Aren't we all fighting the same fight?!?!?!

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hmw

New member
<div class="FTQUOTE"><begin quote>a person truly committed to the cause of finding a cure for CF would demand no compensation for their work.</end quote>
<br />How, exactly, do you propose someone who works full-time somewhere pay his bills if he did this for free? Could *you* work for free?
<br />
<br />I'll stay out of the salary debate when it comes to specific numbers, because I don't know enough about it. But that kind of commitment with those job qualifications with NO compensation? That is ridiculous. If the CFF doesn't want their foundation to fold someday due to poor management they need someone highly qualified to run it, and they won't get that without being competitive. Not to mention there is a big difference between your career and volunteering somewhere in your spare time.
 
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mamaScarlett

Active member
The bottom line is that none of us would be here without the CFF. Whether you realize it or not or want to admit it or not.

To Julie and others-that fact in no way takes away from the great work you are trying to do also. I wish you the best in trying to help people as selflessly as you are.
 
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mamaScarlett

Active member
The bottom line is that none of us would be here without the CFF. Whether you realize it or not or want to admit it or not.

To Julie and others-that fact in no way takes away from the great work you are trying to do also. I wish you the best in trying to help people as selflessly as you are.
 
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mamaScarlett

Active member
The bottom line is that none of us would be here without the CFF. Whether you realize it or not or want to admit it or not.
<br />
<br />To Julie and others-that fact in no way takes away from the great work you are trying to do also. I wish you the best in trying to help people as selflessly as you are.
 
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entropy

Guest
@hmw

I wouldn't work for free, no. But, the chairman of the CFF makes over 500k/year. Does that not seem excessive to you? Would someone truly devoted to the cause of forwarding CF research accept such a large income that comes straight out of donations? People don't donate to the CFF so these guys can make 500k+/year. This one man's 500k salary is 500k that DOESN'T go into CF research. It's excessive, it's obviously fueled by self-interest (one can live very comfortably off of 100k/year, for example), and it only serves to discredit the CFF. I give this analogy in support of my argument: how much would you trust a doctor who takes major kickbacks from big pharma?

There is a blatant conflict of interest in the high ranks of the CFF. I do not try to diminish the good the CFF has done, I simply try to shed light on practices which are contradictory to the original intent of the CFF and detrimental to the CF community as a whole. It has happened to many a NPO before. Hopefully it gets straightened out before it gets worse and they lose all credibility, even in the eyes of those of you who seem to fully support the CFF, even as it stands now.
 
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entropy

Guest
@hmw

I wouldn't work for free, no. But, the chairman of the CFF makes over 500k/year. Does that not seem excessive to you? Would someone truly devoted to the cause of forwarding CF research accept such a large income that comes straight out of donations? People don't donate to the CFF so these guys can make 500k+/year. This one man's 500k salary is 500k that DOESN'T go into CF research. It's excessive, it's obviously fueled by self-interest (one can live very comfortably off of 100k/year, for example), and it only serves to discredit the CFF. I give this analogy in support of my argument: how much would you trust a doctor who takes major kickbacks from big pharma?

There is a blatant conflict of interest in the high ranks of the CFF. I do not try to diminish the good the CFF has done, I simply try to shed light on practices which are contradictory to the original intent of the CFF and detrimental to the CF community as a whole. It has happened to many a NPO before. Hopefully it gets straightened out before it gets worse and they lose all credibility, even in the eyes of those of you who seem to fully support the CFF, even as it stands now.
 
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entropy

Guest
@hmw
<br />
<br />I wouldn't work for free, no. But, the chairman of the CFF makes over 500k/year. Does that not seem excessive to you? Would someone truly devoted to the cause of forwarding CF research accept such a large income that comes straight out of donations? People don't donate to the CFF so these guys can make 500k+/year. This one man's 500k salary is 500k that DOESN'T go into CF research. It's excessive, it's obviously fueled by self-interest (one can live very comfortably off of 100k/year, for example), and it only serves to discredit the CFF. I give this analogy in support of my argument: how much would you trust a doctor who takes major kickbacks from big pharma?
<br />
<br />There is a blatant conflict of interest in the high ranks of the CFF. I do not try to diminish the good the CFF has done, I simply try to shed light on practices which are contradictory to the original intent of the CFF and detrimental to the CF community as a whole. It has happened to many a NPO before. Hopefully it gets straightened out before it gets worse and they lose all credibility, even in the eyes of those of you who seem to fully support the CFF, even as it stands now.
 
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musclemania70

New member
He can earn as much as the foundation will allow. The CFF has a reputation for getting things done and getting possible drugs out of a petri dish and into our hands.

We all have to understand that despite our disease, SOME person or business is going to profit from it. Its life. Who profits from a house burning down? Do you get angry at the CEO of Allstate insurance because he makes money in salary from houses that burn down?

There is such thing as accountability and anyone can see their financial statements online at their website.
 
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musclemania70

New member
He can earn as much as the foundation will allow. The CFF has a reputation for getting things done and getting possible drugs out of a petri dish and into our hands.

We all have to understand that despite our disease, SOME person or business is going to profit from it. Its life. Who profits from a house burning down? Do you get angry at the CEO of Allstate insurance because he makes money in salary from houses that burn down?

There is such thing as accountability and anyone can see their financial statements online at their website.
 
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musclemania70

New member
He can earn as much as the foundation will allow. The CFF has a reputation for getting things done and getting possible drugs out of a petri dish and into our hands.
<br />
<br />We all have to understand that despite our disease, SOME person or business is going to profit from it. Its life. Who profits from a house burning down? Do you get angry at the CEO of Allstate insurance because he makes money in salary from houses that burn down?
<br />
<br />There is such thing as accountability and anyone can see their financial statements online at their website.
 
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hmw

New member
No, I don't believe he 'needs' to make that kind of money. However, the business world being what it is, I think the CFF is in the rather unfortunate position of having to shell out market value for a top-notch business professional to manage an organization that has as much going on as the CFF does. If you look at the CFF's annual report, they are involved in a staggering number of different activities to keep track of and given it's ALL open for public scrutiny, it's got to be done right.

I'd be curious to know, for comparison's sake, the salary that is typically drawn by someone with comparable position, responsibilities and seniority in a for-profit company with a comparable net worth.

eta> Excellent points, Musclemania. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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hmw

New member
No, I don't believe he 'needs' to make that kind of money. However, the business world being what it is, I think the CFF is in the rather unfortunate position of having to shell out market value for a top-notch business professional to manage an organization that has as much going on as the CFF does. If you look at the CFF's annual report, they are involved in a staggering number of different activities to keep track of and given it's ALL open for public scrutiny, it's got to be done right.

I'd be curious to know, for comparison's sake, the salary that is typically drawn by someone with comparable position, responsibilities and seniority in a for-profit company with a comparable net worth.

eta> Excellent points, Musclemania. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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hmw

New member
No, I don't believe he 'needs' to make that kind of money. However, the business world being what it is, I think the CFF is in the rather unfortunate position of having to shell out market value for a top-notch business professional to manage an organization that has as much going on as the CFF does. If you look at the CFF's annual report, they are involved in a staggering number of different activities to keep track of and given it's ALL open for public scrutiny, it's got to be done right.
<br />
<br />I'd be curious to know, for comparison's sake, the salary that is typically drawn by someone with comparable position, responsibilities and seniority in a for-profit company with a comparable net worth.
<br />
<br />eta> Excellent points, Musclemania. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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entropy

Guest
The CFF does good work, but they could do a lot better. And they could start by putting someone in charge who has a TRUE passion to help those afflicted with CF, not someone who is just being paid to do a job.
 
E

entropy

Guest
The CFF does good work, but they could do a lot better. And they could start by putting someone in charge who has a TRUE passion to help those afflicted with CF, not someone who is just being paid to do a job.
 
E

entropy

Guest
The CFF does good work, but they could do a lot better. And they could start by putting someone in charge who has a TRUE passion to help those afflicted with CF, not someone who is just being paid to do a job.
 
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musclemania70

New member
Entropy, you are stating your opinion about someone who ALOT of people look up to for setting a new standard in non-profit management.

You need to support your comments with facts. If you don't like someone or what they stand for, you are simply judging someone's character when you do not know him or her personally.

You need to list the facts:
*why you don't like him
*what he did to prove that he isn't passionate about CF

One cannot simply make an argument about a topic just by saying "I don't like so and so". No credibility.
 
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musclemania70

New member
Entropy, you are stating your opinion about someone who ALOT of people look up to for setting a new standard in non-profit management.

You need to support your comments with facts. If you don't like someone or what they stand for, you are simply judging someone's character when you do not know him or her personally.

You need to list the facts:
*why you don't like him
*what he did to prove that he isn't passionate about CF

One cannot simply make an argument about a topic just by saying "I don't like so and so". No credibility.
 
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musclemania70

New member
Entropy, you are stating your opinion about someone who ALOT of people look up to for setting a new standard in non-profit management.
<br />
<br />You need to support your comments with facts. If you don't like someone or what they stand for, you are simply judging someone's character when you do not know him or her personally.
<br />
<br />You need to list the facts:
<br />*why you don't like him
<br />*what he did to prove that he isn't passionate about CF
<br />
<br />One cannot simply make an argument about a topic just by saying "I don't like so and so". No credibility.
 
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