Borderline CF, i need someone relate to with CF

[JazzysMom]

Not being a guy I cant totally relate, but let me say this. Until you are out of school & an "adult" things are rough. Well actually then you trade one set of rough things for another I guess because life can be cruel in general.

People (not just kids) can be cruel especially when its regarding something they dont know about. So IMHO its up to you to educate especially if part of the teasing is from lack of it!

Anyway...I wanted to point out that CF guys arent infertile as in never able to have biological kids of their own. They do produce sperm. It just cant get from point A to point B the traditional way and requires medical intervention. BUT even if they were infertile.......THAT shouldnt define you as a human. Being a MAN is much more then being a child producer.

 

[JazzysMom]

Not being a guy I cant totally relate, but let me say this. Until you are out of school & an "adult" things are rough. Well actually then you trade one set of rough things for another I guess because life can be cruel in general.

People (not just kids) can be cruel especially when its regarding something they dont know about. So IMHO its up to you to educate especially if part of the teasing is from lack of it!

Anyway...I wanted to point out that CF guys arent infertile as in never able to have biological kids of their own. They do produce sperm. It just cant get from point A to point B the traditional way and requires medical intervention. BUT even if they were infertile.......THAT shouldnt define you as a human. Being a MAN is much more then being a child producer.

 

[JazzysMom]

Not being a guy I cant totally relate, but let me say this. Until you are out of school & an "adult" things are rough. Well actually then you trade one set of rough things for another I guess because life can be cruel in general.

People (not just kids) can be cruel especially when its regarding something they dont know about. So IMHO its up to you to educate especially if part of the teasing is from lack of it!

Anyway...I wanted to point out that CF guys arent infertile as in never able to have biological kids of their own. They do produce sperm. It just cant get from point A to point B the traditional way and requires medical intervention. BUT even if they were infertile.......THAT shouldnt define you as a human. Being a MAN is much more then being a child producer.

 

[JazzysMom]

Not being a guy I cant totally relate, but let me say this. Until you are out of school & an "adult" things are rough. Well actually then you trade one set of rough things for another I guess because life can be cruel in general.

People (not just kids) can be cruel especially when its regarding something they dont know about. So IMHO its up to you to educate especially if part of the teasing is from lack of it!

Anyway...I wanted to point out that CF guys arent infertile as in never able to have biological kids of their own. They do produce sperm. It just cant get from point A to point B the traditional way and requires medical intervention. BUT even if they were infertile.......THAT shouldnt define you as a human. Being a MAN is much more then being a child producer.

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[monkeysrock724]

Thank you for your support, just knowing that people are out there that care is something huge for me. With my CF, there are certain people that i would want to know that i have CF and some that i don't want to know. Not because i don't like some people and don't want them to know, but because it's my personal issues and i don't want people to judge me. I think that some of my friends do kid around with me having CF because the don't know what to do to get over the awkwardness and they don't understand what CF really is.

But relating to the infertility issue, my doctor was explaining to me how i could have biological children, but i want to have a kid the natural way and not a scientific way.

i posted this last night and to know that 4 people have already responded gave me the chills and made my day. I live one day at a time and i won't let this horrible disease take over/rule my life.

Is there anyone else here with Borderline CF? Im just curious as i have never met someone with CF let alone borderline CF.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[KatieNC]

I have CF, but I guess you could call it borderline. My PFT's are still at 100% and I lead a relatively normal life. Although I was diagnosed at birth, my good health (which I am amazingly thankful for!) made me want to skip doing medicine a lot in high school. It was so hard trying to be "normal" and not let people know. You can keep your CF borderline if you dive in now, do your meds everyday! For a while, doing meds made me feel psychologically more "sickly," being attached to a machine was so hard for me. But now I look at it as a bank account, every time I do my meds, I bank up more time that I will have later in life with my family; precious moments. So hang in there. I think it is so comforting to hear from other people who have CF, we all go through the same struggles everyday!

 

[NoExcuses]

Just a quite note from a CFer with normal lung function (FEV1 = 100%) - I'm 26.

You either have 2 CF genes or you don't. No such thing as borderline CF.

As you know, CF presents itself in many different ways in different people. Doing your treatments as you are (good job) is very smart, despite your CF status right now.

You're not a lone, that's for sure.

 

[NoExcuses]

Just a quite note from a CFer with normal lung function (FEV1 = 100%) - I'm 26.

You either have 2 CF genes or you don't. No such thing as borderline CF.

As you know, CF presents itself in many different ways in different people. Doing your treatments as you are (good job) is very smart, despite your CF status right now.

You're not a lone, that's for sure.

 

[NoExcuses]

Just a quite note from a CFer with normal lung function (FEV1 = 100%) - I'm 26.

You either have 2 CF genes or you don't. No such thing as borderline CF.

As you know, CF presents itself in many different ways in different people. Doing your treatments as you are (good job) is very smart, despite your CF status right now.

You're not a lone, that's for sure.

 

[NoExcuses]

Just a quite note from a CFer with normal lung function (FEV1 = 100%) - I'm 26.

You either have 2 CF genes or you don't. No such thing as borderline CF.

As you know, CF presents itself in many different ways in different people. Doing your treatments as you are (good job) is very smart, despite your CF status right now.

You're not a lone, that's for sure.