont have much of a choice but to focus on your breathing and it really seems to get the meds in...
  4. I

    Bad clinic visit...again...

    That is so frustrating : ( I've had some PFT's before when I felt great and thought I would do well, but I had so much air trapping, inflammation, and bronchospasms going on that it totally compromised the overall values. I think the key is, you just gotta get some aerobic exercise...
  5. I

    Bad clinic visit...again...

    That is so frustrating : ( I've had some PFT's before when I felt great and thought I would do well, but I had so much air trapping, inflammation, and bronchospasms going on that it totally compromised the overall values. I think the key is, you just gotta get some aerobic exercise...
  6. I

    what to use to soothe irritated airways

    Tobi irritated my lungs so badly I actually dropped 10% of lung function after a round of it. Some good suggestions here to try. Ultimately you may have to decide whether the treatment is worth it, or find an alternative.
  7. I

    what to use to soothe irritated airways

    Tobi irritated my lungs so badly I actually dropped 10% of lung function after a round of it. Some good suggestions here to try. Ultimately you may have to decide whether the treatment is worth it, or find an alternative.
  8. I

    Tobramycin IV - side effects

    Karen, hearing loss is listed as a possible side-effect. A few years ago I heard of someone who had a fair amount of hearing loss from her IV tobra. I hope your situation improves.
  9. I

    Tobramycin IV - side effects

    Karen, hearing loss is listed as a possible side-effect. A few years ago I heard of someone who had a fair amount of hearing loss from her IV tobra. I hope your situation improves.
  10. I

    restless legs / leg aches

    I have what sounds like a similar issue when my electrolytes are off, especially potassium. Hope you figure it out!
  11. I

    restless legs / leg aches

    I have what sounds like a similar issue when my electrolytes are off, especially potassium. Hope you figure it out!
  12. I

    Allergies kicking off infection

    CFkitty- if you can solve that CF dilemma, you'll be a billionaire! I have a heck of a time getting my allergies under control. The sinus drainage into my lungs is constant. I spend all day hacking out the crap that drained into my lungs during the night. The only thing that seems to...
  13. I

    Allergies kicking off infection

    CFkitty- if you can solve that CF dilemma, you'll be a billionaire! I have a heck of a time getting my allergies under control. The sinus drainage into my lungs is constant. I spend all day hacking out the crap that drained into my lungs during the night. The only thing that seems to...
  14. I

    Don't what to do..

    Mike. If your doc is suggesting transplant list, then I would think seriously about it and make a decision. I've known several people who really regretted not getting on the list quickly when it was suggested because it is such a scary step. And dude, depression goes hand in hand with...
  15. I

    Don't what to do..

    Mike. If your doc is suggesting transplant list, then I would think seriously about it and make a decision. I've known several people who really regretted not getting on the list quickly when it was suggested because it is such a scary step. And dude, depression goes hand in hand with...
  16. I

    I keep falling - need help

    Sassy, I second Havoc. I've had lots of musculoskeletal issues from cipro and some other meds. I used to sprain my ankles on a regular basis when I was on them a lot and have scads of joint/muscle pain and weakness.
  17. I

    I keep falling - need help

    Sassy, I second Havoc. I've had lots of musculoskeletal issues from cipro and some other meds. I used to sprain my ankles on a regular basis when I was on them a lot and have scads of joint/muscle pain and weakness.
  18. I

    CFRD

    I am only a sample size of one, but I have had excellent success with controlled my CFRD with diet and exercise. No sugar (except in whole fruits), no grains or potatoes (so extremely low carb). High protein, high veggie, low fat. Everyone is different. HOpe you find something that works for you.
  19. I

    CFRD

    I am only a sample size of one, but I have had excellent success with controlled my CFRD with diet and exercise. No sugar (except in whole fruits), no grains or potatoes (so extremely low carb). High protein, high veggie, low fat. Everyone is different. HOpe you find something that works for you.
  20. I

    stretching

    Yup, I stretch my back, shoulders, intercostals, etc everyday. If I dont, the muscles get so tight I start fracturing one rib after another.... Massages are great too.
Top