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  1. C

    When will ther be a cure???????

    Ok so every time I talk to someone or a doctor they all have different answers about when they think a cure will be found! When my Nathen was dignoised,the doc said possibuly 10 yrs from now there will more then likely be a cure, since then I have herd 20 and then on a special news cast a while...
  2. C

    When will ther be a cure???????

    Ok so every time I talk to someone or a doctor they all have different answers about when they think a cure will be found! When my Nathen was dignoised,the doc said possibuly 10 yrs from now there will more then likely be a cure, since then I have herd 20 and then on a special news cast a while...
  3. C

    When will ther be a cure???????

    Ok so every time I talk to someone or a doctor they all have different answers about when they think a cure will be found! When my Nathen was dignoised,the doc said possibuly 10 yrs from now there will more then likely be a cure, since then I have herd 20 and then on a special news cast a while...
  4. C

    My husband lost his fight to Cystic Fibrosis

    Take one day at a time! Sometimes that all you can do, sometimes an hour at a time at times that's all I can tell my self when I going though hard times! I haven't lost my husband but I have a child. And no matter what it's always ok to cry-at times it just feels good and it helps! My prayers...
  5. C

    My husband lost his fight to Cystic Fibrosis

    Take one day at a time! Sometimes that all you can do, sometimes an hour at a time at times that's all I can tell my self when I going though hard times! I haven't lost my husband but I have a child. And no matter what it's always ok to cry-at times it just feels good and it helps! My prayers...
  6. C

    My husband lost his fight to Cystic Fibrosis

    Take one day at a time! Sometimes that all you can do, sometimes an hour at a time at times that's all I can tell my self when I going though hard times! I haven't lost my husband but I have a child. And no matter what it's always ok to cry-at times it just feels good and it helps! My prayers...
  7. C

    Who are you in a nut shell

    who are you hi my name is Amanda, I have 4 children Breanna w/cf ddf508- found out by cronic. villi. sampling-durning pregenecy Brandon-being tested 3yrs.old Jared-carrier Nathen w/cf no longer w/me also had autism I live in Georgia Woman-of corse 25 years old married- to Randee 32- wonderfull...
  8. C

    question about pseudomonas

    Ok I am waiting to see what Breanna has, they caultured her in the ER by the Plam. on call Doc. How bad is PA. Breanna has never had bacturia till possibuly now at 11 months old is this something that can be treated and what will the lasting effects be if she has it? dose everyone carry staph...
  9. C

    question about pseudomonas

    Ok I am waiting to see what Breanna has, they caultured her in the ER by the Plam. on call Doc. How bad is PA. Breanna has never had bacturia till possibuly now at 11 months old is this something that can be treated and what will the lasting effects be if she has it? dose everyone carry staph...
  10. C

    question about pseudomonas

    Ok I am waiting to see what Breanna has, they caultured her in the ER by the Plam. on call Doc. How bad is PA. Breanna has never had bacturia till possibuly now at 11 months old is this something that can be treated and what will the lasting effects be if she has it? dose everyone carry staph...
  11. C

    to worry or to not?

    Ok so like I have a QA how do you know when your child has the type of cough you really need to be concerend about or just know, it's a bad cold or sinus or something if that nature. Will there a certin sound in the cough or what? Breanna is coughing really bad tonight but I guess it's from the...
  12. C

    to worry or to not?

    Ok so like I have a QA how do you know when your child has the type of cough you really need to be concerend about or just know, it's a bad cold or sinus or something if that nature. Will there a certin sound in the cough or what? Breanna is coughing really bad tonight but I guess it's from the...
  13. C

    to worry or to not?

    Ok so like I have a QA how do you know when your child has the type of cough you really need to be concerend about or just know, it's a bad cold or sinus or something if that nature. Will there a certin sound in the cough or what? Breanna is coughing really bad tonight but I guess it's from the...
  14. C

    Keeping med safe?

    Great idea about the 3 drawer cabent!!!! I love that idea and I could keep it in my room because I would'nt want the outher kids getting into it and they KNOW they are not allowed in mommy and daddies room unless we say so and are together! I didn't even think about what the humiddiey would do...
  15. C

    Keeping med safe?

    Great idea about the 3 drawer cabent!!!! I love that idea and I could keep it in my room because I would'nt want the outher kids getting into it and they KNOW they are not allowed in mommy and daddies room unless we say so and are together! I didn't even think about what the humiddiey would do...
  16. C

    Keeping med safe?

    Great idea about the 3 drawer cabent!!!! I love that idea and I could keep it in my room because I would'nt want the outher kids getting into it and they KNOW they are not allowed in mommy and daddies room unless we say so and are together! I didn't even think about what the humiddiey would do...
  17. C

    Keeping med safe?

    This maybe a silly QA, but were is the best place a person should keep thier meds and neb.? Thay all take up so much space! I need to get more orgnized I guess because I have alittle bit all over the place. Some in the kitchen cabnit,on the counter, bathroom,neb in her room some in a case under...
  18. C

    Keeping med safe?

    This maybe a silly QA, but were is the best place a person should keep thier meds and neb.? Thay all take up so much space! I need to get more orgnized I guess because I have alittle bit all over the place. Some in the kitchen cabnit,on the counter, bathroom,neb in her room some in a case under...
  19. C

    Keeping med safe?

    This maybe a silly QA, but were is the best place a person should keep thier meds and neb.? Thay all take up so much space! I need to get more orgnized I guess because I have alittle bit all over the place. Some in the kitchen cabnit,on the counter, bathroom,neb in her room some in a case under...
  20. C

    Best places to purchase pediasure?

    Have you checkinto Children's medical services ( C.M.S) My family dose'n qualify for any programs but only my daughtrt did because of her cf! SSI medicade and CMS They wil pay for it!
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