CF and Pregnancy: It's Do-able, but it's still a high-risk proposition for many women

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Emily65Roses

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>

All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).

I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*
 
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Emily65Roses

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>

All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).

I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*
 
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Emily65Roses

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>

All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).

I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote>

All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).

I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*
 
E

Emily65Roses

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote>

All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).

I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>

For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>



All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).



I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*</end quote></div>


OK I'll ask you the same - show me a study that shows a significant decrease in PFts or the risk of dying. I'll see what I can dig up.

And in no way would I ever downplay what other people w/ CF go through. My own brother died when he was 13 from CF. So I KNOW what others deal with.

Every study I've ever read on CF and pregnancy says it can be safe when the mothers were healthy to begin with - I've yet to read one to the contrary but I'm very interested if you know of one. I don't think those studies downplay anything. Again, nobody is saying someone with poor nutritional status or low PFTs should have a baby. We're talking about healthy individuals.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>

For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>



All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).



I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*</end quote></div>


OK I'll ask you the same - show me a study that shows a significant decrease in PFts or the risk of dying. I'll see what I can dig up.

And in no way would I ever downplay what other people w/ CF go through. My own brother died when he was 13 from CF. So I KNOW what others deal with.

Every study I've ever read on CF and pregnancy says it can be safe when the mothers were healthy to begin with - I've yet to read one to the contrary but I'm very interested if you know of one. I don't think those studies downplay anything. Again, nobody is saying someone with poor nutritional status or low PFTs should have a baby. We're talking about healthy individuals.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>

For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote></div>



All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).



I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*</end quote></div>


OK I'll ask you the same - show me a study that shows a significant decrease in PFts or the risk of dying. I'll see what I can dig up.

And in no way would I ever downplay what other people w/ CF go through. My own brother died when he was 13 from CF. So I KNOW what others deal with.

Every study I've ever read on CF and pregnancy says it can be safe when the mothers were healthy to begin with - I've yet to read one to the contrary but I'm very interested if you know of one. I don't think those studies downplay anything. Again, nobody is saying someone with poor nutritional status or low PFTs should have a baby. We're talking about healthy individuals.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>

For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote>



All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).



I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*</end quote>


OK I'll ask you the same - show me a study that shows a significant decrease in PFts or the risk of dying. I'll see what I can dig up.

And in no way would I ever downplay what other people w/ CF go through. My own brother died when he was 13 from CF. So I KNOW what others deal with.

Every study I've ever read on CF and pregnancy says it can be safe when the mothers were healthy to begin with - I've yet to read one to the contrary but I'm very interested if you know of one. I don't think those studies downplay anything. Again, nobody is saying someone with poor nutritional status or low PFTs should have a baby. We're talking about healthy individuals.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>

For others, a small fraction of a percent chance is not going to affect their decision to have kids.</end quote>



All I'm saying here is I think a "fraction of a percent" is pushing it. You show me a study that was done on a wider scale than one clinic or one state... that shows that only a fraction of a percent of CF women died post-pregnancy (or that most didn't have their PFTs go way down during and after).



I'm not saying CF women shouldn't have kids. It's not my life you're talking about, and I don't care what other people choose to do with themselves. But I don't like when people downplay what other CFers deal with. So until you've got proof, please don't do that. That's all I'm asking. *shrug*</end quote>


OK I'll ask you the same - show me a study that shows a significant decrease in PFts or the risk of dying. I'll see what I can dig up.

And in no way would I ever downplay what other people w/ CF go through. My own brother died when he was 13 from CF. So I KNOW what others deal with.

Every study I've ever read on CF and pregnancy says it can be safe when the mothers were healthy to begin with - I've yet to read one to the contrary but I'm very interested if you know of one. I don't think those studies downplay anything. Again, nobody is saying someone with poor nutritional status or low PFTs should have a baby. We're talking about healthy individuals.
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/content/full/129/3/706
">http://www.chestjournal.org/cgi/content/full/129/3/706
</a>"Analyses of data from this large cohort demonstrate that women with CF can experience a pregnancy with the impact on their overall respiratory and nutritional health being similar to nonpregnant women"
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/content/full/129/3/706
">http://www.chestjournal.org/cgi/content/full/129/3/706
</a>"Analyses of data from this large cohort demonstrate that women with CF can experience a pregnancy with the impact on their overall respiratory and nutritional health being similar to nonpregnant women"
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/content/full/129/3/706
">http://www.chestjournal.org/cgi/content/full/129/3/706
</a>"Analyses of data from this large cohort demonstrate that women with CF can experience a pregnancy with the impact on their overall respiratory and nutritional health being similar to nonpregnant women"
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/content/full/129/3/706
">http://www.chestjournal.org/cgi/content/full/129/3/706
</a>"Analyses of data from this large cohort demonstrate that women with CF can experience a pregnancy with the impact on their overall respiratory and nutritional health being similar to nonpregnant women"
 
K

Keepercjr

Guest
Odds of a Successful Pregnancy

<a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/cgi/content/full/129/3/706
">http://www.chestjournal.org/cgi/content/full/129/3/706
</a>"Analyses of data from this large cohort demonstrate that women with CF can experience a pregnancy with the impact on their overall respiratory and nutritional health being similar to nonpregnant women"
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I don't need a study, go take a look at the preggo forum. We listed our pfts and our health before during and after.

Also I've never heard of them doing a study where a whole bunch of CF women have died from giving birth. I'm sure YEARS ago maybe, but not now. I'm sure women die but in order for it to be the result of giving birth it would have to take place within the 6months of having the baby. To say that a women died YEARS later was a result of pregnancy, I don't see how they can correlate. The only thing I could see is a women not having the time to take care of herself after the baby was born adn thus resulting in an awful decline in health. Or she has horrible health before she got pregnant, however is your weight is TO low, along with your lung function your body wouldn't allow you to get pregnant. (thast not jsut women with CF its women EVERYWHERE) you body has to be at a certain BMI and health function in order fo you to get pregnant and maintain a pregnancy
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I don't need a study, go take a look at the preggo forum. We listed our pfts and our health before during and after.

Also I've never heard of them doing a study where a whole bunch of CF women have died from giving birth. I'm sure YEARS ago maybe, but not now. I'm sure women die but in order for it to be the result of giving birth it would have to take place within the 6months of having the baby. To say that a women died YEARS later was a result of pregnancy, I don't see how they can correlate. The only thing I could see is a women not having the time to take care of herself after the baby was born adn thus resulting in an awful decline in health. Or she has horrible health before she got pregnant, however is your weight is TO low, along with your lung function your body wouldn't allow you to get pregnant. (thast not jsut women with CF its women EVERYWHERE) you body has to be at a certain BMI and health function in order fo you to get pregnant and maintain a pregnancy
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I don't need a study, go take a look at the preggo forum. We listed our pfts and our health before during and after.

Also I've never heard of them doing a study where a whole bunch of CF women have died from giving birth. I'm sure YEARS ago maybe, but not now. I'm sure women die but in order for it to be the result of giving birth it would have to take place within the 6months of having the baby. To say that a women died YEARS later was a result of pregnancy, I don't see how they can correlate. The only thing I could see is a women not having the time to take care of herself after the baby was born adn thus resulting in an awful decline in health. Or she has horrible health before she got pregnant, however is your weight is TO low, along with your lung function your body wouldn't allow you to get pregnant. (thast not jsut women with CF its women EVERYWHERE) you body has to be at a certain BMI and health function in order fo you to get pregnant and maintain a pregnancy
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I don't need a study, go take a look at the preggo forum. We listed our pfts and our health before during and after.

Also I've never heard of them doing a study where a whole bunch of CF women have died from giving birth. I'm sure YEARS ago maybe, but not now. I'm sure women die but in order for it to be the result of giving birth it would have to take place within the 6months of having the baby. To say that a women died YEARS later was a result of pregnancy, I don't see how they can correlate. The only thing I could see is a women not having the time to take care of herself after the baby was born adn thus resulting in an awful decline in health. Or she has horrible health before she got pregnant, however is your weight is TO low, along with your lung function your body wouldn't allow you to get pregnant. (thast not jsut women with CF its women EVERYWHERE) you body has to be at a certain BMI and health function in order fo you to get pregnant and maintain a pregnancy
 
J

jbrandonAW

New member
Odds of a Successful Pregnancy

I don't need a study, go take a look at the preggo forum. We listed our pfts and our health before during and after.

Also I've never heard of them doing a study where a whole bunch of CF women have died from giving birth. I'm sure YEARS ago maybe, but not now. I'm sure women die but in order for it to be the result of giving birth it would have to take place within the 6months of having the baby. To say that a women died YEARS later was a result of pregnancy, I don't see how they can correlate. The only thing I could see is a women not having the time to take care of herself after the baby was born adn thus resulting in an awful decline in health. Or she has horrible health before she got pregnant, however is your weight is TO low, along with your lung function your body wouldn't allow you to get pregnant. (thast not jsut women with CF its women EVERYWHERE) you body has to be at a certain BMI and health function in order fo you to get pregnant and maintain a pregnancy
 
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