Piper, I did contact "lower" in the CFF and was told that for the nature of my proposal, it needed to go to the CEO (I started here with my local chapter).
Entropy, I totally disagree that someone who REALLY has a passion for it should do it for free. That's just idiotic. We all have to live and pay our bills. However, I do find it absolutely disgusting that the CEO of the CFF makes what he does. No offense, but I could do his job with my freaking eyes closed, and I'd be happy with $80k a year. I'm a single mom raising triplets, I go to school full time, I run a household (cook, clean, laundry, education with the kids, maintain a yard...), and run a business. The fact that that man thinks he is entitled to $500k a year, and the fact that YOU ALL are putting up with it is just absurd (at least in MY opinion)
My biggest complaint with the CFF is this: They are FANTASTIC at contributing $$$$ to research, which has PROLONGED the life of countless CFers. and, I will agree that in recent years they have established some good "assistance" stuff for patients. However, I think that they need to focus more on the QUALITY of life they are creating CFers, instead of simply counting the QUANTITY. That's my soap box, and I'm not getting off it <img src="i/expressions/face-icon-small-smile.gif" border="0">