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    Vomiting hand fulls of mucus

    I was just wondering if any of you guy's have experienced a similar situation. About twice a year she gets very mucusy (sp)and vomits piles of mucus. This time she woke up choking and not able to breath (scared the living daylights out of us). It lasted for quiet some time and we couldn't work...
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    Its a Boy

    Just wanted to update.......... Hi all, i had a little boy on the 26th sept weighing in at 2735grams. The VBAC didn't go as i hoped, and i ended up with another ceaser <img src="i/expressions/face-icon-small-sad.gif" border="0"> so i'm in alot of pain at the moment. The reason being his heart...
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    Incremin with Iron

    Hi all, i just copied and pasted this from the family section. Hoping i would get more replies here<img src="i/expressions/face-icon-small-wink.gif" border="0"> I was talking to a women the other day, that mentioned her son never used to eat as a child. I mentioned to her that i have the same...
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    Incremin with Iron

    I was talking to a women the other day, that mentioned her son never used to eat as a child. I mentioned to her that i have the same problems with my daughter, only she has CF on top of not eating<img src="i/expressions/face-icon-small-frown.gif" border="0">. So, she went on th mention that...
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    Blood streaked sputem

    I was just wondering what does it mean if you cough up blood streaked sputem. My daughter coughed up a bit of (clear) phlem sp? the other day and it had little streaks of blood through it. It has not happened again, although she has developed a bit of cough which only lasts up to about...
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    Blood streaked sputum

    I was just wondering what does it mean if you cough up blood streaked sputem. My daughter coughed up a bit of (clear) phlem sp? the other day and it had little streaks of blood through it. It has not happened again, although she has developed a bit of cough which only lasts up to about...
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    Bronchitol trials (fast tracked)

    Hi to all, here is some interesting and positive info i thought ya all would be interested in. Enjoy!<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.org.au/pdf/Bronchitol_fast_tracked.pdf">http://www.cysticfibrosis.org....hitol_fast_tracked.pdf</a> Take care
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    A sweet little something for the mummies and daddies

    This is something my mum bought for us when Olivia was born and diagnosed with CF. Its a beautiful pic of a baby and angels with a poem framed in stained glass. Its beautiful. Titled GOD SENT YOU THE BEST HEA HAD <b>God sent you </b>the best <b>he</b> had The blessings of <b>baby hands</b>...
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    Anyone interested in participating in a new clinical study

    Share International Foundation has released details on sharktank.org that describes what involved in this new therapy. Just thought i would let everyone know, for whoever may be interetsed. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Interesting link

    Here is an interesting link to a clinical study of Moli1901, which is an experimental compund to treat CF. Check it out! <a target=_blank class=ftalternatingbarlinklarge...
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    STOOLS :)

    I just have a quick question for you all. Olivia's stools have been constipated and she cries when she tries to poo, but when i ask her if her belly is sore she say's "no". Now, she does require enzymes and our docs say we have them spot on. So its not that common that we have this issue and...
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    confused about BLOOD TEST results

    Ok, so i called clinic to find out Olivia's blood test results which were done two weeks ago. I'm pissed that no one from clinic had called to tell what they were so that i could stop what i was doing grrrrrrrrrrrrrrrrrrrrr. Now to the results (i should have been given 2 weeks ago) They said...
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    Coughing videos

    I know this has been mentioned before and not many responded. Well, i asked WANDERLOST to re-post hers but she has deleted it alltogether and mentioned i post it as a new topic here. Thanks Wanderlost, it was a great idea.<img src=""> Now lets hope it works.lol I think its somthing we as...
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    peeling soles on feet.......

    Hey all, i was just wondering if this is cf related or not. I have noticed that during the warmer weather, when Olivia sweats alot that her soles of her feet begin to peel. When i lick her foot ( clean foot) lol, its tastes realy salty and also feels very dry. I am assuming all this is...
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    "Happy Birthday", Olivia.

    Hey guy's, it was Olivia'ss birthday on Saturday and she just turned two <img src="i/expressions/present.gif" border="0">. It was a long day as we had about 30 family and friends come over to celebrate, and Olivia was very grumpy too. I don't thnk she is used to seing so many people at one time...
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    Please help!

    Hey All, I'm having real trouble giving Olivia her Losec, it has just been added to her medication list. Actually i'm also having real trouble feeding her aswell, she just won't eat. Breakfast is good but when it comes to lucnh and dinner all hell breaks loose. Its been 3 days that she hasn'e...
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    Olivia's clinic appointment today...........

    Hey All, I was so stressed out all week just thinking about Olivia's clinic appointment, as docs havn't been to happy with her eating, growth and development. So i was braceing myself for the worst. Well we got off too a good start, as they had a surprise christmas party planned for the kids...
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    Off topic - stress stress stress

    Sorry guy's, i just had to vent somewhere. I'm shaking to the core, after everything we have been through with Olivia. In and out of hospital it just never seems to end. Last night we were gtting ready for bed and she was excited running around the lounge room. I just finished posting the...
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    Off Topic - Just letting u know (Julie)and others i spoke to

    Hey all, Hubby and i have been dicussing this for many months and had come to the conclusion that we would go through ivf to avoid another cf baby. This has now changed and its a long story, why? I just had the need to tell you, as i was discussing it a few months back and some of you wanted...
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    Home sweet home

    What a bad week its been. Olivia got sick on Tuesday with a runny nose, which was no need for concern but as the day went by she seemed to feel realy unwell. Anyway, Wednesday night she was up screming and crying and seemed in a lot of pain, she had a temp of 40 and kept pulling at her ears...
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