CF and Pregnancy: It's Do-able, but it's still a high-risk proposition for many women

[jbrandonAW]

Odds of a Successful Pregnancy

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.

 

[jbrandonAW]

Odds of a Successful Pregnancy

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.

 

[jbrandonAW]

Odds of a Successful Pregnancy

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.

 

[jbrandonAW]

Odds of a Successful Pregnancy

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.

 

[jbrandonAW]

Odds of a Successful Pregnancy

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.

 

[Keepercjr]

Odds of a Successful Pregnancy

AnD

I actually think the 1.9 births per 100 women actually means the entire CF woman population. Notice it didn't say 1.9 births per 196 pregnancies.

And I agree about having to register. You can decline to be included in the CFF patient report. I believe I have to sign a paper every year for that. There are lots of CFers who don't go to an accredited CF center so their information will not be included.

 

[Keepercjr]

Odds of a Successful Pregnancy

AnD

I actually think the 1.9 births per 100 women actually means the entire CF woman population. Notice it didn't say 1.9 births per 196 pregnancies.

And I agree about having to register. You can decline to be included in the CFF patient report. I believe I have to sign a paper every year for that. There are lots of CFers who don't go to an accredited CF center so their information will not be included.

 

[Keepercjr]

Odds of a Successful Pregnancy

AnD

I actually think the 1.9 births per 100 women actually means the entire CF woman population. Notice it didn't say 1.9 births per 196 pregnancies.

And I agree about having to register. You can decline to be included in the CFF patient report. I believe I have to sign a paper every year for that. There are lots of CFers who don't go to an accredited CF center so their information will not be included.

 

[Keepercjr]

Odds of a Successful Pregnancy

AnD

I actually think the 1.9 births per 100 women actually means the entire CF woman population. Notice it didn't say 1.9 births per 196 pregnancies.

And I agree about having to register. You can decline to be included in the CFF patient report. I believe I have to sign a paper every year for that. There are lots of CFers who don't go to an accredited CF center so their information will not be included.

 

[Keepercjr]

Odds of a Successful Pregnancy

AnD

I actually think the 1.9 births per 100 women actually means the entire CF woman population. Notice it didn't say 1.9 births per 196 pregnancies.

And I agree about having to register. You can decline to be included in the CFF patient report. I believe I have to sign a paper every year for that. There are lots of CFers who don't go to an accredited CF center so their information will not be included.

 

[Emily65Roses]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

I can't prove it was due to pregnancy anymore than you can prove it was the aftermath. I say the odds are fair it was equally both. Just because the pregnancies in your clinic worked out well or your doc says your woman are fine doesn't mean it's the same around the country, or the entire world, for that matter.

 

[Emily65Roses]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

I can't prove it was due to pregnancy anymore than you can prove it was the aftermath. I say the odds are fair it was equally both. Just because the pregnancies in your clinic worked out well or your doc says your woman are fine doesn't mean it's the same around the country, or the entire world, for that matter.

 

[Emily65Roses]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

I can't prove it was due to pregnancy anymore than you can prove it was the aftermath. I say the odds are fair it was equally both. Just because the pregnancies in your clinic worked out well or your doc says your woman are fine doesn't mean it's the same around the country, or the entire world, for that matter.

 

[Emily65Roses]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote>

I can't prove it was due to pregnancy anymore than you can prove it was the aftermath. I say the odds are fair it was equally both. Just because the pregnancies in your clinic worked out well or your doc says your woman are fine doesn't mean it's the same around the country, or the entire world, for that matter.

 

[Emily65Roses]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>
the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.

My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote>

I can't prove it was due to pregnancy anymore than you can prove it was the aftermath. I say the odds are fair it was equally both. Just because the pregnancies in your clinic worked out well or your doc says your woman are fine doesn't mean it's the same around the country, or the entire world, for that matter.

 

[Keepercjr]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.



My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

Anecdotally - My PFTs are better now than they were when I got pregnant with my son over 3 years ago. And my CF doc told me that in her experience, women with CF actually do better while pregnant because they take better care of themselves.


As far as woman dying after having a baby - I'm sure it happens. But the thing to look at is what was their health beforehand? Tragedy happens and sometimes things happen that you can't see coming. Knowing that some women have died after having babies is an emotional issue but what we also need to know is how many have died vs how many have lived and didn't have a decline due to pregnancy. I'm sure the odds of dying after having a baby are quite small. For some, any risk of affecting your health, no matter how small, is not worth it. For others, a small fraction of a percent chance is not going to affect their decision to have kids. We calculate costs and benefits everyday - is it worth it to go to the mall where sick people may have touched the door handle? Is it worth it work or go to school which may in turn negatively impact our health? I don't know. For me I can't live my life worried that every action I take is going to get me sick or kill me. I can look at all the information gathered so far and make an informed choice that I feel fairly takes into account the risks and benefits and decide which one is more important.

 

[Keepercjr]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.



My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

Anecdotally - My PFTs are better now than they were when I got pregnant with my son over 3 years ago. And my CF doc told me that in her experience, women with CF actually do better while pregnant because they take better care of themselves.


As far as woman dying after having a baby - I'm sure it happens. But the thing to look at is what was their health beforehand? Tragedy happens and sometimes things happen that you can't see coming. Knowing that some women have died after having babies is an emotional issue but what we also need to know is how many have died vs how many have lived and didn't have a decline due to pregnancy. I'm sure the odds of dying after having a baby are quite small. For some, any risk of affecting your health, no matter how small, is not worth it. For others, a small fraction of a percent chance is not going to affect their decision to have kids. We calculate costs and benefits everyday - is it worth it to go to the mall where sick people may have touched the door handle? Is it worth it work or go to school which may in turn negatively impact our health? I don't know. For me I can't live my life worried that every action I take is going to get me sick or kill me. I can look at all the information gathered so far and make an informed choice that I feel fairly takes into account the risks and benefits and decide which one is more important.

 

[Keepercjr]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.



My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote></div>

Anecdotally - My PFTs are better now than they were when I got pregnant with my son over 3 years ago. And my CF doc told me that in her experience, women with CF actually do better while pregnant because they take better care of themselves.


As far as woman dying after having a baby - I'm sure it happens. But the thing to look at is what was their health beforehand? Tragedy happens and sometimes things happen that you can't see coming. Knowing that some women have died after having babies is an emotional issue but what we also need to know is how many have died vs how many have lived and didn't have a decline due to pregnancy. I'm sure the odds of dying after having a baby are quite small. For some, any risk of affecting your health, no matter how small, is not worth it. For others, a small fraction of a percent chance is not going to affect their decision to have kids. We calculate costs and benefits everyday - is it worth it to go to the mall where sick people may have touched the door handle? Is it worth it work or go to school which may in turn negatively impact our health? I don't know. For me I can't live my life worried that every action I take is going to get me sick or kill me. I can look at all the information gathered so far and make an informed choice that I feel fairly takes into account the risks and benefits and decide which one is more important.

 

[Keepercjr]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.



My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote>

Anecdotally - My PFTs are better now than they were when I got pregnant with my son over 3 years ago. And my CF doc told me that in her experience, women with CF actually do better while pregnant because they take better care of themselves.


As far as woman dying after having a baby - I'm sure it happens. But the thing to look at is what was their health beforehand? Tragedy happens and sometimes things happen that you can't see coming. Knowing that some women have died after having babies is an emotional issue but what we also need to know is how many have died vs how many have lived and didn't have a decline due to pregnancy. I'm sure the odds of dying after having a baby are quite small. For some, any risk of affecting your health, no matter how small, is not worth it. For others, a small fraction of a percent chance is not going to affect their decision to have kids. We calculate costs and benefits everyday - is it worth it to go to the mall where sick people may have touched the door handle? Is it worth it work or go to school which may in turn negatively impact our health? I don't know. For me I can't live my life worried that every action I take is going to get me sick or kill me. I can look at all the information gathered so far and make an informed choice that I feel fairly takes into account the risks and benefits and decide which one is more important.

 

[Keepercjr]

Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jbrandonAW</b></i>

the women who had babies and they died within the next year was probably NOT due to pregnancy. It was probably due to not being able to take care of themselves AFTER the baby was born.



My CF doc told me that all the girls in here clinic only had about a 3% decline in lung function during pregnancy. Which was mostly at the end of the pregnancy and after the baby was born and they were given there lungs back, most women return with the same if not BETTER PFTs.</end quote>

Anecdotally - My PFTs are better now than they were when I got pregnant with my son over 3 years ago. And my CF doc told me that in her experience, women with CF actually do better while pregnant because they take better care of themselves.


As far as woman dying after having a baby - I'm sure it happens. But the thing to look at is what was their health beforehand? Tragedy happens and sometimes things happen that you can't see coming. Knowing that some women have died after having babies is an emotional issue but what we also need to know is how many have died vs how many have lived and didn't have a decline due to pregnancy. I'm sure the odds of dying after having a baby are quite small. For some, any risk of affecting your health, no matter how small, is not worth it. For others, a small fraction of a percent chance is not going to affect their decision to have kids. We calculate costs and benefits everyday - is it worth it to go to the mall where sick people may have touched the door handle? Is it worth it work or go to school which may in turn negatively impact our health? I don't know. For me I can't live my life worried that every action I take is going to get me sick or kill me. I can look at all the information gathered so far and make an informed choice that I feel fairly takes into account the risks and benefits and decide which one is more important.