cf is merciful

Prussian

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

To clarify things more. " Merciful" was a word i used to compare to it to the worst diseases or disabilities in life because I rank CF among the top 3 killer diseases. However, I firmly believe that its better than other disabilities.



I believe that quality of life is much important than the quantity. Many agree with me. Thus, I dont care because cf kills. We all die sooner or later. However, the worst thing abt it is that it in its last stages it steals your quality of life. Im going through this right now. I have seen the worst of cf yet I thank God that this phase is not long.



Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness.



Some replies surprised me bcz they were written by people who themselves thank God for CF, and they say it shaped their life better. If this is the case, than CF is more than merciful and a blessing to you. Unless, you dont feel what you write and you just try to look strong which is pathetic.



Anyways to conclude my point. Yes I prefer CF over other disabilities , but I surely wish I didnt have it. Life could be much worse, we just have to look at the lesser of 2 evils.</end quote></div>

If you are in the end stages have you considered transplant? It could provide you with many more years of life (a high quality life). There are people on here that are 12 years post transplant and still doing well every day.
 

Prussian

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

To clarify things more. " Merciful" was a word i used to compare to it to the worst diseases or disabilities in life because I rank CF among the top 3 killer diseases. However, I firmly believe that its better than other disabilities.



I believe that quality of life is much important than the quantity. Many agree with me. Thus, I dont care because cf kills. We all die sooner or later. However, the worst thing abt it is that it in its last stages it steals your quality of life. Im going through this right now. I have seen the worst of cf yet I thank God that this phase is not long.



Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness.



Some replies surprised me bcz they were written by people who themselves thank God for CF, and they say it shaped their life better. If this is the case, than CF is more than merciful and a blessing to you. Unless, you dont feel what you write and you just try to look strong which is pathetic.



Anyways to conclude my point. Yes I prefer CF over other disabilities , but I surely wish I didnt have it. Life could be much worse, we just have to look at the lesser of 2 evils.</end quote></div>

If you are in the end stages have you considered transplant? It could provide you with many more years of life (a high quality life). There are people on here that are 12 years post transplant and still doing well every day.
 

Prussian

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ihatecf</b></i>

To clarify things more. " Merciful" was a word i used to compare to it to the worst diseases or disabilities in life because I rank CF among the top 3 killer diseases. However, I firmly believe that its better than other disabilities.



I believe that quality of life is much important than the quantity. Many agree with me. Thus, I dont care because cf kills. We all die sooner or later. However, the worst thing abt it is that it in its last stages it steals your quality of life. Im going through this right now. I have seen the worst of cf yet I thank God that this phase is not long.



Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness.



Some replies surprised me bcz they were written by people who themselves thank God for CF, and they say it shaped their life better. If this is the case, than CF is more than merciful and a blessing to you. Unless, you dont feel what you write and you just try to look strong which is pathetic.



Anyways to conclude my point. Yes I prefer CF over other disabilities , but I surely wish I didnt have it. Life could be much worse, we just have to look at the lesser of 2 evils.</end quote></div>

If you are in the end stages have you considered transplant? It could provide you with many more years of life (a high quality life). There are people on here that are 12 years post transplant and still doing well every day.
 
C

Cutecurlz

Guest
Any disease or disorder will and/or can eventually kill you. If cancer isn't caught in time it can kill you, the same with HIV. Heck I can walk out my front door and get hit by a Big Mac truck. I think in all actuality I would rather have CF. Sure we ALL have our bad days but then we ALL have our good days too. I know what CF is and I know that eventually it WILL kill me. Just because I have a "MILD" case of CF don't mean diddly sqaut. At least with CF then can temporarilly fix anything that is ailing me so YES I would rather have CF and see my death coming. I dunno if this makes sence to all of you or not but it does to me.
 
C

Cutecurlz

Guest
Any disease or disorder will and/or can eventually kill you. If cancer isn't caught in time it can kill you, the same with HIV. Heck I can walk out my front door and get hit by a Big Mac truck. I think in all actuality I would rather have CF. Sure we ALL have our bad days but then we ALL have our good days too. I know what CF is and I know that eventually it WILL kill me. Just because I have a "MILD" case of CF don't mean diddly sqaut. At least with CF then can temporarilly fix anything that is ailing me so YES I would rather have CF and see my death coming. I dunno if this makes sence to all of you or not but it does to me.
 
C

Cutecurlz

Guest
Any disease or disorder will and/or can eventually kill you. If cancer isn't caught in time it can kill you, the same with HIV. Heck I can walk out my front door and get hit by a Big Mac truck. I think in all actuality I would rather have CF. Sure we ALL have our bad days but then we ALL have our good days too. I know what CF is and I know that eventually it WILL kill me. Just because I have a "MILD" case of CF don't mean diddly sqaut. At least with CF then can temporarilly fix anything that is ailing me so YES I would rather have CF and see my death coming. I dunno if this makes sence to all of you or not but it does to me.
 
C

christyisnutz

Guest
It's great when CFers can be positive about CF. I was like that for years, but this past year has been the hardest because of diabetes and newly diagnosed irritable bowel syndrome. I was so close to death right before my transplant, but was more positive then than I have been this past year.

Everyone is entitled to feel the way they do about this disease. I am also partially deaf because of all of the IV antibiotics I took pre-tx and have found myself this past year becoming socially withdrawn because of it. I am taking sign language and have heard of people who lose their hearing committing suicide because they cannot function in normal society anymore. I would never compare myself to anyone else with a different disability. It depends on the person and the circumstances as to how it is going to affect you. It's so easy to say they are better off, or we are better off, etc.. when you haven't been in someone else's shoes.

My friends can't believe that the past year has brought me so much depression. They say that I have been much much sicker and not had any at all. I cannot explain it, but I just know that the problems that have come with diabetes have been so much harder on me than those I had pre-tx.

All of you who want to piss and moan about his disease.. I say GO AHEAD and unless someone has walked in your EXACT shoes, they have no right to judge you.. that goes for you positive people too. Be positive and bring the rest of us up. Kudos to you!!
 
C

christyisnutz

Guest
It's great when CFers can be positive about CF. I was like that for years, but this past year has been the hardest because of diabetes and newly diagnosed irritable bowel syndrome. I was so close to death right before my transplant, but was more positive then than I have been this past year.

Everyone is entitled to feel the way they do about this disease. I am also partially deaf because of all of the IV antibiotics I took pre-tx and have found myself this past year becoming socially withdrawn because of it. I am taking sign language and have heard of people who lose their hearing committing suicide because they cannot function in normal society anymore. I would never compare myself to anyone else with a different disability. It depends on the person and the circumstances as to how it is going to affect you. It's so easy to say they are better off, or we are better off, etc.. when you haven't been in someone else's shoes.

My friends can't believe that the past year has brought me so much depression. They say that I have been much much sicker and not had any at all. I cannot explain it, but I just know that the problems that have come with diabetes have been so much harder on me than those I had pre-tx.

All of you who want to piss and moan about his disease.. I say GO AHEAD and unless someone has walked in your EXACT shoes, they have no right to judge you.. that goes for you positive people too. Be positive and bring the rest of us up. Kudos to you!!
 
C

christyisnutz

Guest
It's great when CFers can be positive about CF. I was like that for years, but this past year has been the hardest because of diabetes and newly diagnosed irritable bowel syndrome. I was so close to death right before my transplant, but was more positive then than I have been this past year.

Everyone is entitled to feel the way they do about this disease. I am also partially deaf because of all of the IV antibiotics I took pre-tx and have found myself this past year becoming socially withdrawn because of it. I am taking sign language and have heard of people who lose their hearing committing suicide because they cannot function in normal society anymore. I would never compare myself to anyone else with a different disability. It depends on the person and the circumstances as to how it is going to affect you. It's so easy to say they are better off, or we are better off, etc.. when you haven't been in someone else's shoes.

My friends can't believe that the past year has brought me so much depression. They say that I have been much much sicker and not had any at all. I cannot explain it, but I just know that the problems that have come with diabetes have been so much harder on me than those I had pre-tx.

All of you who want to piss and moan about his disease.. I say GO AHEAD and unless someone has walked in your EXACT shoes, they have no right to judge you.. that goes for you positive people too. Be positive and bring the rest of us up. Kudos to you!!
 

JennifersHope

New member
Hey Miss Christy...........

I never see you post on here.. It is good to see you.... I am sorry I didn't know you were having a hard time.... I will try to call you in the next few days..We need to talk and catch up my friend... I am actually going to be visiting SC in the next few months.. Maybe a pit stop to NC is in order.. I can't wait to meet that new lovely man of yours.. and I bet Casey is taller then me now.

I was just looking at pictures of us at the airport with our big pout faces on because we were leaving each other.. That was to long ago.....

Hope we can catch up soon....

Love you my friend,

Jennifer
 

JennifersHope

New member
Hey Miss Christy...........

I never see you post on here.. It is good to see you.... I am sorry I didn't know you were having a hard time.... I will try to call you in the next few days..We need to talk and catch up my friend... I am actually going to be visiting SC in the next few months.. Maybe a pit stop to NC is in order.. I can't wait to meet that new lovely man of yours.. and I bet Casey is taller then me now.

I was just looking at pictures of us at the airport with our big pout faces on because we were leaving each other.. That was to long ago.....

Hope we can catch up soon....

Love you my friend,

Jennifer
 

JennifersHope

New member
Hey Miss Christy...........

I never see you post on here.. It is good to see you.... I am sorry I didn't know you were having a hard time.... I will try to call you in the next few days..We need to talk and catch up my friend... I am actually going to be visiting SC in the next few months.. Maybe a pit stop to NC is in order.. I can't wait to meet that new lovely man of yours.. and I bet Casey is taller then me now.

I was just looking at pictures of us at the airport with our big pout faces on because we were leaving each other.. That was to long ago.....

Hope we can catch up soon....

Love you my friend,

Jennifer
 

Allie

New member
<div class="FTQUOTE"><begin quote>Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness. </end quote></div>

I'm going to assume, using my incredible powers of deduction, that this is aimed at me. There's only a handful of people without CF who posted, I'll take it on.

First off, when Ry's CF got end stage, I never once asked him to hang on for me, because he was sick and tired, breathless and suffering. So no, I never would have asked him to stay in that condition.

But blind or deaf, are you kidding me? I don't know what your interactions are with the blind and deaf community, I'm guessing there are none, but I haev had a blind student and a deaf student over the course of my career. Both of them dated, went to college, and have the prospect of long, healthy lives ahead of them. My blind student is even married, my deaf student is still in college. It's not even a close race as to whether I would rather he were blind or deaf vs having CF. I think he'd take the wager as well, because he'd still be here to tuck in his daughter at night, make dinner, and sit and talk to me in the evenings. Ry never even got to be there for Ahava's first day of kindergarten. Blindness doesn't do that, deafness doesn't do that, even if he were wheelchair bound, things would have been better than having to lose him at such a young age. Also, it's not like you just drop dead with CF. It's slow...I seriously have no idea how the comparision even arises.

Even if I could rewind my entire life, erase it all so I was the only one who remembered, and start over again, I'd give Ry the gift of not having CF, even if that meant I never met him, never married him, and he went on to fulfill everything he was capable of. Because that's how bad things get, that I would give him up before letting him deal with it again.

If all this makes me a selfish ninny, well, give me the crown.
 

Allie

New member
<div class="FTQUOTE"><begin quote>Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness. </end quote></div>

I'm going to assume, using my incredible powers of deduction, that this is aimed at me. There's only a handful of people without CF who posted, I'll take it on.

First off, when Ry's CF got end stage, I never once asked him to hang on for me, because he was sick and tired, breathless and suffering. So no, I never would have asked him to stay in that condition.

But blind or deaf, are you kidding me? I don't know what your interactions are with the blind and deaf community, I'm guessing there are none, but I haev had a blind student and a deaf student over the course of my career. Both of them dated, went to college, and have the prospect of long, healthy lives ahead of them. My blind student is even married, my deaf student is still in college. It's not even a close race as to whether I would rather he were blind or deaf vs having CF. I think he'd take the wager as well, because he'd still be here to tuck in his daughter at night, make dinner, and sit and talk to me in the evenings. Ry never even got to be there for Ahava's first day of kindergarten. Blindness doesn't do that, deafness doesn't do that, even if he were wheelchair bound, things would have been better than having to lose him at such a young age. Also, it's not like you just drop dead with CF. It's slow...I seriously have no idea how the comparision even arises.

Even if I could rewind my entire life, erase it all so I was the only one who remembered, and start over again, I'd give Ry the gift of not having CF, even if that meant I never met him, never married him, and he went on to fulfill everything he was capable of. Because that's how bad things get, that I would give him up before letting him deal with it again.

If all this makes me a selfish ninny, well, give me the crown.
 

Allie

New member
<div class="FTQUOTE"><begin quote>Im not afraid of death. Infact Im ready for it. Many of those who answered dont have cf. They are relatives of cfers. It hurts when you see your loved one die. I agree, but if you want to keep him alive 100 years with a disability and long suffering that is selfishness. </end quote></div>

I'm going to assume, using my incredible powers of deduction, that this is aimed at me. There's only a handful of people without CF who posted, I'll take it on.

First off, when Ry's CF got end stage, I never once asked him to hang on for me, because he was sick and tired, breathless and suffering. So no, I never would have asked him to stay in that condition.

But blind or deaf, are you kidding me? I don't know what your interactions are with the blind and deaf community, I'm guessing there are none, but I haev had a blind student and a deaf student over the course of my career. Both of them dated, went to college, and have the prospect of long, healthy lives ahead of them. My blind student is even married, my deaf student is still in college. It's not even a close race as to whether I would rather he were blind or deaf vs having CF. I think he'd take the wager as well, because he'd still be here to tuck in his daughter at night, make dinner, and sit and talk to me in the evenings. Ry never even got to be there for Ahava's first day of kindergarten. Blindness doesn't do that, deafness doesn't do that, even if he were wheelchair bound, things would have been better than having to lose him at such a young age. Also, it's not like you just drop dead with CF. It's slow...I seriously have no idea how the comparision even arises.

Even if I could rewind my entire life, erase it all so I was the only one who remembered, and start over again, I'd give Ry the gift of not having CF, even if that meant I never met him, never married him, and he went on to fulfill everything he was capable of. Because that's how bad things get, that I would give him up before letting him deal with it again.

If all this makes me a selfish ninny, well, give me the crown.
 
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