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I got this msg from The Cystic Fibrosis Trust in the UK. Please all, do as stated, send an email today or tomorrow to vote and give a chance to the Trust of winning the money - it'll mean a lot to research... Quote Dear Supporter Please forgive us for contacting you via email at this busy...

I got this msg from The Cystic Fibrosis Trust in the UK. Please all, do as stated, send an email <b>today or tomorrow </b>to vote and give a chance to the Trust of winning the money - it'll mean a lot to research... Quote <b>Dear Supporter Please forgive us for contacting you via email at...

My son started having bad, very ugly cystic acne around 16, some months before his cough went in non-stop mode. (which later led us to the CF doctor). He went on accutane, for several rounds now he's OK. But on another forum I noticed plently of peeps, esp. teenagers, with CF also have cystic...

CO might one day be an effective therapy against resistant bacteria - who'd have known!! Studies made on E. coli and staph only, so far. Who knows, maybe pseudomonas too in the future. But please do not start smoking now LOL <a target=_blank class=ftalternatingbarlinklarge...

My son had PFTs last 17th, a little over one month after being discharged from hospital from an exacerbation. Now, I know the important items where to look in the results sheet is FEV1, but hehas several FEV1's: FEV1 FEV1 % VC MAX FEV1 % FVC I also hear TLC is important, and so are FEF25-75...

I know this isn't exactly religion but... has anyone who's seen The Secret tried to use the Law of Attraction to keep CF in check? On a quick search I didn't find anything related to that in this forum. Thanks!

Hi friends Haven't been much around here lately, my son left the hospital 3 weeks ago after an exacerbation, and I've been trying to not obsess (can you tell I've been reading The Secret LOL)?... Now to the point, This came up yesterday in a local newspaper - in Portugal - considered a...

Hi, all, haven't posted much. My son has had an exacerbation and is still in hospital and expected to be another week, totalling 2 weeks on IV antibiotics, oxygen, aerosols, etc etc <img src="i/expressions/face-icon-small-sad.gif" border="0"> This is the first time he's in hospital so it's been...

Hi, I've been thinking, it's my birthday in a couple weeks and I'm expecting a couple presents from the usual suspects, but I'm thinking of telling them to make a donation to a CF org. instead of buying me stuff that I probably don't need <img src="i/expressions/face-icon-small-smile.gif"...

my son has been doing cardio/fitness, he could do swimming instead, do you think it has more benefits to his lungs? (he has pseudomonas)

I know this sounds weird, but has anyone (out of desperation perhaps) thought about going to alternative medicines?

Did you tell your partner they would have to take the Ambry tests? What was their reaction? If your partner was totally mutation free, how did you feel about generating a CF carrier? Will you alert them about their condition before they plan having children? And if your partner turned out to...

... and I wonder: I've been reading around and you all seem to agree that a CFer will hardly live until retirement. 36 years is the life expectancy. My question: is this valid for mild CFers too, or just for those with the delta F508 (the most severe one I think). I mean for every class of...

Not sure if it's OK to post this here... kind of hurried... long story short, my son has an inconclusive diagnosis of CF... being treated for 1 1/2 year,... Today the doctor called and told him to go to the hospital Wedenesday to have a rectal biopsy for CF. I've read so much about cystic...