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    acinetobacter baumanii

    Hi, My husband has acinetobacter baumanii in his last sputum culture. He used to only culture s. aureus that has been treated with oral augmentine and he has a pretty good fev (around 85-89%%). He is 40 diagnosed as an adult (33). He had some cough increase lately due to a virus we all had, and...
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    How often do you get lung scans?

    Hi,<div>  I haven´t post here for a long time.  My husband has CF diagnosed as an adult (33 years old).  He is now 39 and in very good health. 85-90% FEV and only S. Aureus sensitive to every antibiotic in sputum. Only two flare ups a year treated with oral antibiotics.  He goes to a cf clinic...
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    bronchitol

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.pharmaxis.com.au/assets/pdf/2010/2010_01_27_Pharmaxis_Quarterly_25_Dec_2009.pdf ">http://www.pharmaxis.com.au/as...terly_25_Dec_2009.pdf </a>Has anyone been on the trial? hope it gets approved soon! husband with cf, 37 years old...
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    bronchitol

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.pharmaxis.com.au/assets/pdf/2010/2010_01_27_Pharmaxis_Quarterly_25_Dec_2009.pdf ">http://www.pharmaxis.com.au/as...terly_25_Dec_2009.pdf </a>Has anyone been on the trial? hope it gets approved soon! husband with cf, 37 years old...
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    husband with cf. Starting IVF

    HI! My husband was diagnosed with cf 1.5 years ago at 35. (I posted sometimes in this forum, but haven´t post for a long time). His health is very good and we are thinking of having children with ivf. In fact we are starting it this week!!!!!. I have taken the full ambry test and I am...
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    bronchitol

    Bronchitol submitted application for aproval in australia. If approved will be used in patients with bronchiectasies for airway clearance. Phase III trials are being done to be used in cf. <a target=_blank class=ftalternatingbarlinklarge...
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    gastro questions.(many)

    HI!. My boyfriend (cf diagnosed last year at 35.), says that he usually feels a little "bloated". He says he has been feeling that way for the last 4 years. He had a fecal fat test done which is fine. He doesn´t have abdominal pain. He goes to the bathroom twice a day and has normal stools...
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    any news about denufosol?

    Are there any news about denufosol?. What about those of you on the trial, could you post telling us how are you doing on it? Is it working for you?. Thank you for posting. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    antidepressants

    What do you think about this??. Quite interesting. They just experimented with mice, but who knows? <a target=_blank class=ftalternatingbarlinklarge href="http://news.bbc.co.uk/1/hi/health/7319200.stm">http://news.bbc.co.uk/1/hi/health/7319200.stm</a>
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    Vx 770.

    It´s been tested in patients with G551D mutation, but if works they will tested it on patients with other mutations. It´s on phase 2 trials yet, but it seems that is working. <a target=_blank class=ftalternatingbarlinklarge href="http://www.thestar.com/Business/article/357073...
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    inhaled aztreonam

    Interesting <a target=_blank class=ftalternatingbarlinklarge href="http://www.bizjournals.com/sanfrancisco/stories/2008/03/03/daily38.html?ana=from_rss">http://www.bizjournals.com/san...ly38.html?ana=from_rss</a>
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    denufosol

    Denufosol is going to start second phase III trial <a target=_blank class=ftalternatingbarlinklarge href="http://www.centredaily.com/business/technology/story/399833.html">http://www.centredaily.com/bus...logy/story/399833.html</a>
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    denufosol

    Inspire initiated second phase III cf trial. <a target=_blank class=ftalternatingbarlinklarge href="http://www.centredaily.com/business/technology/story/399833.html ">http://www.centredaily.com/bus...ogy/story/399833.html </a>
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    bronchitol

    pharmaxis is going to submit application for marketing of bronchitol in australia third quarter 2008. <a target=_blank class=ftalternatingbarlinklarge href="http://www.pharmaxis.com.au/news-and-media/media-releases-and-news_home.cfm ">http://www.pharmaxis.com.au/ne...ses-and-news_home.cfm </a>
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    ceftobiprole

    Review of Ceftobiprole NDA at FDA Anti-Infective Drugs Advisory Committee Meeting. Ceftobiprole is a broad spectrum cefalosporin active against MRSA. It has completed phase III trials. <a target=_blank class=ftalternatingbarlinklarge...
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    NAC

    To those of you that are on Nac, would like to know how are you doing on it. Have you notice any difference since starting it? What dose are you taking? My boyfriend has been on 600 mg twice a day and I think his is doing better since his on it. Less coughing. He had the same number of flare...
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    AAT trial completed (phase I)

    Kamada completes Phase I trial for lung disease treatment The company has obtained orphan drug status for aerosolized ATT for congenital emphysema and cystic fibrosis. <a target=_blank class=ftalternatingbarlinklarge...
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    supplements of omega 3

    Anyone taking omega 3 supplements? If so how much do you take and how are you doing? I found some articles that say it may beneficial for cystic fibrosis, and I would like to know if any of you are taking them. NCBI PubMed A service of the U.S. National Library of Medicine and the National...
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    How many time a year do you take antibiotics?

    Just curious. My boyfriend is on oral antibiotic again for a flare up. He took last one for 2 weeks and finished it a month ago. It´s too soon to have a flare up again? He used to have 2-3 flare ups a year. But this year had 4. I was wondering if it´s normal to have to take them so close...
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    nebs cleaning

    Hi. I know there was a post similar to this some weeks ago. I was wondering if anyone uses milton solution (cloro isocianurate) to sterilize nebs. It´s similar to bleach. They are tablets that you put in water and they are suppose to sterilize children´s bottles etc. Our clinic recomended it...
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