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What did you guys take as far as the dosage and how often? I see that there are 1200 mg, 600 mg and 400 mg tablets and wasn't sure what I should be taking and how often?

Wow, third pregnancy!! That's amazing!! Congratulations :) Happy to hear about being able to stay on Cayston... thanks again for the info :)

Thanks Autumn!!! Definitely a good place to start :) Appreciate it Kim

I'm sure this answer is here somewhere but what drugs are allowed and not allowed during pregnancy. I am currently on TOBI Podhaler and alternating that with cayston. I also take Pulmozyme, albuterol and hypertonic saline, as well as azithromycin (500 mg 3x/week), symbicort, flonase. Any info...

Does anyone know if there's a way to order/buy an extra hand set for Cayston? Or do I have to have my doctor put in a script? It would make life so much easier to have one at work instead of lugging it back and forth.

edited for privacy

I am 26 years old, very healthy and have been married for 2 years now to a wonderful man. I lost my brother to cystic fibrosis when he was 17 and I was 14. I have CF as well, but it has been mild and I'm able to maintain very good weight and lung function. Growing up, I was always told I'd never...

I am 26 years old, very healthy and have been married for 2 years now to a wonderful man. I lost my brother to cystic fibrosis when he was 17 and I was 14. I have CF as well, but it has been mild and I'm able to maintain very good weight and lung function. Growing up, I was always told I'd never...

I am 26 years old, very healthy and have been married for 2 years now to a wonderful man. I lost my brother to cystic fibrosis when he was 17 and I was 14. I have CF as well, but it has been mild and I'm able to maintain very good weight and lung function. <br />Growing up, I was always told I'd...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Thanks so much guys!!!! I have an apt in a few weeks and I'm definitely going to give it a try!! Thanks again!

Thanks so much guys!!!! I have an apt in a few weeks and I'm definitely going to give it a try!! Thanks again!

Thanks so much guys!!!! I have an apt in a few weeks and I'm definitely going to give it a try!! Thanks again!

Thanks so much guys!!!! I have an apt in a few weeks and I'm definitely going to give it a try!! Thanks again!

Thanks so much guys!!!! I have an apt in a few weeks and I'm definitely going to give it a try!! Thanks again!

Every time I go to my appointments, my doctor brings up using hyper tonic saline-- she isn't pushy but just asks if I wanted to start using it. I always say that I feel that I dont need it at this point b/c I'm already on albuterol and pulmozyme once daily and TOBI every other month along with...