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  1. Y

    Looking for questions to ask and for friends

    If I could give you one piece of advice then it would be to be very watchful and keep on top of everything. Doctors knows medecine better than us, CF parents, but even the best doctors can make mistakes b/c they are busy, tired, had a bad day etc. I am saying this from personal experience: only...
  2. Y

    Looking for questions to ask and for friends

    If I could give you one piece of advice then it would be to be very watchful and keep on top of everything. Doctors knows medecine better than us, CF parents, but even the best doctors can make mistakes b/c they are busy, tired, had a bad day etc. <br /> <br />I am saying this from personal...
  3. Y

    quelle mutuelle vous pouvez me conseiller?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>auguste22</b></i> <br /> <br />bonjour ben on m'a conseillé la <a target=_blank class=ftalternatingbarlinklarge href="http://www.assursante.fr">mutuelle</a> de SwissLife mais j'ai besoin avant ça de vos avis ça m'intéressent beaucoup...
  4. Y

    CPT

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cnsky54RRT</b></i> Since reading that article, I have thought that Tour de France competitors should skip the illegal doping and just have a therapist do CPT on each stage to increase lung function. I would be more than happy to...
  5. Y

    CPT

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cnsky54RRT</b></i> Since reading that article, I have thought that Tour de France competitors should skip the illegal doping and just have a therapist do CPT on each stage to increase lung function. I would be more than happy to...
  6. Y

    CPT

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cnsky54RRT</b></i> <br /> <br /> <br />Since reading that article, I have thought that Tour de France competitors should skip the illegal doping and just have a therapist do CPT on each stage to increase lung function. I would be more...
  7. Y

    Daughter colonized with psuedomonas

    Hi, i know exactly how you feel. My dd will be 3 in Jan too, she cultured PA twice, the second time was last month with no symptoms. I pray we get rid of it with TOBI, but the thought of it settling down is always in the back of my mind. It is very scary since on average people w/PA lose lung...
  8. Y

    Daughter colonized with psuedomonas

    Hi, i know exactly how you feel. My dd will be 3 in Jan too, she cultured PA twice, the second time was last month with no symptoms. I pray we get rid of it with TOBI, but the thought of it settling down is always in the back of my mind. It is very scary since on average people w/PA lose lung...
  9. Y

    Daughter colonized with psuedomonas

    Hi, i know exactly how you feel. My dd will be 3 in Jan too, she cultured PA twice, the second time was last month with no symptoms. I pray we get rid of it with TOBI, but the thought of it settling down is always in the back of my mind. <br /> <br />It is very scary since on average people...
  10. Y

    First Culture of Pseudomonas?

    Since I posted in this thread in response to your question, my dd has cultured PA again. She was also assymptomatic. Last year when she had PA for the first time, we did culture her every month, just after finishing the first round of TOBI and on off months as well(she did 3 rounds). Shortly...
  11. Y

    First Culture of Pseudomonas?

    Since I posted in this thread in response to your question, my dd has cultured PA again. She was also assymptomatic. Last year when she had PA for the first time, we did culture her every month, just after finishing the first round of TOBI and on off months as well(she did 3 rounds). Shortly...
  12. Y

    First Culture of Pseudomonas?

    Since I posted in this thread in response to your question, my dd has cultured PA again. She was also assymptomatic. <br /> <br />Last year when she had PA for the first time, we did culture her every month, just after finishing the first round of TOBI and on off months as well(she did 3...
  13. Y

    DD always catching something at preschool

    my dd is also almost 3. Up until this year she has been very resistant to colds: sometimes we would have someone from abroad stay over and their child gets sick like the day before, so I could not tell them not to come since they had nowhere to go, and she would not catch anything even after...
  14. Y

    DD always catching something at preschool

    my dd is also almost 3. Up until this year she has been very resistant to colds: sometimes we would have someone from abroad stay over and their child gets sick like the day before, so I could not tell them not to come since they had nowhere to go, and she would not catch anything even after...
  15. Y

    DD always catching something at preschool

    my dd is also almost 3. Up until this year she has been very resistant to colds: sometimes we would have someone from abroad stay over and their child gets sick like the day before, so I could not tell them not to come since they had nowhere to go, and she would not catch anything even after...
  16. Y

    How long before you/your child got colonized by PA

    Hi everybody, Just learned that my dd (3 y/o)has cultured PA again, allthough in small numbers. It is already the second time that she cultures it, the last time being when she was 18 m/o (also very light growth). So my question is how long does it take to get colonized, or more like what has...
  17. Y

    How long before you/your child got colonized by PA

    Hi everybody, Just learned that my dd (3 y/o)has cultured PA again, allthough in small numbers. It is already the second time that she cultures it, the last time being when she was 18 m/o (also very light growth). So my question is how long does it take to get colonized, or more like what has...
  18. Y

    How long before you/your child got colonized by PA

    Hi everybody, <br /> <br />Just learned that my dd (3 y/o)has cultured PA again, allthough in small numbers. It is already the second time that she cultures it, the last time being when she was 18 m/o (also very light growth). <br /> <br />So my question is how long does it take to get...
  19. Y

    Questions for brainy Adult CFer's about new study drugs

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>petersymons</b></i> the drug is called meveol . Hopefully it will revolutionise the treatment of infections. www.alaxia-pharma.eu/meveol</end quote></div> This drug is still in preclinical development. It might be years before it...
  20. Y

    Questions for brainy Adult CFer's about new study drugs

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>petersymons</b></i> the drug is called meveol . Hopefully it will revolutionise the treatment of infections. www.alaxia-pharma.eu/meveol</end quote> This drug is still in preclinical development. It might be years before it comes...
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