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  1. I

    Sinus/Nasal Issues

    We tried taking my daughters temp when she was about 5 with an ear thermometer. It wasnt reading, then read really low, tried again and again. Finally, I took the darn thing out and looked in her ear, expecting to see a huge blob of wax. Much to my surprise, there was something white in there...
  2. I

    Sinus/Nasal Issues

    We tried taking my daughters temp when she was about 5 with an ear thermometer. It wasnt reading, then read really low, tried again and again. Finally, I took the darn thing out and looked in her ear, expecting to see a huge blob of wax. Much to my surprise, there was something white in there...
  3. I

    newborn daughter just diagnosed

    staystrong- lotta people here are leading very full and happy lives. CF is part of who we are, or who our loved ones are, but a diagnosis doesnt determine our future. Treatment has come a long way.....I'm married, two kids, two graduate degrees, did a stint as a professional athlete, and...
  4. I

    newborn daughter just diagnosed

    staystrong- lotta people here are leading very full and happy lives. CF is part of who we are, or who our loved ones are, but a diagnosis doesnt determine our future. Treatment has come a long way.....I'm married, two kids, two graduate degrees, did a stint as a professional athlete, and...
  5. I

    Summer Camp for CF Children

    Very nice idea in theory, bad idea in practice. Frankly, I chalk up some of my longevity to my parents keeping me away from other CF kids, even when it wasnt fashionable. Even if kiddos are cultured prior to attending, I still wouldnt risk my child or anyone elses. An online camp that...
  6. I

    Summer Camp for CF Children

    Very nice idea in theory, bad idea in practice. Frankly, I chalk up some of my longevity to my parents keeping me away from other CF kids, even when it wasnt fashionable. Even if kiddos are cultured prior to attending, I still wouldnt risk my child or anyone elses. An online camp that...
  7. I

    Back into the hospital tonight

    You're all in our prayers. I am so sorry this is happening to your family.
  8. I

    Back into the hospital tonight

    You're all in our prayers. I am so sorry this is happening to your family.
  9. I

    hemoptysis from flying?

    rtorres25, I have a Omron MicroAir. I only use it for non-home "emergencies" and it is small enough to carry in my purse. Its a teeny little hand-held thing that is battery operated. I've had it for a long time now, close to a decade I think, and it still works great. It is completely...
  10. I

    hemoptysis from flying?

    rtorres25, I have a Omron MicroAir. I only use it for non-home "emergencies" and it is small enough to carry in my purse. Its a teeny little hand-held thing that is battery operated. I've had it for a long time now, close to a decade I think, and it still works great. It is completely...
  11. I

    hemoptysis from flying?

    Never had this problem, but it sounds unnerving, especially when you're away from home! When I fly I drink like a fish (non-alcoholic beverages, I aim for 8-12 oz every 30 minutes, yeah, I pee like a fish too!@) and often wear a surgical mask, which traps moisture. I also usually do a nebbie...
  12. I

    hemoptysis from flying?

    Never had this problem, but it sounds unnerving, especially when you're away from home! When I fly I drink like a fish (non-alcoholic beverages, I aim for 8-12 oz every 30 minutes, yeah, I pee like a fish too!@) and often wear a surgical mask, which traps moisture. I also usually do a nebbie...
  13. I

    Hi im new here

    Hiya Rubie!
  14. I

    Hi im new here

    Hiya Rubie!
  15. I

    How did you know?

    yup, trial and error. It also involved a bit of re-education and forgetfullness. I'd forget the enzymes sometimes, and take note of what I'd eaten and how my body reacted. Pretty soon I figured out that I did ever so much better with no fat or dairy in my diet and no enzymes. Then I...
  16. I

    How did you know?

    yup, trial and error. It also involved a bit of re-education and forgetfullness. I'd forget the enzymes sometimes, and take note of what I'd eaten and how my body reacted. Pretty soon I figured out that I did ever so much better with no fat or dairy in my diet and no enzymes. Then I...
  17. I

    Career Path (HELP!!)

    Ronbinranae, another consideration is health insurance and job security when you have to miss time for being ill. I thought about marine bio for a while, even did an internship on the mangroves/reefs in Belize, but the working conditions were a bit daunting for me. (I wouldnt be happy staying...
  18. I

    Career Path (HELP!!)

    Ronbinranae, another consideration is health insurance and job security when you have to miss time for being ill. I thought about marine bio for a while, even did an internship on the mangroves/reefs in Belize, but the working conditions were a bit daunting for me. (I wouldnt be happy staying...
  19. I

    Pancreatic sufficient

    Like Bill said, we are very much individuals when it comes to CF. I was completely PI as a kid, trouble keeping weight on even with scads of enzymes, severe failure to thrive. When I was around 20/21, something changed. The docs have hypothesized that my GI has become colonized with the...
  20. I

    Pancreatic sufficient

    Like Bill said, we are very much individuals when it comes to CF. I was completely PI as a kid, trouble keeping weight on even with scads of enzymes, severe failure to thrive. When I was around 20/21, something changed. The docs have hypothesized that my GI has become colonized with the...
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