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  1. J

    1717-1G>A

    Sorry to bust in on this convo but i also have the 1717-1g-aa and DF508 combination. I 'm always interested to hear what other people's clinical presentation is like. I had pretty much no lung symptoms until about aged 16-17. Original diagnosis was at 6 weeks old due to failure to thrive. Once I...
  2. J

    1717-1G>A

    Sorry to bust in on this convo but i also have the 1717-1g-aa and DF508 combination. I 'm always interested to hear what other people's clinical presentation is like. I had pretty much no lung symptoms until about aged 16-17. Original diagnosis was at 6 weeks old due to failure to thrive. Once I...
  3. J

    What song do you relate your CF fight to

    This little gem of an 80ssong was given a rebirth by the recent movie Bridesmaids, its "Hold on" by wilson philips Really feel good tune and the lyrics ring true "don't ya know things could change? they could go your way, if you hold on for one more day"
  4. J

    Vertex application to FDA

    <br>CysticlyFIT, I think those guys were just kidding, I wouldn't say anyone actually cares about names. They were just making a fun remark, nothing serious!! I just noticed I have the same genotype as you! I'm also an avid-sports gal...although not as much since I started working after college...
  5. J

    Vertex application to FDA

    <br>CysticlyFIT,I think those guys were just kidding, I wouldn't say anyone actually cares about names. They were just making a fun remark, nothing serious!!I just noticed I have the same genotype as you! I'm also an avid-sports gal...although not as much since I started working after college...
  6. J

    Vertex application to FDA

    <p><br>CysticlyFIT,<p><p>I think those guys were just kidding, I wouldn't say anyone actually cares about names. They were just making a fun remark, nothing serious!!<p><p>I just noticed I have the same genotype as you! I'm also an avid-sports gal...although not as much since I started working...
  7. J

    PFT numbers...

    <P>Thanks that was very helpful. Jonathan, you always have fantastic scientific advice. I wonder should we be paying you?! <img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P> </P>
  8. J

    PFT numbers...

    <P>Thanks that was very helpful. Jonathan, you always have fantastic scientific advice. I wonder should we be paying you?! <img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P></P>
  9. J

    PFT numbers...

    <P><BR>Thanks that was very helpful. Jonathan, you always have fantastic scientific advice. I wonder should we be paying you?! <img src="i/expressions/face-icon-small-wink.gif" border="0"></P> <P></P>
  10. J

    PFT numbers...

    I'm aware this topic has probably done the rounds many times but I'm really curious to hear new opinions!<div><br></div><div>So my pfts are around 50-52% and have been for around 5 years. I am really fit, ran a half marathon last year, plan on doing another this year, I could list all my...
  11. J

    PFT numbers...

    I'm aware this topic has probably done the rounds many times but I'm really curious to hear new opinions!<br>So my pfts are around 50-52% and have been for around 5 years. I am really fit, ran a half marathon last year, plan on doing another this year, I could list all my activities here but I...
  12. J

    PFT numbers...

    I'm aware this topic has probably done the rounds many times but I'm really curious to hear new opinions!<br>So my pfts are around 50-52% and have been for around 5 years. I am really fit, ran a half marathon last year, plan on doing another this year, I could list all my activities here but I...
  13. J

    Reaction to Yasmin ocp

    <P>I have been a user of the Nuvaring as a means of contraception for about a year now. I was really happy with it. My doc noticed my iron levels dropping slightly and I said that was probably because since starting the ring my periods had become heavier. I was referred to a gynacologist who...
  14. J

    Reaction to Yasmin ocp

    <P>I have been a user of the Nuvaring as a means of contraception for about a year now. I was really happy with it. My doc noticed my iron levels dropping slightly and I said that was probably because since starting the ring my periods had become heavier. I was referred to a gynacologist who...
  15. J

    Reaction to Yasmin ocp

    <P><BR>I have been a user of the Nuvaring as a means of contraception for about a year now. I was really happy with it. My doc noticed my iron levels dropping slightly and I said that was probably because since starting the ring my periods had become heavier. I was referred to a gynacologist who...
  16. J

    Vfend

    <P>This is interesting, I was on a course of vfend for 4 weeks. No other oral drug made me feel so good so fast! I must have had a lot of aspergillus and clearing it up made a big diff.</P> <P> </P> <P>Regarding skin, I found that my skin just went really TAN! I got no burn. Having said that I...
  17. J

    Vfend

    <P>This is interesting, I was on a course of vfend for 4 weeks. No other oral drug made me feel so good so fast! I must have had a lot of aspergillus and clearing it up made a big diff.</P> <P></P> <P>Regarding skin, I found that my skin just went really TAN! I got no burn. Having said that I...
  18. J

    Vfend

    <P><BR>This is interesting, I was on a course of vfend for 4 weeks. No other oral drug made me feel so good so fast! I must have had a lot of aspergillus and clearing it up made a big diff.</P> <P></P> <P>Regarding skin, I found that my skin just went really TAN! I got no burn. Having said that...
  19. J

    Airway clearance from exercise

    <P>Hi,</P> <P> </P> <P>I have noticed this for a while now; say I do a really vigorous exercise session in the morning I will cough and get good clearance during and after the session. Sometimes it's only little bits. </P> <P>However, a few hours later I notice I'm bringing up more! It's like...
  20. J

    Airway clearance from exercise

    <P>Hi,</P> <P></P> <P>I have noticed this for a while now; say I do a really vigorous exercise session in the morning I will cough and get good clearance during and after the session. Sometimes it's only little bits. </P> <P>However, a few hours later I notice I'm bringing up more! It's like the...
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