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Hi Steve, After my daughters diagnoses and learning about cf, I've noticed to have some similar issues growing up and still do till this date. I decided to talk to my daughters cf doc (pulmonary) and he then ordered a sweat test. Both results came back borderline, 47 and 49. We are now in the...

My daughters had hers for about 4 months now. Although it took a while for it to fully heal, we absolutely love it. I would also recommend getting a button as well. Hers is small and low profile. It's rubber material. I would also tape it down when not being used. This will prevent from it being...

My daughters had hers for about 4 months now. Although it took a while for it to fully heal, we absolutely love it. I would also recommend getting a button as well. Hers is small and low profile. It's rubber material. I would also tape it down when not being used. This will prevent from it being...

I'm sorry I dont have any advice. I myself am still new to the whole cf diagnosis. I want you to know ill keep your hubby and family in my prayers! Hang in there! God is good.

I'm sorry I dont have any advice. I myself am still new to the whole cf diagnosis. I want you to know ill keep your hubby and family in my prayers! Hang in there! God is good.

you can also start with small frequent meals/snacks. Try your favorite foods!

Has anyone brought up a g button? I know its a huge decision for parents and patient to make, but I believe it relieves lots of stress on both sides. You wouldnt have to force something down your throat and wouldn't taste those yucky calorie drinks. I'd probably save this as a last resort, but...

I too use a bottle sterilizer. Just wash with soap and water and pop it in the microwave.. the only problem I'm having is melting the cups!! Oooops! I've tried boiling them in a pot as well and still no luck.!! Think we go thru more neb cups than anyone.

I too use a bottle sterilizer. Just wash with soap and water and pop it in the microwave.. the only problem I'm having is melting the cups!! Oooops! I've tried boiling them in a pot as well and still no luck.!! Think we go thru more neb cups than anyone.

Update: After a week and a couple days miah is finally home. Looks like it was something viral. All labs came back normal and her liver enzymes are slowly climbing down. The doctors said if it was cf related her liver enzymes wouldn't be improving. Although I'm thankful it wasn't anything...

Update: After a week and a couple days miah is finally home. Looks like it was something viral. All labs came back normal and her liver enzymes are slowly climbing down. The doctors said if it was cf related her liver enzymes wouldn't be improving. Although I'm thankful it wasn't anything...

My daughter cultures normal flora/staph. Is that what mrsa is? All her pulmonary doc says is that its very common and mostly everyone cultures it.

My daughter cultures normal flora/staph. Is that what mrsa is? All her pulmonary doc says is that its very common and mostly everyone cultures it.

TestifyToLove: How is Micah doing? What kind of proceures has he had? How frequently are they doing lab work? What can i expect? I'd like to be prepared. Miah too is hispanic so there's a good chance it's CF related? I've never heard it being common in the Hispanic population., so what does that...

TestifyToLove: How is Micah doing? What kind of proceures has he had? How frequently are they doing lab work? What can i expect? I'd like to be prepared. Miah too is hispanic so there's a good chance it's CF related? I've never heard it being common in the Hispanic population., so what does that...

Hi! Thanx for the response.. Well she is currently hospitalized for liver issues. And when they did an xray they noticed cloudiness (mucus) In her lungs, on top of that she's been sick most of this month (frequent coughing extra mucus in throat and nose). So her pulmonary doc decided to start...

Hi! Thanx for the response.. Well she is currently hospitalized for liver issues. And when they did an xray they noticed cloudiness (mucus) In her lungs, on top of that she's been sick most of this month (frequent coughing extra mucus in throat and nose). So her pulmonary doc decided to start...

Hi there. We are currently in the hospital with baby Miah with elevated liver enzymes as well. So far we aren't sure what caused it but her GI doc is thinking its a viral. I'm hoping and praying that's all it is and isn't CF related. I've noticed on several post of liver problems with patients...

Hi there. We are currently in the hospital with baby Miah with elevated liver enzymes as well. So far we aren't sure what caused it but her GI doc is thinking its a viral. I'm hoping and praying that's all it is and isn't CF related. I've noticed on several post of liver problems with patients...

Hello,, my daughter just got put on pulmozyme (6month old) and wondering if it's safe? I was reading older posts on it and looks like the negative out numbered the positives. Please tell me your experience on the med and how old you were when you started?