Search results

Wanted to find out if any of you have achey joints? Or achey backs. This just started about 6 months ago and it annoys me. My tx coordinator said most likely it is CF related arthritis, joint disease, or the fact I am getting old!!!! 44 I started taking Glucosimine a month ago and my...

Wanted to find out if any of you have achey joints? Or achey backs. This just started about 6 months ago and it annoys me. My tx coordinator said most likely it is CF related arthritis, joint disease, or the fact I am getting old!!!! 44 I started taking Glucosimine a month ago and my...

Latest update from Terry... *************************************** Hi All, Well, this was a great weekend. Thank you to so many of you who sent birthday cards to Lo. We have them plastered all over the wall in front of her so she can see them when she wakes up. They have been a source of...

Latest update from Terry... *************************************** Hi All, Well, this was a great weekend. Thank you to so many of you who sent birthday cards to Lo. We have them plastered all over the wall in front of her so she can see them when she wakes up. They have been a source of...

The latest from Terry... Hello Everybody, I came out to the waiting room from Lo's ICU room to give each and every one of you a long distance hug from our family and to thank you for your prayers. The fact of the matter is that there is no question in any of our minds that God is not only...

Specific Lo Update is in Blue: Just got off the phone with Terry and Miss Lo is still stable... still capable of surgery when they find a match. I did hear earlier in the day that her fever is finally gone and that they are keeping her more sedated 'cause she needs her rest. So right now...

Message from C. Capiezollo Just a quick text message update from Terry... ********************************************************* Lo is still stable and we're still waiting for those lungs. Yesterday she sat up, ready to climb out of bed... "where am I?" Still hoping. Love to all...

This email is from a friend of Lo's. Good Sunday afternoon friends of Lo, I just got back from a month (72 hours according to the clock) in St Louis. I have a whole new understanding for the roller coaster all the Detrichs have been riding. Trying to figure out how to summarize those 72...

From Valerie Vandervoort Hello I just wanted to let everyone know that Lo was put on the ventilator this afternoon. Her pulse, and blood pressure were getting too high. Please keep her & her family in your prayers. Love to all- Valerie

Hello everyone I spoke with Lo's mom tonight, and there has been some change. Lo is in ICU on Bi-pap 24 hours a day. When she went into ICU her CO2 was 71, then they got it down to 48, and yesterday was back up to 58. Her lung function a week ago was 13%. She is being given Vancomycin, Cefapem...

Hello to every single one of our friends and family, I am so sorry I haven't had the time to send any emails. I know many of you have been wondering about Lo. I still haven't figured out how to use my email address book up here. But I am going to try. Most of you have probably heard that Lo's...

Lo Detrich has battled cystic fibrosis for more than 20 years. Dealing with chronic rejection following a lung transplant, Lo insists she be back in Tulsa on her birthday, June 30. Lo Detrich has another fight on her hands Anyone who knows Lo Detrich knows she is a fighter. When she was 3...

Check this website out and their is video too! <a target=_blank class=ftalternatingbarlinklarge href="http://healthcorner.walgreens.com/display/1267.htm ">http://healthcorner.walgreens.com/display/1267.htm </a>

Massive Hemoptysis in Cystic Fibrosis* Background: Massive hemoptysis is a complication commonly reported in patients with cystic fibrosis (CF). An understanding of the pathophysiology of this complication and its consequences is important for the management of patients with CF. Objectives: To...

Greetings all Losey's Posey's, Miss Lo is in ICU and her family has gotten to visit several times already. Technically I don't think Lo is awake but... she seems to light up when her daddy is nearby, has squeezed his fingers and smiled at him. Terry says it was only a smile a parent could...

Greetings all Losey's Posey's, Miss Lo is in ICU and her family has gotten to visit several times already. Technically I don't think Lo is awake but... she seems to light up when her daddy is nearby, has squeezed his fingers and smiled at him. Terry says it was only a smile a parent could...

I got an email early this morning that Lo was in surgery last night for her new lungs.... Great news for her and family. I will update as I get more updates. Joanne Schum

I got an email early this morning that Lo was in surgery last night for her new lungs.... Great news for her and family. I will update as I get more updates. Joanne Schum

I got an email early this morning that Lo was in surgery last night for her new lungs.... Great news for her and family. I will update as I get more updates. Joanne Schum

This is the latest info on Lo: The week before Easter, Lo became very ill. She was coughing so often it was hard to believe she was capable of getting any air in between the coughs. As she said, "I am spending every second focused on breathing." At Rehab, Lo told the team she should probably...