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  1. I

    stretching

    Yup, I stretch my back, shoulders, intercostals, etc everyday. If I dont, the muscles get so tight I start fracturing one rib after another.... Massages are great too.
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    Other cfers in the hospital

    I had contact three times in the hospital (1970's and '80's). None would I choose to repeat. Once I roomed with a 15 year old girl (I was 12) who was so angry at the world I found it terrifying. The second time, I was introduced to an older woman in her 20's who told me horror stories about...
  3. I

    Other cfers in the hospital

    I had contact three times in the hospital (1970's and '80's). None would I choose to repeat. Once I roomed with a 15 year old girl (I was 12) who was so angry at the world I found it terrifying. The second time, I was introduced to an older woman in her 20's who told me horror stories about...
  4. I

    Neb before bed?

    Yep, albuterol can be the kiss-o-death for sleeping. Increased BP and heartrate. Have you tried straight HTS w/0 the albuterol? Its not quite as effective, but it at least helps a little bit. I am in the same boat. Cough cough cough and no sleep if I DONT do a nebbie, and jitter jitter...
  5. I

    Neb before bed?

    Yep, albuterol can be the kiss-o-death for sleeping. Increased BP and heartrate. Have you tried straight HTS w/0 the albuterol? Its not quite as effective, but it at least helps a little bit. I am in the same boat. Cough cough cough and no sleep if I DONT do a nebbie, and jitter jitter...
  6. I

    How far do you travel to get to your clinic?

    Almost 3 hours one way. Its a trek, but I feel like I'm getting the best.
  7. I

    How far do you travel to get to your clinic?

    Almost 3 hours one way. Its a trek, but I feel like I'm getting the best.
  8. I

    Reeling tonight

    Strength and blessings for your family.
  9. I

    Reeling tonight

    Strength and blessings for your family.
  10. I

    7% saline nebulizer- any help here?

    Another thing you could try- if she doesnt notice 3% and hates 7%, mix the two together 50/50.
  11. I

    7% saline nebulizer- any help here?

    Another thing you could try- if she doesnt notice 3% and hates 7%, mix the two together 50/50.
  12. I

    Enzymes and Malabsorption?

    How is your blood sugar?
  13. I

    Enzymes and Malabsorption?

    How is your blood sugar?
  14. I

    Your interest in the world's current events?

    I guess I tend to go in the opposite direction. People have helped me out a lot through my life and I do my darndest to care and help out locally a much as I can (ie food drives, donations, walks, scholarships, etc). Globally, we do our best to sponsor some kids in their health care and...
  15. I

    Swimming

    Yes, I have that reaction too. I feel like I am going to drown. What has helped my confidence is swimming with a snorkel. That way I can cough my brains out and still not get really out of breath or feel panicky in the water. When I get going hard over 20-30 laps or so, the snorkel does...
  16. I

    CF coughing VS asthmatic coughing

    Have a question for folks. I have noticed that when I get an exacerbation and start coughin up a lot more chunks, my asthma quiets down significantly. In fact, I can pretty acurately use a decrease in general tightness as a sign that I am going to get sick. So, that seems totally weird. The only...
  17. I

    CF coughing VS asthmatic coughing

    Have a question for folks. I have noticed that when I get an exacerbation and start coughin up a lot more chunks, my asthma quiets down significantly. In fact, I can pretty acurately use a decrease in general tightness as a sign that I am going to get sick. So, that seems totally weird. The only...
  18. I

    PFT Goal's thread. Trying to achieve 60% FEV1.

    *NEW* PFT Goal's thread. Trying to hit that magic 60% FEV1. ICK. Good luck to you Incomudrox, hope they get whatever it is under control soon. I hope you find a magic combo that improves your health. I've spent decades messing around with meds/no meds, different stuff, eastern medicine...
  19. I

    Constant hunger, bloating...help!

    Hmm, I find rice, in any type, very constipating and makes me bloat up. Wheat too, corn not as much. I have noticed that with the onset of daily exercise, the bloating has gotten much better and very little constipation. They found that in the old days on sailing ships too....passengers who...
  20. I

    Constant hunger, bloating...help!

    Hmm, I find rice, in any type, very constipating and makes me bloat up. Wheat too, corn not as much. I have noticed that with the onset of daily exercise, the bloating has gotten much better and very little constipation. They found that in the old days on sailing ships too....passengers who...
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