CF and Pregnancy: It's Do-able, but it's still a high-risk proposition for many women

J

JazzysMom

New member
Odds of a Successful Pregnancy

I am with AnD on this one. I also am interested in knowing how much of the statistics is based on first time pregnancy (full term or miscarriage &/or additional pregnancies (full term or miscarriage).

This of course would require the same info on pfts etc that AnD mentioned, but comparetvely speaking.
 
J

JazzysMom

New member
Odds of a Successful Pregnancy

I am with AnD on this one. I also am interested in knowing how much of the statistics is based on first time pregnancy (full term or miscarriage &/or additional pregnancies (full term or miscarriage).

This of course would require the same info on pfts etc that AnD mentioned, but comparetvely speaking.
 
J

JazzysMom

New member
Odds of a Successful Pregnancy

I am with AnD on this one. I also am interested in knowing how much of the statistics is based on first time pregnancy (full term or miscarriage &/or additional pregnancies (full term or miscarriage).

This of course would require the same info on pfts etc that AnD mentioned, but comparetvely speaking.
 
J

JazzysMom

New member
Odds of a Successful Pregnancy

I am with AnD on this one. I also am interested in knowing how much of the statistics is based on first time pregnancy (full term or miscarriage &/or additional pregnancies (full term or miscarriage).

This of course would require the same info on pfts etc that AnD mentioned, but comparetvely speaking.
 
J

JazzysMom

New member
Odds of a Successful Pregnancy

I am with AnD on this one. I also am interested in knowing how much of the statistics is based on first time pregnancy (full term or miscarriage &/or additional pregnancies (full term or miscarriage).

This of course would require the same info on pfts etc that AnD mentioned, but comparetvely speaking.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

Lauren

Where did you get the 8% from? I get 84%. Those numbers are ONLY from the Seattle clinic. So I think 36 live births from 43 pregnancies is pretty good. So what if its 3 per year - again, we're only talking about seattle.

I am also a scientist and a researcher (though my focus is wildlife biology) and my conclusions are vastly different from yours.

There is a lot of debate and unknowns regarding miscarriages. Sure some women w/ CF who get pregnant will miscarry due to their nutritional status or whatnot. But why discourage a healthy woman with good nutrition and pulmonary function from getting pregnant? I just don't see it. All the studies I've read (and I've read lots) say that pregnancy in healthy CF women can be successful and has no bearing on their decline due to CF. Miscarriages can happen to anyone for a variety of reasons and most of them I'm willing to bet are not only found in CF women.

Any rational CF woman looking to get pregnant would take a look at the drugs she's taking to make sure they're compatible with pregnancy. If she's taking NSAIDs then she'll most likely find an alternative to take for the duration of the pregnancy. Can you tell me what study you've read or what data you're using to come up with your assertion that "CF women are not healthy enough to sustain a pregnancy"??? I'm very curious and I want to read it for myself.

When we're debating facts and statistics as we're doing here, it severs no purpose to make offensive statements like "do the responsible thing and not procreate". You have to know that you will be debating CF MOMS here and those kind of words do not serve your cause because it will only put people on the defensive or discredit your argument. I have said before that I think its GREAT that you've chosen not to have children - that is the right choice for you. And nobody should question that. You and your husband have the right to make choices that you feel are in your best interest. So do my husband and I.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

Lauren

Where did you get the 8% from? I get 84%. Those numbers are ONLY from the Seattle clinic. So I think 36 live births from 43 pregnancies is pretty good. So what if its 3 per year - again, we're only talking about seattle.

I am also a scientist and a researcher (though my focus is wildlife biology) and my conclusions are vastly different from yours.

There is a lot of debate and unknowns regarding miscarriages. Sure some women w/ CF who get pregnant will miscarry due to their nutritional status or whatnot. But why discourage a healthy woman with good nutrition and pulmonary function from getting pregnant? I just don't see it. All the studies I've read (and I've read lots) say that pregnancy in healthy CF women can be successful and has no bearing on their decline due to CF. Miscarriages can happen to anyone for a variety of reasons and most of them I'm willing to bet are not only found in CF women.

Any rational CF woman looking to get pregnant would take a look at the drugs she's taking to make sure they're compatible with pregnancy. If she's taking NSAIDs then she'll most likely find an alternative to take for the duration of the pregnancy. Can you tell me what study you've read or what data you're using to come up with your assertion that "CF women are not healthy enough to sustain a pregnancy"??? I'm very curious and I want to read it for myself.

When we're debating facts and statistics as we're doing here, it severs no purpose to make offensive statements like "do the responsible thing and not procreate". You have to know that you will be debating CF MOMS here and those kind of words do not serve your cause because it will only put people on the defensive or discredit your argument. I have said before that I think its GREAT that you've chosen not to have children - that is the right choice for you. And nobody should question that. You and your husband have the right to make choices that you feel are in your best interest. So do my husband and I.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

Lauren

Where did you get the 8% from? I get 84%. Those numbers are ONLY from the Seattle clinic. So I think 36 live births from 43 pregnancies is pretty good. So what if its 3 per year - again, we're only talking about seattle.

I am also a scientist and a researcher (though my focus is wildlife biology) and my conclusions are vastly different from yours.

There is a lot of debate and unknowns regarding miscarriages. Sure some women w/ CF who get pregnant will miscarry due to their nutritional status or whatnot. But why discourage a healthy woman with good nutrition and pulmonary function from getting pregnant? I just don't see it. All the studies I've read (and I've read lots) say that pregnancy in healthy CF women can be successful and has no bearing on their decline due to CF. Miscarriages can happen to anyone for a variety of reasons and most of them I'm willing to bet are not only found in CF women.

Any rational CF woman looking to get pregnant would take a look at the drugs she's taking to make sure they're compatible with pregnancy. If she's taking NSAIDs then she'll most likely find an alternative to take for the duration of the pregnancy. Can you tell me what study you've read or what data you're using to come up with your assertion that "CF women are not healthy enough to sustain a pregnancy"??? I'm very curious and I want to read it for myself.

When we're debating facts and statistics as we're doing here, it severs no purpose to make offensive statements like "do the responsible thing and not procreate". You have to know that you will be debating CF MOMS here and those kind of words do not serve your cause because it will only put people on the defensive or discredit your argument. I have said before that I think its GREAT that you've chosen not to have children - that is the right choice for you. And nobody should question that. You and your husband have the right to make choices that you feel are in your best interest. So do my husband and I.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

Lauren

Where did you get the 8% from? I get 84%. Those numbers are ONLY from the Seattle clinic. So I think 36 live births from 43 pregnancies is pretty good. So what if its 3 per year - again, we're only talking about seattle.

I am also a scientist and a researcher (though my focus is wildlife biology) and my conclusions are vastly different from yours.

There is a lot of debate and unknowns regarding miscarriages. Sure some women w/ CF who get pregnant will miscarry due to their nutritional status or whatnot. But why discourage a healthy woman with good nutrition and pulmonary function from getting pregnant? I just don't see it. All the studies I've read (and I've read lots) say that pregnancy in healthy CF women can be successful and has no bearing on their decline due to CF. Miscarriages can happen to anyone for a variety of reasons and most of them I'm willing to bet are not only found in CF women.

Any rational CF woman looking to get pregnant would take a look at the drugs she's taking to make sure they're compatible with pregnancy. If she's taking NSAIDs then she'll most likely find an alternative to take for the duration of the pregnancy. Can you tell me what study you've read or what data you're using to come up with your assertion that "CF women are not healthy enough to sustain a pregnancy"??? I'm very curious and I want to read it for myself.

When we're debating facts and statistics as we're doing here, it severs no purpose to make offensive statements like "do the responsible thing and not procreate". You have to know that you will be debating CF MOMS here and those kind of words do not serve your cause because it will only put people on the defensive or discredit your argument. I have said before that I think its GREAT that you've chosen not to have children - that is the right choice for you. And nobody should question that. You and your husband have the right to make choices that you feel are in your best interest. So do my husband and I.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

Lauren

Where did you get the 8% from? I get 84%. Those numbers are ONLY from the Seattle clinic. So I think 36 live births from 43 pregnancies is pretty good. So what if its 3 per year - again, we're only talking about seattle.

I am also a scientist and a researcher (though my focus is wildlife biology) and my conclusions are vastly different from yours.

There is a lot of debate and unknowns regarding miscarriages. Sure some women w/ CF who get pregnant will miscarry due to their nutritional status or whatnot. But why discourage a healthy woman with good nutrition and pulmonary function from getting pregnant? I just don't see it. All the studies I've read (and I've read lots) say that pregnancy in healthy CF women can be successful and has no bearing on their decline due to CF. Miscarriages can happen to anyone for a variety of reasons and most of them I'm willing to bet are not only found in CF women.

Any rational CF woman looking to get pregnant would take a look at the drugs she's taking to make sure they're compatible with pregnancy. If she's taking NSAIDs then she'll most likely find an alternative to take for the duration of the pregnancy. Can you tell me what study you've read or what data you're using to come up with your assertion that "CF women are not healthy enough to sustain a pregnancy"??? I'm very curious and I want to read it for myself.

When we're debating facts and statistics as we're doing here, it severs no purpose to make offensive statements like "do the responsible thing and not procreate". You have to know that you will be debating CF MOMS here and those kind of words do not serve your cause because it will only put people on the defensive or discredit your argument. I have said before that I think its GREAT that you've chosen not to have children - that is the right choice for you. And nobody should question that. You and your husband have the right to make choices that you feel are in your best interest. So do my husband and I.
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I'm not really sure where you got your statistics but they are REALLY OFF. I know that my clinic alone has already birthed 6 babies to CF moms this year, and last year they did 4(this is an off center from lsu). Thats not counting the few extra seen AT LSU. I know at Vanderbilt there were 3 preggo women there (of whom I kept i touch with) and they all had there babies and are doing great. The next thing is In 2002 there were 156 LIVE births REPORTED born to women with CF.

Also yes I have had a miscarrige, HOWEVER to say it was related to CF is not accuate. They CAN NOT pin point why a women has miscarried. Mine is suspectly linked to my bicoruate uterus and the placenta inplanted on the horn which led to an unsuccessful pregnancy.
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I'm not really sure where you got your statistics but they are REALLY OFF. I know that my clinic alone has already birthed 6 babies to CF moms this year, and last year they did 4(this is an off center from lsu). Thats not counting the few extra seen AT LSU. I know at Vanderbilt there were 3 preggo women there (of whom I kept i touch with) and they all had there babies and are doing great. The next thing is In 2002 there were 156 LIVE births REPORTED born to women with CF.

Also yes I have had a miscarrige, HOWEVER to say it was related to CF is not accuate. They CAN NOT pin point why a women has miscarried. Mine is suspectly linked to my bicoruate uterus and the placenta inplanted on the horn which led to an unsuccessful pregnancy.
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I'm not really sure where you got your statistics but they are REALLY OFF. I know that my clinic alone has already birthed 6 babies to CF moms this year, and last year they did 4(this is an off center from lsu). Thats not counting the few extra seen AT LSU. I know at Vanderbilt there were 3 preggo women there (of whom I kept i touch with) and they all had there babies and are doing great. The next thing is In 2002 there were 156 LIVE births REPORTED born to women with CF.

Also yes I have had a miscarrige, HOWEVER to say it was related to CF is not accuate. They CAN NOT pin point why a women has miscarried. Mine is suspectly linked to my bicoruate uterus and the placenta inplanted on the horn which led to an unsuccessful pregnancy.
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I'm not really sure where you got your statistics but they are REALLY OFF. I know that my clinic alone has already birthed 6 babies to CF moms this year, and last year they did 4(this is an off center from lsu). Thats not counting the few extra seen AT LSU. I know at Vanderbilt there were 3 preggo women there (of whom I kept i touch with) and they all had there babies and are doing great. The next thing is In 2002 there were 156 LIVE births REPORTED born to women with CF.

Also yes I have had a miscarrige, HOWEVER to say it was related to CF is not accuate. They CAN NOT pin point why a women has miscarried. Mine is suspectly linked to my bicoruate uterus and the placenta inplanted on the horn which led to an unsuccessful pregnancy.
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I'm not really sure where you got your statistics but they are REALLY OFF. I know that my clinic alone has already birthed 6 babies to CF moms this year, and last year they did 4(this is an off center from lsu). Thats not counting the few extra seen AT LSU. I know at Vanderbilt there were 3 preggo women there (of whom I kept i touch with) and they all had there babies and are doing great. The next thing is In 2002 there were 156 LIVE births REPORTED born to women with CF.

Also yes I have had a miscarrige, HOWEVER to say it was related to CF is not accuate. They CAN NOT pin point why a women has miscarried. Mine is suspectly linked to my bicoruate uterus and the placenta inplanted on the horn which led to an unsuccessful pregnancy.
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

I can see both sides of this. It depends highly on the individual, what drugs they're on, what shape they're in, etc. But as a <b>general</b> rule, CF women who are showing CF symptoms (as opposed to people who have been, for instance, dx as adults, or have 100+% PFTs) do have more trouble.

For some it's worth it. For others it's not. But I have heard more than once of a case where a CF woman gave birth and died within the next few years, because the pregnancy made her health go to sh*t.

Women who have CF symptoms can't paint all of us with the brush that "pregnancy will kill you" and women who are in damn good shape can't paint all of us with the brush that "pregnancy is no more dangerous than it is for any normal woman."
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

I can see both sides of this. It depends highly on the individual, what drugs they're on, what shape they're in, etc. But as a <b>general</b> rule, CF women who are showing CF symptoms (as opposed to people who have been, for instance, dx as adults, or have 100+% PFTs) do have more trouble.

For some it's worth it. For others it's not. But I have heard more than once of a case where a CF woman gave birth and died within the next few years, because the pregnancy made her health go to sh*t.

Women who have CF symptoms can't paint all of us with the brush that "pregnancy will kill you" and women who are in damn good shape can't paint all of us with the brush that "pregnancy is no more dangerous than it is for any normal woman."
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

I can see both sides of this. It depends highly on the individual, what drugs they're on, what shape they're in, etc. But as a <b>general</b> rule, CF women who are showing CF symptoms (as opposed to people who have been, for instance, dx as adults, or have 100+% PFTs) do have more trouble.

For some it's worth it. For others it's not. But I have heard more than once of a case where a CF woman gave birth and died within the next few years, because the pregnancy made her health go to sh*t.

Women who have CF symptoms can't paint all of us with the brush that "pregnancy will kill you" and women who are in damn good shape can't paint all of us with the brush that "pregnancy is no more dangerous than it is for any normal woman."
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

I can see both sides of this. It depends highly on the individual, what drugs they're on, what shape they're in, etc. But as a <b>general</b> rule, CF women who are showing CF symptoms (as opposed to people who have been, for instance, dx as adults, or have 100+% PFTs) do have more trouble.

For some it's worth it. For others it's not. But I have heard more than once of a case where a CF woman gave birth and died within the next few years, because the pregnancy made her health go to sh*t.

Women who have CF symptoms can't paint all of us with the brush that "pregnancy will kill you" and women who are in damn good shape can't paint all of us with the brush that "pregnancy is no more dangerous than it is for any normal woman."
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

I can see both sides of this. It depends highly on the individual, what drugs they're on, what shape they're in, etc. But as a <b>general</b> rule, CF women who are showing CF symptoms (as opposed to people who have been, for instance, dx as adults, or have 100+% PFTs) do have more trouble.

For some it's worth it. For others it's not. But I have heard more than once of a case where a CF woman gave birth and died within the next few years, because the pregnancy made her health go to sh*t.

Women who have CF symptoms can't paint all of us with the brush that "pregnancy will kill you" and women who are in damn good shape can't paint all of us with the brush that "pregnancy is no more dangerous than it is for any normal woman."
 
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