CF and Pregnancy: It's Do-able, but it's still a high-risk proposition for many women

lightNlife

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
"do the responsible thing and not procreate". .</end quote></div>

My apologies for how that statement is offensive. I meant to use the word "responsible" as far as self-preservation goes, not as a moral judgment. Thanks for the reminder to be more careful about how I chose my words. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I also respect your choice and wish you the best as a mom.
 

lightNlife

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
"do the responsible thing and not procreate". .</end quote></div>

My apologies for how that statement is offensive. I meant to use the word "responsible" as far as self-preservation goes, not as a moral judgment. Thanks for the reminder to be more careful about how I chose my words. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I also respect your choice and wish you the best as a mom.
 

lightNlife

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
"do the responsible thing and not procreate". .</end quote></div>

My apologies for how that statement is offensive. I meant to use the word "responsible" as far as self-preservation goes, not as a moral judgment. Thanks for the reminder to be more careful about how I chose my words. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I also respect your choice and wish you the best as a mom.
 

lightNlife

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
"do the responsible thing and not procreate". .</end quote>

My apologies for how that statement is offensive. I meant to use the word "responsible" as far as self-preservation goes, not as a moral judgment. Thanks for the reminder to be more careful about how I chose my words. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I also respect your choice and wish you the best as a mom.
 

lightNlife

New member
Odds of a Successful Pregnancy

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i>
"do the responsible thing and not procreate". .</end quote>

My apologies for how that statement is offensive. I meant to use the word "responsible" as far as self-preservation goes, not as a moral judgment. Thanks for the reminder to be more careful about how I chose my words. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I also respect your choice and wish you the best as a mom.
 

lightNlife

New member
Odds of a Successful Pregnancy

Seana,
Some clinics define "healthy enough" based on BMI, which is related to height and weight. There are varying degrees of what they call "nutritional status." For awhile I was in "nutritional failure" because my BMI was only 19. BMI is calculated by dividing the weight (in kg) by height (in m). The national goal that the CFF hopes to see its patients achieve is for CFers under the age of 20 to have a BMI that is within the 50th percentile of non-CF individuals of the same age. Young women, particularly those who are looking to bear children, should aim for a BMI of 22.

Based on the information you gave about Courtney, she is very underweight, which you already knew. A good rule of thumb for women is that they should weigh 100 pounds for the first 5 feet of height, and 5 pounds for every additional inch. For example, I am 5'5", so by applying this rule I should aim to weigh 100lbs + (5lbs x 5) = 125 pounds. My BMI is only 20.5 at this point, which is why I'm working so hard to gain that additional muscle mass.

Courtney's BMI is only 14.5. That is VERY low, perhaps even dangerously so. I hope that together you, she and the doctors can find a way to bulk her up so that she'll be much healthier and have a better FEV1. I think it's wonderful that she would like to adopt one day. I hope that all the decisions she makes will be made with her health at the forefront.

Caroline, I love it that we're both looking at the numerical data! (So many people don't even want to attempt to tackle it.) I see where you get that 80+%. I'm redoing my mathematical assumptions. Thanks for making me dig deeper! I LOVE that about the forums.
 

lightNlife

New member
Odds of a Successful Pregnancy

Seana,
Some clinics define "healthy enough" based on BMI, which is related to height and weight. There are varying degrees of what they call "nutritional status." For awhile I was in "nutritional failure" because my BMI was only 19. BMI is calculated by dividing the weight (in kg) by height (in m). The national goal that the CFF hopes to see its patients achieve is for CFers under the age of 20 to have a BMI that is within the 50th percentile of non-CF individuals of the same age. Young women, particularly those who are looking to bear children, should aim for a BMI of 22.

Based on the information you gave about Courtney, she is very underweight, which you already knew. A good rule of thumb for women is that they should weigh 100 pounds for the first 5 feet of height, and 5 pounds for every additional inch. For example, I am 5'5", so by applying this rule I should aim to weigh 100lbs + (5lbs x 5) = 125 pounds. My BMI is only 20.5 at this point, which is why I'm working so hard to gain that additional muscle mass.

Courtney's BMI is only 14.5. That is VERY low, perhaps even dangerously so. I hope that together you, she and the doctors can find a way to bulk her up so that she'll be much healthier and have a better FEV1. I think it's wonderful that she would like to adopt one day. I hope that all the decisions she makes will be made with her health at the forefront.

Caroline, I love it that we're both looking at the numerical data! (So many people don't even want to attempt to tackle it.) I see where you get that 80+%. I'm redoing my mathematical assumptions. Thanks for making me dig deeper! I LOVE that about the forums.
 

lightNlife

New member
Odds of a Successful Pregnancy

Seana,
Some clinics define "healthy enough" based on BMI, which is related to height and weight. There are varying degrees of what they call "nutritional status." For awhile I was in "nutritional failure" because my BMI was only 19. BMI is calculated by dividing the weight (in kg) by height (in m). The national goal that the CFF hopes to see its patients achieve is for CFers under the age of 20 to have a BMI that is within the 50th percentile of non-CF individuals of the same age. Young women, particularly those who are looking to bear children, should aim for a BMI of 22.

Based on the information you gave about Courtney, she is very underweight, which you already knew. A good rule of thumb for women is that they should weigh 100 pounds for the first 5 feet of height, and 5 pounds for every additional inch. For example, I am 5'5", so by applying this rule I should aim to weigh 100lbs + (5lbs x 5) = 125 pounds. My BMI is only 20.5 at this point, which is why I'm working so hard to gain that additional muscle mass.

Courtney's BMI is only 14.5. That is VERY low, perhaps even dangerously so. I hope that together you, she and the doctors can find a way to bulk her up so that she'll be much healthier and have a better FEV1. I think it's wonderful that she would like to adopt one day. I hope that all the decisions she makes will be made with her health at the forefront.

Caroline, I love it that we're both looking at the numerical data! (So many people don't even want to attempt to tackle it.) I see where you get that 80+%. I'm redoing my mathematical assumptions. Thanks for making me dig deeper! I LOVE that about the forums.
 

lightNlife

New member
Odds of a Successful Pregnancy

Seana,
Some clinics define "healthy enough" based on BMI, which is related to height and weight. There are varying degrees of what they call "nutritional status." For awhile I was in "nutritional failure" because my BMI was only 19. BMI is calculated by dividing the weight (in kg) by height (in m). The national goal that the CFF hopes to see its patients achieve is for CFers under the age of 20 to have a BMI that is within the 50th percentile of non-CF individuals of the same age. Young women, particularly those who are looking to bear children, should aim for a BMI of 22.

Based on the information you gave about Courtney, she is very underweight, which you already knew. A good rule of thumb for women is that they should weigh 100 pounds for the first 5 feet of height, and 5 pounds for every additional inch. For example, I am 5'5", so by applying this rule I should aim to weigh 100lbs + (5lbs x 5) = 125 pounds. My BMI is only 20.5 at this point, which is why I'm working so hard to gain that additional muscle mass.

Courtney's BMI is only 14.5. That is VERY low, perhaps even dangerously so. I hope that together you, she and the doctors can find a way to bulk her up so that she'll be much healthier and have a better FEV1. I think it's wonderful that she would like to adopt one day. I hope that all the decisions she makes will be made with her health at the forefront.

Caroline, I love it that we're both looking at the numerical data! (So many people don't even want to attempt to tackle it.) I see where you get that 80+%. I'm redoing my mathematical assumptions. Thanks for making me dig deeper! I LOVE that about the forums.
 

lightNlife

New member
Odds of a Successful Pregnancy

Seana,
Some clinics define "healthy enough" based on BMI, which is related to height and weight. There are varying degrees of what they call "nutritional status." For awhile I was in "nutritional failure" because my BMI was only 19. BMI is calculated by dividing the weight (in kg) by height (in m). The national goal that the CFF hopes to see its patients achieve is for CFers under the age of 20 to have a BMI that is within the 50th percentile of non-CF individuals of the same age. Young women, particularly those who are looking to bear children, should aim for a BMI of 22.

Based on the information you gave about Courtney, she is very underweight, which you already knew. A good rule of thumb for women is that they should weigh 100 pounds for the first 5 feet of height, and 5 pounds for every additional inch. For example, I am 5'5", so by applying this rule I should aim to weigh 100lbs + (5lbs x 5) = 125 pounds. My BMI is only 20.5 at this point, which is why I'm working so hard to gain that additional muscle mass.

Courtney's BMI is only 14.5. That is VERY low, perhaps even dangerously so. I hope that together you, she and the doctors can find a way to bulk her up so that she'll be much healthier and have a better FEV1. I think it's wonderful that she would like to adopt one day. I hope that all the decisions she makes will be made with her health at the forefront.

Caroline, I love it that we're both looking at the numerical data! (So many people don't even want to attempt to tackle it.) I see where you get that 80+%. I'm redoing my mathematical assumptions. Thanks for making me dig deeper! I LOVE that about the forums.
 

jbrandonAW

New member
Odds of a Successful Pregnancy

Sean30

I have a couple suggestions. When I was younger I was really underweight. You might want to try switching her brand of enzymes. I did this and I put on weight VERY quickly (I switched from pancrease to creon) They may also need to up the dosaged (like I'm on crean 20 and take 6) I knwo they are gross but you may want to have her drinkin 3 supplements a day, along with eating more. I knwo she is in high school so she is always on the go. What she said about the weight is right. I am 5'3 1/2 and (pre preggo) I weight 115. I am now 12 weeks and weigh 112 (I lostt some due to morning sickness) I didn't even start getting a period until I was 16 and over 100lbs so I'm surprised she is even having one.

Weight definalty has a good correlation to lung function!
 

jbrandonAW

New member
Odds of a Successful Pregnancy

Sean30

I have a couple suggestions. When I was younger I was really underweight. You might want to try switching her brand of enzymes. I did this and I put on weight VERY quickly (I switched from pancrease to creon) They may also need to up the dosaged (like I'm on crean 20 and take 6) I knwo they are gross but you may want to have her drinkin 3 supplements a day, along with eating more. I knwo she is in high school so she is always on the go. What she said about the weight is right. I am 5'3 1/2 and (pre preggo) I weight 115. I am now 12 weeks and weigh 112 (I lostt some due to morning sickness) I didn't even start getting a period until I was 16 and over 100lbs so I'm surprised she is even having one.

Weight definalty has a good correlation to lung function!
 

jbrandonAW

New member
Odds of a Successful Pregnancy

Sean30

I have a couple suggestions. When I was younger I was really underweight. You might want to try switching her brand of enzymes. I did this and I put on weight VERY quickly (I switched from pancrease to creon) They may also need to up the dosaged (like I'm on crean 20 and take 6) I knwo they are gross but you may want to have her drinkin 3 supplements a day, along with eating more. I knwo she is in high school so she is always on the go. What she said about the weight is right. I am 5'3 1/2 and (pre preggo) I weight 115. I am now 12 weeks and weigh 112 (I lostt some due to morning sickness) I didn't even start getting a period until I was 16 and over 100lbs so I'm surprised she is even having one.

Weight definalty has a good correlation to lung function!
 

jbrandonAW

New member
Odds of a Successful Pregnancy

Sean30

I have a couple suggestions. When I was younger I was really underweight. You might want to try switching her brand of enzymes. I did this and I put on weight VERY quickly (I switched from pancrease to creon) They may also need to up the dosaged (like I'm on crean 20 and take 6) I knwo they are gross but you may want to have her drinkin 3 supplements a day, along with eating more. I knwo she is in high school so she is always on the go. What she said about the weight is right. I am 5'3 1/2 and (pre preggo) I weight 115. I am now 12 weeks and weigh 112 (I lostt some due to morning sickness) I didn't even start getting a period until I was 16 and over 100lbs so I'm surprised she is even having one.

Weight definalty has a good correlation to lung function!
 

jbrandonAW

New member
Odds of a Successful Pregnancy

Sean30

I have a couple suggestions. When I was younger I was really underweight. You might want to try switching her brand of enzymes. I did this and I put on weight VERY quickly (I switched from pancrease to creon) They may also need to up the dosaged (like I'm on crean 20 and take 6) I knwo they are gross but you may want to have her drinkin 3 supplements a day, along with eating more. I knwo she is in high school so she is always on the go. What she said about the weight is right. I am 5'3 1/2 and (pre preggo) I weight 115. I am now 12 weeks and weigh 112 (I lostt some due to morning sickness) I didn't even start getting a period until I was 16 and over 100lbs so I'm surprised she is even having one.

Weight definalty has a good correlation to lung function!
 
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