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hi i also have 2 children with cf,my time is just that my time with the kids i have 3 other children at home and my husband works 15 hr days 6 sometimes 7 days a week.the soc worker is always telling me i need a break but with 5 kids and the treatments,vests,meds and all i cant seem to make time...

hi they based my sons ssi on my husbands income plus the kids child support but dont count it all,they still recieve quite a bit each month.

hi my boys go to little rock and there policy is no smoking also. not even in your cars im relly impressed with this and it is strictly enforced. i am a smoker and i have no problem with this policy,cf clinic is usually 3 hrs,and yes it can be nerve racking and all,but i handle it for my...

hi i have 2 boys with cf,my youngest has gotton ssi since he was 6 months old he is know 12,but my oldest it took 3 years to get it then they took it away 1 year later because he was to (healthy)by their standards that was 8 years ago .well we moved to the south 2 years ago for the youngests...

hi they told be at his cf center to use bleach and water daily to wash my boys nebs,i use a tsp of bleach in a dish pan of water soak for 10 mins then wash then dry,then i put them in a zip lock baggie till next use,has any one else been told to use bleach?

hi i have 2 boys with cf,their 10 months apart and their cf is as diffrent as night and day,the youngest is very sick with the lungs and degestive,he is in the hospitol every couple of months and on 4 vest treatments a day and breathing and 16 dif meds,the oldest is fine never has problems with...

hi i didnt know that if you could post id love to have that info ty so much betty<img src="i/expressions/face-icon-small-smile.gif" border="0">

hi he also has staph,b.gladioli and others im still looking into these all i know is the psuedomons that he cultered is not the relly bad one.but was told he cant be around other children with cf.i keep getting diffrent answers to my questions from the doctor that raises more questions but im...

thanks im working on finding good info and bringing it with me to his next docs visit,just found out he got mrsa from last visit at hospitol so im hopeing i can be more cautiose with the cf center with germs,they still dont have children wear masks or nothing at the cf center so thats what im...

hi my sons meds run about 15,000 a month.thanks-god for medicade,i also spend about 125 a week on his food hes on a high cal diet,5 meals a day and 7-8 snacks a day

hi i just got my ribbion on ebay and was so glad to see they had 1 for cf,you see all the ones for cancer,our troops,and alot others i just wanted to share this with you all there relly buetifull mine is white with red roses and says cure cf,also some of the proceds go to cf its so awesome,have...

HAPPY BIRTHDAY!!!!!!!!!!! IVE GONE THRO THE SAME STUFF WITH MY SON ABOUT NEVER SEEING A NOTHER B DAY FROM THE DOCTORS,LIVE LIVE ONE DAY AT A TIME IS HOW WE GO NOW I WILL SEE YOU HERE NEXT YEAR TO SAY HAPPY B DAY AGAIN CONGRATS<img src="i/expressions/face-icon-small-happy.gif" border="0">

<b>in response to your question i hope your not considering this but i felt i need to say something to you,my son was diagnoised at 2 months of age they said he would never see 3 he is now 12 the last year has been relly hard on him,i have fought with him all his life to do treatments,meds,and...

hi my son is 13 and his cf doctor wont let him scubba bacause of the cf(something about the breathing) talk to your doctor,they"ll be able to tell you better,,lol also CONGRATS!!!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">

thanks so much for the info i just called the cf foundation but the next closest cf center is 200 miles away so im calling our hospitol to see if theres a nother doctor we can see again thanks <img src="i/expressions/face-icon-small-happy.gif" border="0">

hi my name is betty i have 5 children my 2 oldest boys have cf,shawn was diagnosed at 2 months of age he is now 12,he has been very sick all his life usually in the hospitol with pick twice a year ,and last year we moved from nh to ark for the better climate for him,its been relly good for him...

<b>hi im a mom of 2 boys with cf,we just moved 2 years ago and im still not to sure about their new doctor,while waitting for one of my sons pft"s i read what my other sons folder said and i wish now i didnt but lord knows its good that i did my son has chronic S. aureaus,,H. parainfluenzae,P...

<b>hi my 12 yr old with cf gave it to my 13 yr old with cf,talk to your doctor and ask him that way you wont have to wonder about it i know i did for a long time and it drove me crazy </b><img src="i/expressions/heart.gif" border="0">

hi i am new to this and it looks like its a great place to talk and get advice,i just found out my son has mrsa,does anyone know what this means for kids with cf?he just got home today from the hospitol.and everthing on the web is so confusing about it,i would appreciate any replys thanks