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    In Memory of Jamey

    Carrie... thanks for sharing the obituary. It made me smile when I read your post about you and Jamey in hospital. He always make sure he had his ketchup and maple syrup for his stays. I sent him the laptop and am so happy that he was able to enjoy it the last year. Julie... your post in the...
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    In Memory of Jamey

    Thanks so much guys! Julie, I myself need to get the families address. When I do I will send it your way. I do feel Jamey is "breathing easy" now. The last 2 years have been tough, although he never complained the time I knew him. He was in the hospital every 4 -6 weeks for 3 weeks. His lung...
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    In Memory of Jamey

    I am really sad to let you all know that Jamey "retired his gloves" on June 3, 2006. He was 29 years old and died at Barnes Jewish Hospital in St. Louis, Missouri. I will never forget him. We met last Feb. 2005 in this forum. Here is his analogy again. Not Your Ordinary Boxing Match...
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    Cody

    Ginny has forwarded me such nice emails. Thank you "CF Community" for being so supportive!! Angie
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    Cody

    Thanks Kaitsmom for the reminder. This has been a hard year for Cody's family. They are doing such a wonderful thing by putting together the Cody Dieruf Benefit Foundation. <a target=_blank class=ftalternatingbarlinklarge href="http://www.breathinisbelievin.org">breathinisbelievin.org</a> It...
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    Please take a moment

    Thank you all for taking the time to look at Cody's site. Kaitsmom.... Thankyou for the kind words! Again, please do not hesitate to send Cody's Mom, Ginny, a note <a target=_blank class=ftalternatingbarlinklarge href="mailto:dierufg@msn.com">Ginny Dieruf</a> Angie
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    Please take a moment

    Hi guys. My friend, Ginny, lost her daughter, Cody, on April 28, 2005 to CF. It has been a hard year for the family and I know it has helped when she's heard from the "CF Community". I've posted Cody's website in the past, but here it is again. <a target=_blank...
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    my family

    Thanks for sharing!! Loved the song you picked!! Angie
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    close call???????????

    Goingup, How is your brother feeling? Any better?
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    Picture

    How do you get to the gallery?
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    How old were you.... treatments

    I know each person is different so the answers will vary..... but how old were you when you started doing your own treatments. Putting medicine in nebulizer and doing your vest all by yourself. Also, putting medicine (Tobi, Pulmozyne, Hypertonic) in neb and letting it sit in neb in...
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    has oregano oil changed your routine?

    What is GSH?? Angie
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    has oregano oil changed your routine?

    What is GSH?? Angie
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    Compiling Data from Essential Oil Use

    Hi. You read my mind. I was just thinking that it would be great to compile all the results of how people are doing who have started the Oregeno Oil. I find myself "surfing" all over forums to see how people are doing on the oils. I have been in contact with a friend who has a contact in the...
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    Compiling Data from Essential Oil Use

    Hi. You read my mind. I was just thinking that it would be great to compile all the results of how people are doing who have started the Oregeno Oil. I find myself "surfing" all over forums to see how people are doing on the oils. I have been in contact with a friend who has a contact in the...
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    Cool CF Walk Team Names

    My first walk was last year and the front of the shirt said "Hayley's Fight" and the back had a girl with boxing gloves on with "Not Your Ordinary Boxing Match" printed. I liked Jamey's CF Analolgy so much that I asked him if I could use title on our shirts. Angie Stepmom to Hayley w/ CF & CFRD
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    Cool CF Walk Team Names

    My first walk was last year and the front of the shirt said "Hayley's Fight" and the back had a girl with boxing gloves on with "Not Your Ordinary Boxing Match" printed. I liked Jamey's CF Analolgy so much that I asked him if I could use title on our shirts. Angie Stepmom to Hayley w/ CF & CFRD
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    Tobi With Vest

    Hayley, 11yrs, is on Tobi every other month. She does Tobi in nebulizer while doing her vest. My friend Jamey, 28yrs w/ CF, said his doctor told him to neb Tobi after Vest treatment. Vest opens things up and don't want to cough Tobi out. It does make sense. Wondering what you guys do. Angie
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    Tobi With Vest

    Hayley, 11yrs, is on Tobi every other month. She does Tobi in nebulizer while doing her vest. My friend Jamey, 28yrs w/ CF, said his doctor told him to neb Tobi after Vest treatment. Vest opens things up and don't want to cough Tobi out. It does make sense. Wondering what you guys do. Angie
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    hypertonic saline???

    Hayley, 11 yrs old, has been nebbing hypertonic saline for about a year. She does it 2X day w/ vest and pulmozyne 1X day w/ Vest. I think it's 3% or 5%. The hypertonic comes in premixed vials but when she first started we mixed the sodium chloride (used a syringe) w/ the saline. I believe...
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