5 out 8 children have now been tested

M

Mommafirst

Guest
Aw Tina, my heart is breaking a little for you today. I remember having my boys tested and the fear that I would have ALL my kids have CF. (((HUGS))) I know you can do this, but it SUCKS that you have to.
 
M

Mommafirst

Guest
Aw Tina, my heart is breaking a little for you today. I remember having my boys tested and the fear that I would have ALL my kids have CF. (((HUGS))) I know you can do this, but it SUCKS that you have to.
 
M

Mommafirst

Guest
Aw Tina, my heart is breaking a little for you today. I remember having my boys tested and the fear that I would have ALL my kids have CF. (((HUGS))) I know you can do this, but it SUCKS that you have to.
 
M

Mommafirst

Guest
Aw Tina, my heart is breaking a little for you today. I remember having my boys tested and the fear that I would have ALL my kids have CF. (((HUGS))) I know you can do this, but it SUCKS that you have to.
 
M

Mommafirst

Guest
Aw Tina, my heart is breaking a little for you today. I remember having my boys tested and the fear that I would have ALL my kids have CF. (((HUGS))) I know you can do this, but it SUCKS that you have to.
 

holmfamily1992

New member
With Dylan,our biggest problem is his weight. After they started all his meds all the lung issues seem to disappear. Whew! He scared us a couple of times last fall and I really really really dont want to go through that again.

As for my oldest son, he really never has presented any symptoms other than sinus allergies. Those are really bad for him. He is going to be 20 years old this August and I think it hit him a little harder than expected. But he has a girlfriend of 3 years and they have talked about having kids so I know whats on his mind. He is hoping that the meds will help with his sinus's. We give him as much comfort as he will allow and tell him that if he cant have children then adoption is always an option. There are so many kids out there who need a family and he would make a great dad.

Our clinic is Devos Childrens hospital in Grand Rapids. When we go back down on Wednesday I plan on talking with Dr. Schuen in regards to his staff. I love this Doctor and really dont want to have to move these kids to Ann Arbor.

Its amazing to me how much support is out there. In these past few days, I havent allowed much emotion to surface. I have always been like that. The tough one but the other day when I was talking with my daughters basketball coach, who we have know for a while now, and he offers his home to our children if we ever need to make an emergency run, then it just hit me like a ton of bricks. It took all I had to stay calm on the phone.

You guys here are amazing and I am finding that its making this a little easier. My daughters basketball coach told us that B-ball should be the least of our concerns right now.. I chuckled at him and told him it wasnt that simple. My kids live for their sports. Bottom line. He told us that because she has team camp next week in a town that is about 30 minutes from us. She plays 3 games a day on Monday, Tuesday, and Wednesday. She will go Monday as planned and will play only the first 2 games on Tuesday and wont be there on Wednesday. Her coach told us that he would bring her to us so we wouldnt have to drive that extra hour. But he also said that would shouldnt worry about basketball right now. HAH...not going to happen. Its our life also. They are really good at what they do and thats because of their commitment to everything they do.

Thank you again,
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
With Dylan,our biggest problem is his weight. After they started all his meds all the lung issues seem to disappear. Whew! He scared us a couple of times last fall and I really really really dont want to go through that again.

As for my oldest son, he really never has presented any symptoms other than sinus allergies. Those are really bad for him. He is going to be 20 years old this August and I think it hit him a little harder than expected. But he has a girlfriend of 3 years and they have talked about having kids so I know whats on his mind. He is hoping that the meds will help with his sinus's. We give him as much comfort as he will allow and tell him that if he cant have children then adoption is always an option. There are so many kids out there who need a family and he would make a great dad.

Our clinic is Devos Childrens hospital in Grand Rapids. When we go back down on Wednesday I plan on talking with Dr. Schuen in regards to his staff. I love this Doctor and really dont want to have to move these kids to Ann Arbor.

Its amazing to me how much support is out there. In these past few days, I havent allowed much emotion to surface. I have always been like that. The tough one but the other day when I was talking with my daughters basketball coach, who we have know for a while now, and he offers his home to our children if we ever need to make an emergency run, then it just hit me like a ton of bricks. It took all I had to stay calm on the phone.

You guys here are amazing and I am finding that its making this a little easier. My daughters basketball coach told us that B-ball should be the least of our concerns right now.. I chuckled at him and told him it wasnt that simple. My kids live for their sports. Bottom line. He told us that because she has team camp next week in a town that is about 30 minutes from us. She plays 3 games a day on Monday, Tuesday, and Wednesday. She will go Monday as planned and will play only the first 2 games on Tuesday and wont be there on Wednesday. Her coach told us that he would bring her to us so we wouldnt have to drive that extra hour. But he also said that would shouldnt worry about basketball right now. HAH...not going to happen. Its our life also. They are really good at what they do and thats because of their commitment to everything they do.

Thank you again,
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
With Dylan,our biggest problem is his weight. After they started all his meds all the lung issues seem to disappear. Whew! He scared us a couple of times last fall and I really really really dont want to go through that again.

As for my oldest son, he really never has presented any symptoms other than sinus allergies. Those are really bad for him. He is going to be 20 years old this August and I think it hit him a little harder than expected. But he has a girlfriend of 3 years and they have talked about having kids so I know whats on his mind. He is hoping that the meds will help with his sinus's. We give him as much comfort as he will allow and tell him that if he cant have children then adoption is always an option. There are so many kids out there who need a family and he would make a great dad.

Our clinic is Devos Childrens hospital in Grand Rapids. When we go back down on Wednesday I plan on talking with Dr. Schuen in regards to his staff. I love this Doctor and really dont want to have to move these kids to Ann Arbor.

Its amazing to me how much support is out there. In these past few days, I havent allowed much emotion to surface. I have always been like that. The tough one but the other day when I was talking with my daughters basketball coach, who we have know for a while now, and he offers his home to our children if we ever need to make an emergency run, then it just hit me like a ton of bricks. It took all I had to stay calm on the phone.

You guys here are amazing and I am finding that its making this a little easier. My daughters basketball coach told us that B-ball should be the least of our concerns right now.. I chuckled at him and told him it wasnt that simple. My kids live for their sports. Bottom line. He told us that because she has team camp next week in a town that is about 30 minutes from us. She plays 3 games a day on Monday, Tuesday, and Wednesday. She will go Monday as planned and will play only the first 2 games on Tuesday and wont be there on Wednesday. Her coach told us that he would bring her to us so we wouldnt have to drive that extra hour. But he also said that would shouldnt worry about basketball right now. HAH...not going to happen. Its our life also. They are really good at what they do and thats because of their commitment to everything they do.

Thank you again,
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
With Dylan,our biggest problem is his weight. After they started all his meds all the lung issues seem to disappear. Whew! He scared us a couple of times last fall and I really really really dont want to go through that again.

As for my oldest son, he really never has presented any symptoms other than sinus allergies. Those are really bad for him. He is going to be 20 years old this August and I think it hit him a little harder than expected. But he has a girlfriend of 3 years and they have talked about having kids so I know whats on his mind. He is hoping that the meds will help with his sinus's. We give him as much comfort as he will allow and tell him that if he cant have children then adoption is always an option. There are so many kids out there who need a family and he would make a great dad.

Our clinic is Devos Childrens hospital in Grand Rapids. When we go back down on Wednesday I plan on talking with Dr. Schuen in regards to his staff. I love this Doctor and really dont want to have to move these kids to Ann Arbor.

Its amazing to me how much support is out there. In these past few days, I havent allowed much emotion to surface. I have always been like that. The tough one but the other day when I was talking with my daughters basketball coach, who we have know for a while now, and he offers his home to our children if we ever need to make an emergency run, then it just hit me like a ton of bricks. It took all I had to stay calm on the phone.

You guys here are amazing and I am finding that its making this a little easier. My daughters basketball coach told us that B-ball should be the least of our concerns right now.. I chuckled at him and told him it wasnt that simple. My kids live for their sports. Bottom line. He told us that because she has team camp next week in a town that is about 30 minutes from us. She plays 3 games a day on Monday, Tuesday, and Wednesday. She will go Monday as planned and will play only the first 2 games on Tuesday and wont be there on Wednesday. Her coach told us that he would bring her to us so we wouldnt have to drive that extra hour. But he also said that would shouldnt worry about basketball right now. HAH...not going to happen. Its our life also. They are really good at what they do and thats because of their commitment to everything they do.

Thank you again,
Tina

<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
With Dylan,our biggest problem is his weight. After they started all his meds all the lung issues seem to disappear. Whew! He scared us a couple of times last fall and I really really really dont want to go through that again.
<br />
<br />As for my oldest son, he really never has presented any symptoms other than sinus allergies. Those are really bad for him. He is going to be 20 years old this August and I think it hit him a little harder than expected. But he has a girlfriend of 3 years and they have talked about having kids so I know whats on his mind. He is hoping that the meds will help with his sinus's. We give him as much comfort as he will allow and tell him that if he cant have children then adoption is always an option. There are so many kids out there who need a family and he would make a great dad.
<br />
<br />Our clinic is Devos Childrens hospital in Grand Rapids. When we go back down on Wednesday I plan on talking with Dr. Schuen in regards to his staff. I love this Doctor and really dont want to have to move these kids to Ann Arbor.
<br />
<br />Its amazing to me how much support is out there. In these past few days, I havent allowed much emotion to surface. I have always been like that. The tough one but the other day when I was talking with my daughters basketball coach, who we have know for a while now, and he offers his home to our children if we ever need to make an emergency run, then it just hit me like a ton of bricks. It took all I had to stay calm on the phone.
<br />
<br />You guys here are amazing and I am finding that its making this a little easier. My daughters basketball coach told us that B-ball should be the least of our concerns right now.. I chuckled at him and told him it wasnt that simple. My kids live for their sports. Bottom line. He told us that because she has team camp next week in a town that is about 30 minutes from us. She plays 3 games a day on Monday, Tuesday, and Wednesday. She will go Monday as planned and will play only the first 2 games on Tuesday and wont be there on Wednesday. Her coach told us that he would bring her to us so we wouldnt have to drive that extra hour. But he also said that would shouldnt worry about basketball right now. HAH...not going to happen. Its our life also. They are really good at what they do and thats because of their commitment to everything they do.
<br />
<br />Thank you again,
<br />Tina
<br />
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

BabyBeauty

New member
Tina,

I am with you on the sports thing! I am glad she will get to play! I remember when I was sick in high school (stomach issues) and I was missing a lot of school, I had a soccer tournament that I wanted to go to. The dr recommended I shouldn't go, my mother fought and I went. I appreciated going and will always remember that tournament!

I am glad you have support around you, but do know it is okay to let go sometimes! Don't bottle it all up, you will drive yourself crazy!
 

BabyBeauty

New member
Tina,

I am with you on the sports thing! I am glad she will get to play! I remember when I was sick in high school (stomach issues) and I was missing a lot of school, I had a soccer tournament that I wanted to go to. The dr recommended I shouldn't go, my mother fought and I went. I appreciated going and will always remember that tournament!

I am glad you have support around you, but do know it is okay to let go sometimes! Don't bottle it all up, you will drive yourself crazy!
 

BabyBeauty

New member
Tina,

I am with you on the sports thing! I am glad she will get to play! I remember when I was sick in high school (stomach issues) and I was missing a lot of school, I had a soccer tournament that I wanted to go to. The dr recommended I shouldn't go, my mother fought and I went. I appreciated going and will always remember that tournament!

I am glad you have support around you, but do know it is okay to let go sometimes! Don't bottle it all up, you will drive yourself crazy!
 

BabyBeauty

New member
Tina,

I am with you on the sports thing! I am glad she will get to play! I remember when I was sick in high school (stomach issues) and I was missing a lot of school, I had a soccer tournament that I wanted to go to. The dr recommended I shouldn't go, my mother fought and I went. I appreciated going and will always remember that tournament!

I am glad you have support around you, but do know it is okay to let go sometimes! Don't bottle it all up, you will drive yourself crazy!
 

BabyBeauty

New member
Tina,
<br />
<br />I am with you on the sports thing! I am glad she will get to play! I remember when I was sick in high school (stomach issues) and I was missing a lot of school, I had a soccer tournament that I wanted to go to. The dr recommended I shouldn't go, my mother fought and I went. I appreciated going and will always remember that tournament!
<br />
<br />I am glad you have support around you, but do know it is okay to let go sometimes! Don't bottle it all up, you will drive yourself crazy!
 

holmfamily1992

New member
Its very hard for me to take anything my kids like to do away. And I swore I would never do that to them if I could prevent it.

Its also very hard for me to let go because the last time I did I ended up in the hospital. Not good. They wanted to medicate me and so they did. I lost all feeling possible. I didnt care about anything. I then took myself off everything and have learned to deal with it myself. Self medicating so to speak. No drugs or alcohol no nothing. Alot of reading and research and quiet time when I can get it. My older kids have been a great help because they can see when my anxiety has reached its breaking point. My husband calls me his litte nutter butter.

Anyway, this isnt about me im sorry. Thanks for all the support!!

Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
Its very hard for me to take anything my kids like to do away. And I swore I would never do that to them if I could prevent it.

Its also very hard for me to let go because the last time I did I ended up in the hospital. Not good. They wanted to medicate me and so they did. I lost all feeling possible. I didnt care about anything. I then took myself off everything and have learned to deal with it myself. Self medicating so to speak. No drugs or alcohol no nothing. Alot of reading and research and quiet time when I can get it. My older kids have been a great help because they can see when my anxiety has reached its breaking point. My husband calls me his litte nutter butter.

Anyway, this isnt about me im sorry. Thanks for all the support!!

Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
Its very hard for me to take anything my kids like to do away. And I swore I would never do that to them if I could prevent it.

Its also very hard for me to let go because the last time I did I ended up in the hospital. Not good. They wanted to medicate me and so they did. I lost all feeling possible. I didnt care about anything. I then took myself off everything and have learned to deal with it myself. Self medicating so to speak. No drugs or alcohol no nothing. Alot of reading and research and quiet time when I can get it. My older kids have been a great help because they can see when my anxiety has reached its breaking point. My husband calls me his litte nutter butter.

Anyway, this isnt about me im sorry. Thanks for all the support!!

Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
Its very hard for me to take anything my kids like to do away. And I swore I would never do that to them if I could prevent it.

Its also very hard for me to let go because the last time I did I ended up in the hospital. Not good. They wanted to medicate me and so they did. I lost all feeling possible. I didnt care about anything. I then took myself off everything and have learned to deal with it myself. Self medicating so to speak. No drugs or alcohol no nothing. Alot of reading and research and quiet time when I can get it. My older kids have been a great help because they can see when my anxiety has reached its breaking point. My husband calls me his litte nutter butter.

Anyway, this isnt about me im sorry. Thanks for all the support!!

Tina
<img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 

holmfamily1992

New member
Its very hard for me to take anything my kids like to do away. And I swore I would never do that to them if I could prevent it.
<br />
<br />Its also very hard for me to let go because the last time I did I ended up in the hospital. Not good. They wanted to medicate me and so they did. I lost all feeling possible. I didnt care about anything. I then took myself off everything and have learned to deal with it myself. Self medicating so to speak. No drugs or alcohol no nothing. Alot of reading and research and quiet time when I can get it. My older kids have been a great help because they can see when my anxiety has reached its breaking point. My husband calls me his litte nutter butter.
<br />
<br />Anyway, this isnt about me im sorry. Thanks for all the support!!
<br />
<br />Tina
<br /><img src="http://i284.photobucket.com/albums/ll15/holmfamiy/family-1.jpg">
 
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